Hodaya you are not silly, it's just overwhelming when you feel like crap. It's one more thing to do with your body and you get sick of it. I had no idea about your health care. I'm happy to hear how...
Hodoya-I didn't feel like you were preaching to me at all so don't worry about that. I appreciate the information because I didn't know about further damage from doing that. Thank you for sharing...
Tinkerbell, the surgeon decided not to address the rectocele when doing the colectomy because it is small and he said it actually could help in slowing things down should I have diarrhea as a...
Janie, I'm only almost 3 mos out, but I get sore quite often in my lower left quadrant. I was in the ER Friday night and they said all looked normal for post op after having cat scans. I wish I would...
Hi Jen, I had a total colectomy in April. It was for colonic inertia too. I was so worried about not having control of stools too, but my dr said if that happens then there are medication for...
This sounds like my experience with miralax. It worked for awhile, but eventually it just bloated me. Senna is bought over the counter. I believe just pill form. A store like Walgreens or CVS,...
Marissa-I think I have those same issues because if I don't go at least 4 times a day I am worried! Overall I think I feel pretty good. I sure wouldn't run though, but I didn't run before surgery...
Janie, that's what I've always been told....I'll know it if it doesn't agree with me. But I have been severely constipated my whole life and after surgery I don't want to see if a food will...
Judy, or anyone else-did you feel nausea after eating post surgery for total colectomy? I am almost at 3 mos post op. My portions are smaller now, which is a good plus! I'm thinking I feel this...
Judy, it is good for me to hear what you did after your surgery. I was told when I went home to eat a low residue diet. The dietition gave me a pamphlet with foods that contain low fiber. I ate this...
Judy, let us know if your kidney dr. finds the reason for your stones. I have calcium kidney stones and don't know why. Some have passed over the years while others are just there, lurking....
OH. MY. GOSH! You have every right to feel as you do. I haven't been able to keep up with your story from way back, but can you get copies of everything you've had done so far, and go to a different...
Janie-I don't have pelvic floor dysfunction, but I do have a small retrocele in my rectum. Not sure if I spelled that right, but you know what I meant. OKay, since you've mentioned different...
Judy, Your last two posts have been educational for me and I wanted to thank you for sharing the information! I'm only 2 1/2 mos post op for total colectomy and thought I should be feeling pretty...
Hello Everyone, I thought I better check in since it's been too long since it's been about a month. I've been reading trying to catch up on what you all are going through. Lots of new members I see!...
Lori, Wishing you and your medical team the best. I hope you recover quickly and feel so much better. You're in my prayers too- Linda...
I had a nice long post written and poof! it was gone. I hate when that happens. Marissa, yes I could walk with my epidural. I still felt pain, but nothing like I would have without it. I started out...
Hi Marisa I've always had time to get to the bathroom. I've had control until I could get there. I was very worried about that too. I had visions of liquid just coming out and me not able to control...
I read the FAQ's and well, I'm not getting it. Brain isn't functioning! [img]/community/emoticons/confused.gif [color=blue>Thanks,
Yes, it is so true Lizzie, that being with others that have gone through the exact thing really helps your spirit. You may not get the answers you need, but knowing you are not alone is a tremendous...
Hodaya, I'll bet you are so tired. Patience. How much more patient does a person have to be after going through this for so long. It gets so dang frustrating. I'm praying it won't be much longer for...
Marissa, Please don't let my story scare you from the surgery. Even with all that happened, I would do it again and I am only a bit over 3wks post surgery. I'm still dealing with stuff from the...
Hello Everyone, I'm so sorry to have you worried about me. The day I got home from the hospital (I'll backtrack in a moment) my dad went in to the hospital for emergency surgery with a blocked small...
Just trying to check in. /still in the hospital...problems have slowed recovry In hosp 9 days now, but ea day am closer to health. I'll try to check back, am tired. Linda...
Judy-I'm doing Gatoraide and Miralax too. I don't expect this will clean me out! Oh so bloated though. I didn't get any antibiotics and it sounds like i should be glad. Thanks for your prayers-...
