Hi Lew, I went back to work 6 weeks after my second of three steps with no problems. It's hard adjusting to the new ostomy because it's a loop and is going constantly, but your son will have plenty...
Have they tested for Cdiff? It has the same symptoms, but can only be cured with strong antibiotics and is very contagious. I was always tested for this during a flare up before starting any meds...
Julie, I ate the Metamucil wafers and took more Imodium in the beginning mostly because of the burn. If you can get your output thicker, it will lessen the acidity and reduce the frequency helping to...
I had my surgery for UC, but I think that all in all, it's the same in the end. I was told that it takes a full year before the pouch fully adapts to it's new job. It seemed to take months for me to...
Tinamarie, Just wanted to say that I hope you get good news, sounds like you've been through the ringer. I tend to fall into the smallest percentages too, usually with the crappiest results though!...
Meadowlands, They insert a very small cathedar in your bum and put barium up into the pouch and have you move in different positions while taking xrays. At the end, they might ask you to try and...
The 8-10 bathroom trips is correct, 2-5 would be lucky for those of us with UC. I would also advise to go to jpouch.org and you will see a wide variety of experiences, some good, some bad, some...
Hi Maggie, What you are looking for is a colorectal surgeon The best of the best in this field is at the Cleveland Clinic You can also go to CCFA and do a search for a surgeon there Good luck with...
Nupercainal worked for me and you can get it over the counter, Calmoseptine also helped, which you can get from the pharmacist, but some don't like the warming sensation and staining effect. I...
Christie, Good luck on Tuesday! Lapro is much easier to recover from than an open surgery, so that's already one point in your favor! I agree with walking as soon as you can as it will keep the gas...
Sammies, Sad to hear of the pain you are in, and it will get better just takes time to heal, ya know? Make sure to take your pills before the pain gets out of hand and it will help keep it tolerable....
I so hope they can get this inflammation under control for your daughter and I agree that it's a good idea to wait for the next surgery. I was so sick after my first surgery and they told me that...
Hi Megansmom, I am also a mom to a Megan and I had painful rectal spasms and tailbone pain between my surgeries. I had 3 surgeries in all to complete my jpouch and suffered with this pain until my...
Amanda, I think that is very possible to say that you are depressed and have very good reasons to be. It's very positive that you have already made an appointment and know that you are not acting...
Anyone hear anything? I thought surgery was scheduled on the 12th? Just hoping all went ok....
Glad to hear that you are finally on the mend, hope you continue to get stronger!...
Hi Maggie, I am so sorry for what you have gone through and it's completely normal for the mixed feelings that you're having. The shock of waking up with an ostomy is hard to deal with to say the...
Pull your lower eyelid down and if the color is a very pale pink you could be anemic. After 2 months of my worst flare and surgery to remove the colon, it still took 4 weeks after surgery for the...
The first couple of months is really about adjusting to your new plumbing. Hot baths were the only thing that seemed to help me with the butt burn. And I would sit in one for hours and just cry...
I think your co-workers are wrong, the best thing that you can do for yourself is be prepared and know exactly what you are getting into. I'm sure that they don't understand that doctors don't always...
Could it have anything to do with medications you are currently taking? Have they started you on something new? Have they done an MRI? If the issues you were having cleared, a TIA comes to mind which...
Glad it's over and you are on the mend, try to rest as much as possible, don't over do it again. Your son will only know a healthy & happy mommy! :smilewinkgrin:...
Thanks so much for the support, it really means a lot that I have others who know exactly what I'm going through. I feel better today both physically and mentally, but am still tired. I'm so glad...
Oh yea, get a small pillow and hold it as close as you can to your stomach for coughing after surgery. It would also help to have on the car ride home and if you have cats or dogs that you are afraid...
Sammies, I am so sorry that you are suffering, but hoping that it will all be just a memory for you soon. You will have a lifting weight restriction after your surgery, I think it was no lifting...
A little back track, I've been struggling with back pain since my surgeries and pouchitis since November. Recently had to quit taking Flagyl because it made me feel like I was being poisoned,weakness...
I only had the rectal catheter after my colon was removed. When I had the second surgery of them forming the pouch I didn't have one, nor did I when I had the takedown. I can only assume that because...
Sammie, Hope you are doing well!...
Too bad about the phone, but at least you've got one funny story! Glad it went ok, did they say when you will have your reversal?...
Congrats you really deserve it :tongue:...
I had my takedown surgery in April of last year and in the beginning you will be going more while your pouch adapts. But honestly 2-3 times a day is not the norm, more like 6-10 sounds realistic....
Another wish for all the best! Pretzels, carmel rice cakes & gatorade were my snack of choice-as long as it's not spicy :eyes:...
You've come this far, you can do this! I'm not going to say it was painless, but much easier to deal with than the other two I had. Some suggestions I have for you: take your own toilet paper get a...
Don't push yourself to be well going in to your surgery. I was in the hospital for 3 weeks and nothing was working, I was passing out and had dropped down to 90lbs before they did my surgery. It's...
Hope you can get this under control soon and start feeling better. Keep us posted as to how you are doing...
Sorry I didn't get to this post sooner---- the test is really no big deal, but I'm sure you've found that out already. Hope all goes well for your takedown....
Could it be a yeast infection? When they say fungus it's all I can come up with, but antibiotics would only add to it. There is a prescription cream called Nystatin which will clear it up almost...
I'de love to meet others in Indiana Name the place & time----I'm there :wink: And I'm really jealous, I almost hope you get sun burned!lol...
I just posted a similar question on the Ostomies forum about back pain after my total colectomy. And was told that this can occur even years after the colon is removed. I am diagnosed as...
Those are good ideas and I will bring them up to my doc. I don't think that the PT's understand about my condition, only that I've had several surgeries and am now having back problems. I don't think...
For Crohn's you usually get better when you quit smoking, and flare if you have UC. What's the worst thing that could happen if you did use the Chantix to quit before your surgery? You are already...
Have you noticed more back pain since your surgery? Has it gotten better? I've had horrible back pain since my surgeries and my GI & surgeon have said that it's because my abdominal muscles are...
Cecelia, How are you? Did it work itself out? Worried about you..........
Woooohoooo! :tongue: :tongue: :tongue: :tongue: :tongue: :tongue: :tongue: :tongue: :tongue: :tongue: :tongue: :tongue: :tongue: :tongue: :tongue: Great news Peggy, I am so glad that you are already...
Hopefully the smell of smoke will bother you. I loved smelling second hand smoke when I first quit (sounds crazy huh?) and soon thought it was horrible. The best feeling in the world to me was not...
Peggy, With all the help you give everyone here, by all means, whine, scream, kick, cry, have a tizzy fit! :shocked: It's difficult to deal with setbacks and you have every right to feel the way you...
I was in so much pain and so sick when I had my surgery, and I remember when I woke up in my room I was thankful for the pump. I was itchy from the pain meds so they gave me benadryl and I was pretty...
Peggy, I didn't have any abdominal issues, and there are about 6-7 other "coloned" people that have used it too, and no issues! Hey I think I've come up with a new adjective :tongue: I work at a...
I quit on April 1st cause I said I was a fool for ever starting in the first place! This was my 9th or so try and I've used everything from cold turkey, nicotine gum, patch, inhaler, Wellbutrin,...
NW Indiana (1/2 hour from Chicago) Brrrr...