Great stuff! Thank you. Should I really get a recliner? Wouldit help that much? I'm sooooooooo worried about the stitches opening and having an open wound :shakehead: I actually thought of wearing a...
Blueglass, That's such helpful info. Thank you! Where can I get the pstyle and the hip kit? Maybe a medical supply store? My surgery is set for Feb 24th. What did they use to close you up (stitches...
Thank you all for your replies. I truely appreciate it. I met with the surgeon and after some testing, he thinks he can remove the stump from behind. He did make it sound pretty simple. He even said...
Hello all, I am in desperate need of advise. I had my colon removed and now I'm living with an ileostomy. I opted to leave my rectum in hopes their will be ome miracle where I can get reattached. For...
First of all I'm very excited for you to even take that step and go out with this guy!!! Congrats!! I would say stay away from Chinese food. That gives me extremely high output. Take your immodium...
Hi everyone, I haven't posted in a while but I'm really nervous about this one. I've been having severe arthritis pains and doctors are thinking it may have to do with the rectal stump that's still...
Honestly, I eat everything. I try to get a variety in my day...
Hi Allll, I haven't been on here in a while. Hope you all are doing well. I have had a pretty good summer except for a few ER visits due to my dehyration. Doctors told me not to drink to much...
So all my complaining and the feeling of being swollen was real. I came in to the ER early morning yesterday and after a CTScan it showed I have two partial blockages. I have no infections anywhere...
thank u so much. I will bring that up tomy surgeon...
Ok so I feel that my intestines are irritated and inflammed. Any ideas on how to soothe them? herbal teas or something. Last night I slept with a heating pad on me and today i've been doing soft...
Thanx for the responses. I don't think I allergic to anything. It feels more irritated maybe because oatmeal is a little rough. I don't know. My intestines hurt so i'm staying on soft food for a...
Hi Everyone, This may sound silly but it's true. I have noticed numerous times that when my intestines get irritated I wake up with very puffy eyelids the next morning and it'll last a few days. Just...
Thank you all so much. I'm feeling better. I do take 2 Lomotil 4 times a day but it wasn't helping. I'm drink gatorade and increased my salt. Heart is still racing on and off but I'm sure it will...
Hi everyone, I have had joint pains for a couple of years due to immune problems. Some say fibromyalgia some say arthritis but all I know is it's pain everywhere!!! I tried all the meds and nothing...
Hi...I have a high output and I drink lots and lots of fluid everyday but I still can't keep up with my ileostomy. On Wednesday I went to the ER for dehydration and they gave me 2liters of fluids and...
I'm looking for a really nice gift for my surgeon. He has helped me so much and truely goes out of his way to make sure I'm taken care of. I want to show my appreciation but have no clue on what give...
Hi Val, I had my surgery at cedars in Beverly HIlls and had a fantastic experience. My surgeon's name is Dr. Eiman Firoozmand and he was amazing. The hospital is great. The nurses and wonderful and...
Thank u, no I haven't called or gone in. I'm eating small amounts at a time and things are passing but the pain is still there. The pain is only when things are coming out of the stoma. Very wierd....
Chassity, That's a wonderful thing u are doing!!!! You are so young and so positive!! I always feel I'm the youngest one going through all of this and I can never find anyone to talk to that would...
Hi Everyone, I had what I assume was or is a partial blockage last night. I was in severe pain so I took in a lot of liquids and sure enough it opened up. I was and am still in a lot of pain. My...
thank u all...I actually got really bad with all the leg cramping and the nausea panic attacks and even fevers. I went into the ER, they had me on IV for a couple of hrs and now i'm back to normal....
Thanx everyone, and rose-bud, welcome to the forum =) I'm still feeling horrible. This is day 3 and I spoke with my surgeon on the phone and he thinks it sounds like dehydration also. They gave me...
cecilia..thank u so much still trying to figure out the weakness and why my heart is racing whenever i stand up to walk...
Hi , I think I have or had a blockage. Last night my ileostomy stopped putting out then I got pains that I felt like things were struggling to be pushed out. Finally, i felt like things started...
Thanx guys...I know about donating to the hospital and would do it as a last resort but I really wanted to try and help someone out on here since we are like a little family.....
Hello all.... I have some ileostomy supplies that I don't use anymore because my ileostomy got smaller. So if you need them, I'm giving them away. I know how expensive they are. All you need to do is...
wow thanx everyone...I will def look into the two piece takinis. Were did you buy them?? I'm nervous and very excited. This will be my first vacation since all of this so lots of firsts for me...
Cecilia...u put the calmoseptine on around the stoma?? How does the wafer stick?? and how often do u change it? I use the powder but my skin is still broken on one area and just bothers me like...
Does anyone have advise on how I can swim without the bag floating or showing that it's puffed. I already know about the stoma caps but I can't wear them because my stoma is verrrrrry active and...
Thanx Ohio...=)...
Hi...I'm 33 and have an ileostomy. I have 6ft of intestines left and was on tpn for about 6 months. I did well...learned what to eat to keep the lbs on, eat 3 protein bars a day and take lots of...
Hi Everyone, I'm new to this chat and writing in for my husband that is suffering with his Acid Reflux. He's has to take Nexium every single day in order not to get severe heartburn. They're saying...
Lizzie I'm as confused as you are..haha. When I came and google continent ileostomy it came up as k-pouch also but the way he described it with the "pace maker" and "magnet device" didn't fit the...
He told me the name was continent ileostomy and when he was doing research on it, he did it on a dog and he showed me all the pics. It looks amazing and sounds great but now we have to wait and see...
Hey, I went for a breast augmentation consultation today because I lost a lot of weight and can't gain any back and it turns out that the Dr apparently came up with "continent ileostomy" or K-pouch....
My rectum is out and I still get mucous. It is normal but can be annoying with the irritation. I wipe with preperation H wipes because it's medicated and also apply calmoseptine lotion on it. It will...
You should try the powder that u put around the stoma to absorb whatever is coming out and touching the skin. That might help u. Keep trying different things until u are comfortable with the...
Hey everyone, I'm new to this forum but not to this site. I'm usually on the Ostomates forum. I was diagnosed with FM almost a year ago and my pains are horrible. They get in the way of daily...
Hey all.. It took a couple weeks but I wanted to wait and see how well the new wafers worked. After a few changings, I'm happy to announce that I got some relief and now it's staying on for 4...
I use those hollister bags and I use baby wipes. It's worked great for me. They have the wipes that are for on the go in liitle packs and I keep those on me for school or anywhere else I'm not at...
I don't think they'll sew you up. I had an open wound that they left to close on its own as well. They consider them dirty wounds if they are not close during surgery. I was in pain for about 4...
Happy belated birthday Sammie!!! I'll be 33 on march 24!! Isn't great how we live normal lives now...so happy for you...
Does anyone know if we should be using capsul medication?? I have fibromyalgia and i've been taking lyrica and cymbalta for a while but they're not helping. My body is in sooo much pain!!!!...
Peggy..I just applied this morning..very nervous of using new products but it's all trial and error right??... I def will let u know. If i get 5 days wear i'll be sooooooooo happy...
thanx!!! i'll be sure to update on how it works out...
do u use a skin prep??...
Thanx, I just recieved my shipment so I'm going to try it tomorrow. I hope it gives me longer than 3 days wear time....
Do any of u use adapt barrier rings??? How do u use them, do u recommend them and how long is your wear time???...