Judy Thank you so much for your advice and well wishes! My surgery is set for 7:20 am central time. I'm doing the prep right now. So far nothing has happened, but not surprising to me! I will have to...
hello all, I don't know why, but I haven't been receiving updates on the forum. Thank you for the good wishes and prayers for my surgery tomorrow. I'm not nervous yet, just small moments of panic....
Hodaya--from what I remember of my last appointment, the dr was going to try laproscopy first, but if had to he would do hand assisted. He wants his partner in surgery with him. But my husband said...
How terrible for you. I hope you are getting relief now. This is so unfair. I am glad to hear you are ok now with the bag. As i said before in a comment, my sister didn't like the idea but once she...
I've never heard of cutting the vaginal wall to get the colon out. But then, pretty much all I have learned is from this forum. I am curious if anyone has had this done. I'll bet you did freak! I'm...
Oh Lizzie, I'm sorry for all that you are going through. Once this is taken care of you will be so much better off. My sister had ulcerative colitis and she ended up having 3 major surgeries over 3...
I'm feeling so bad for you Lizzie, I wish you didn't have to travel for treatment. Insurance. Yucky stuff to get figured out when you are in such pain. Lizzie, I'm sorry I cannot remember specifics...
Judy, I agree, you do not want to pass that stone if it is large! When I first learned I had kidney stones is when I was trying to pass a very large one. I had to be hospitalized and wait it out. Oh...
Thank you for thinking of us and writing the detailed update Lizzie. Gosh, I can't imagine how frustrating and uncomfortable this is for you. I hope that your dr can get this cleared up soon. Waiting...
I'm so sorry this is happening to you. I hope things resolve real soon. How frustrating for you. I have the same questions as the others have posted. I'm praying for you too. Hope you have answers...
I'm so sorry to hear this, but thank goodness you are back getting taken care of. I'm glad you called for help. Keep up posted. Let them keep you in as long as needed. No more begging to get out and...
It doesn't hurt to call. I would call. If nothing else, to put your mind at ease....
Lizzie I haven't been through this yet, but I think you need to go home and stay out of work longer. If the pain persists, get back to the er and stay in the hospital if they admit you. I know how...
Hi Little T I"ll be having my surgery the day before you! I'm having a total colectomy. I've learned a lot from these folks and still learning from those who have gone through the surgery. It has...
Oh my gosh Lizzie. I am going to have to look this up, I am new to the other terms since I haven't experienced them and hope I never do! What did they do for you about this? I remember you saying you...
For Those of you who have had the total colectomy, was it scary to push to have a bm, if you had to at all? I just think about those fresh stitches/staples and not wanting to stress anything! Janie I...
Janie, Just keep writing how well you are doing so I don't chicken out! To go now I have to use a 2 qt tap water enema. I do that every 3 days. If I wait longer I get a lot sicker feeling. Sometimes...
Janie, I'm curious about your thoughts on the epidural too since my dr said I'll have one. Hodaya-so happy about your mom! Yeah! Lizzie-It is so frustrating jumping through all the hoops, but once...
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mom2sophia-I think you need to get to a new doctor right away. You know your body best. Aortic aneurysms are nothing to ding around with. Did he do any tests to see what was in there? Some dr.'s...
I've never had trouble passing urine, but it's more common for me to not completely empty. I just made a comment about it to one of the intake nurses and didn't bring it up with the dr (2nd opinion...
Oh my goodness Lizzie. Not knowing what to do is so emotionally draining. I wish there was a step by step way to take care of our problems. If you have this, then you do that. If you have that, then...
Janie, I am feeling so happy to hear how well you are doing! Thanks for the detailed updates, it really helps with my nerves. I can't believe how much lg intestine you had in there! Whoa! I hope I...
Hi Kristin, I am anxious to hear all the same information you are too. My total colectomy surgery is going to be on April 20th. I've had colonic inertia my whole life. Just getting more worse as I...
Oh my goodness Liz! You've been through so much. I would be just as upset. I haven't had any experience with biofeedback. I hope someone here can give you some answers. Linda...