Cecilia, you are in my prayers, too. Heal quickly and be good to yourself!...
Thank you, everyone! I changed my appliance this morning, and placed it at an angle. I am wearing one pair of panties, and have folded the end of the pouch up into them. I will try tucking the tail...
When I came home from the hospital, up to last week, I was wearing Hollister mini pouches, which I liked because are small and fit in my underwear. The downside to them is that it seemed like I had...
I, too, feel this way at moments throughout the day. I have recovered from surgery fairly well, but will find myself feeling blue about misc. things. I don't want to take any meds for it, because I...
I drink a cup of coffee each morning, but then drink a glass of juice and a glass of water, because coffee can be dehydrating. I figure the juice cancels out the coffee, and the water is my first...
If you are moving forward with the surgery, you will have to prep for it just like you have to prep for a colonoscopy. If you are serious about having the surgery, I would skip the colonoscopy.........
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Great news! Congratulations! Have fun at the beach today.....wear sunscreen!...
uc-kp, welcome. Because of UC I almost missed my daughter's wedding. I had my first flare up 21 years ago, and cleared it up with Rowasa enemas. Went on with life symptom free for 20 years, and then...
Robin, I am so sorry this is happening to you. What did you eat that caused this? What advice did the nurse give you? You are very fortunate to have family close by to help with your little one. I...
Wow! This is interesting interesting info! Good for you for being so brave. I have only had lettuce in other foods. I have also had pieces of tomato, too, and made sure to chew chew chew. I have no...
You became dehydrated a lot, or you fainted a lot, or both? I was told by a woman who has had an ileostomy for 14 years that a good way to check for dehydration is to pinch the skin on the back of...
I just talked with my surgeon. He said I might have been dehydrated, and wants me to make an appointment with my primary care doctor to have my blood pressure and other blood work(?) done. He also...
Hi sammies. I am a teacher, too. I had the same surgery as you - mine was an open surgery. Everyone has said not to go back to work too early. I was feeling so good that I thought six weeks would be...
Hi all. Yesterday my husband and I went for a walk, which we have been doing every day for the past few weeks. We were about a half mile into the walk, and suddenly I felt very light headed - like a...
Jackie, my surgeon told me ten days after surgery that I could eat whatever I wanted, but to introduce foods one at a time to see how the body responds. The literature I was given in the hospital,...
Peggy, that is a good idea. I see Robin has started such a thread. I hope I will be able to add positive comments to it in the coming days....
Thanks everyone! NEsailor you are right, we are normal and it is a relative term. I just have to get more used to my new "normal." Considering how diseased my colon was, this new normal is definitely...
When did your stoma stop hurting? I still ache around the stoma, and when I go walking I have to make sure I don't walk too fast, or the pain will increase. It is more like a nagging pain, but I am...
Hi all. This evening I met with four of my girlfriends, had a glass of wine, and almost forgot I am in an altered state. Then, my husband took me to dinner with a group of his colleagues. It has been...
I wonder why the nurse told you not to shower. The surgeon told me I could shower while I was still in the hospital. I shower with the bag on and don't cover it with anything, and on change days I...
tkctwbd- I am so sorry this is happening to you. I had a leak with the first change the ET nurse did in the hospital. I couldn't tell at first if it was a leak, or if my incision was oozing (although...
Robin, I am sorry this happened to you. I had purchased a pad to put under the sheets prior to my surgery, but have since removed it because it didn't feel soft on my tender bottom. Knock on wood, I...
Cecilia, thanks for your detailed answer. My past two changes have been five days apart. My skin looks like it is holding up OK. You mentioned an ointment that you put on the skin around the stoma. I...
Congratulations! It is great to read good news in the midst of all the negative news about the economy these days. Does this mean you will be moving? You need to celebrate!...
Ohio, I haven't used Imodium. Do you take it in the morning before leaving for work, or before lunch? Are there potential problems with using it to slow things down? Right now it seems like when I...
Christie, I am sending positive thoughts and prayers your way. Let us know how you are doing when you are up to posting after you are UC free....
Thank you, all, for your words of wisdom and caring. Once I go back to work, I will have to change my appliance on a work day unless I can get a full week out of one change. Summer, the thought of...
Hey summer are these like washcloths that you use?...
Hi everyone. My surgery was on 2/19 and I came home from the hospital on Tuesday, 2/24. The surgeon did an open procedure, so I have a nice vertical scar from my belly to below...
Hi Sammies. I came home from the hospital on Tuesday, and have been too out of it to post anything. I am sorry you have so much pain. My doc gave me vicodin with tylenol and told me I could take one...
Thanks for the feedback and suggestions. Now I know what "chucks" are. I am learning a whole new vocabulary! I am also learning that traveling places will require some additions to my luggage I...
Thank you, everyone, for the warm welcome. I do look forward to feeling disease free....
Robin, Thank you so much for being so candid about your journey. You have asked the questions I have been thinking. The responses you have received from the veterans here have been awesome. I am glad...
Do any of you use a waterproof mattress pad, or some other sort of protective padding on your beds? Any suggestions? Easier to think about things like this than my upcoming surgery. Thanks!...
Hi everyone. I have been visiting this site for several weeks now, and have found the love and support the members give each other is amazing. I have UC and am scheduled for a proctocolectomy and...