Hey there. I still browse from time to time. Glad I saw your post. I had the colostomy surgery in 2009, was irrigating and everything was going pretty well. Then it started becoming harder and harder...
I just found out that I am having surgery on Tuesday 5/26 for a colostomy. It'll be laparoscopic. I'm super excited because I can't wait to feel better, I've been desperate to feel better for a long...
Summerstorm- thankyou! It will be a colostomy so I will be sure to ask about irrigation. I am very interested in trying it. Thankyou for the hints and the warning about the output at first. That...
I saw my doctor this week and we have decided that a colostomy will be my best option, so I am supposed to have surgery soon. I don't have a date yet but it should be either at the end of May or...
That is really frustrating that he is making you do all this. I'm sure he's just trying to make sure you will handle it all ok. My opinion from talking with multiple doctors and friends and family is...
Thankyou so much! I'm excited because I can't wait to feel better, but I'm scared at the same time. I hope I have made the right choice. How about you? When do you go to see your doctor? I'm so glad...
well..I just went to see my doctor today, and it's official, I am getting a colostomy. He ssaid the k-pouch was not an option for me. I think I am happy to try the colostomy and see how irrigation...
Sarmiento, I do not have IBS, but I have had terrible constipation for years from pelvic floor dysfuction. The muscles just don't work. I have no quality of life and I am miserable all the time. I am...
That's great lizzie!! Hang in there till then....
Im not sure if that is an option or not. I thought they were for ileostomies, but I don't really know. What we had talked about was the possibility of doing a colostomy with plans to irrigate, so I...
LOL! Wouldn't that be just wonderful!!! Then everyone would be happy!if only it was that easy!...
I know, I feel like it's all I ever think about. Can you believe I actually felt jealous when I was talking to someone today who told me they had food poisoning for the past couple of days. They were...
ih8u- This is all so frustrating isn't it!! I know for me, dealing with insurance has been very difficult at times. I have found myself in tears on the phonoe with them, and even at the doctor's...
Hodaya- Thank you very much! I know it's the right thing. Like today when I come home from work and I have felt terrible all day, my stomach hurts so bad, and all I can think about is trying to go to...
Lizzie- that's great that you are feeling a little better! NO jumping out of windows allowed! =) Sounds like you are on your way to recovery. Good luck with eating and hopefully going home. I hope...
Ohio- you're exactly right! I want to get on with my life so badly, I can't sit back and watch my life pass by any more! And you're right, they don't feel what I feel every day. I am completely fine...
I just saw my doctor on Monday, and basically I have two choices- either try the ACE procedure (antegrade colonic enema) or a colostomy. He seems to endorse the ACE procedure, but I'm really worried...
Thank you! Good luck to you as well! I don't know about the acne..I always break out when I am about to start my period, and my stomach always feels worse around this time as well. I'm not sure why...
Yes! I have got to do something! I go see my doctor on Monday, and we will discuss options. We have talked before about either doing an ACE procedure or a colostomy. (Antergrade Colonic Enema-...
I have had computer issues for the last two days., so I haven't been able get on here =( ih8u- Your story sounds miserable. Sorry you're having such a hard time. Your symptoms sound similar to mine-...
I must say I have been completely un-impressed with biofeedback- everyone (my doctors) seemed to think it was a magic cure, but it has not helped AT ALL. Botox injections also did nothing for me. I...
ih8u- I am currently doing my second round of biofeedback (which has been no help at all). The first time around I paid out of pocket because I could not get my insurance company to pay for it. It...
Lizzie- I know this is a little late, but I hope your surgery went well. Maybe now you'll be on your way to feeling better. Good luck! Get some rest and feel better!...
I'm so sorry you are feeling so bad Lizzie!! I hope they decide on a plan soon, and I hope it's what you want! You must feel miserable! I hope they get you fixed up soon and I hope you feel better!...
Oh no Lizzie! I hope you start feeling better! That must be so uncomfortable! I'm glad you're out of the hospital now. How did they fix it? Littlet- I am also new to this site. It has been so nice...
Hodaya- I'm so glad that your mom is going home!! That's great!!!...
Good luck Amanda! I hope everything goes well!! You should stop and get your favorite food on the way home!...
Lizzie- It's crazy how similar our stories are! I agree with you, no amount of biofeedback is going to change anything! Can we please move on from it! I feel like everyone thinks it's a magic cure...
I feel like I am full ALL the time, I can't remember the last time I felt empty. I also have the urge to go pretty much all the time. It gets down there, it just can't get out. Suppositories and...
I think it's called a sphincterotomy? I asked about this, but was told it would leave me incontinent. Not sure what the difference is, why it works for some and not others. I have a friend that had...
Hi there! Lizzie- I feel you! I am so desperate for an answer that will actually work ! I have tried everything, and have had every humiliating test done over and over. Modesty is out the window....
Lizzie, I am currently doing biofeedback as well for the second time. It has been no help at all so far. I don't have high hopes. I also have anismus, I believe. My pelvic floor muscles are all...
Whining is kind of like complaining, and by entertaining, I just meant listenening. So basically thanks for hearing my complaints =) hope that makes sense? I'm not very good at vocabulary =)...
Thanks Hodaya- I think I was having a bit of a breakdown moment. Thanks for listening. Yes, I've tried suppositories, quite a few times actually, and they don't help. They make the urge to go worse,...
Karen- Thank you so much for the welcome! Everyone here has been so nice. I don't know what the right answer will be for me. I think I have tried everything there is to try except this biofeedback...
Thankyou so much Peggy!! I think I'll be sticking around....
Bella- thank you so much for your take on the whole thing! Sounds like you are enjoying life and feeling much better! That's great! I would love to be out of the bathroom long enough in the day to...
Summerstorm, Thankyou so much for your response!! I read the posts from the link...thank you OHIO76...and they were very helpful as well. It sounds like overall everyone seems to be happier after...
Thank you!...
I am so very sorry for you and your mom! You've had a rough couple of weeks! I hope her doctors are able to make her well again! Good luck to you both!...
So...I'm trying to weigh out my options and decide what will be the best long-term solution for me. I was wondering if anyone would like to share what you like most about your colostomy/ or...
Hodaya, I am so sorry to hear this! I don't know the whole story about everything that is going on with your mom, but I will be thinking about her and I hope she gets better!...
Peggy, Thankyou so much!! I really appreciate all the support! It's so nice to be able to talk about these things. I feel like no one else really understands how isolated problems like this can make...
Thank you so much!! Thanks for all your responses! I hope you get a date soon!!! Waiting to find out when something will happen is so difficult! I also hope that the ACE procedure can be avoided!...
Hodaya, Wow, it sounds like you've had a rough time! I hope the colectomy works for you! That would be great! When are you having the surgery? I'd like to hear how it goes. Yes, I also have trouble...
Hodaya, Thankyou so much for your response! Yes I have had the sitz market study- it was normal. I have also had two defacography studies. Both showed severe puborectalis dysfunction with complete...
Hello everyone! I just found this forum and have been encouraged by some of the posts i've read. However, I haven't found anyone with the same symptoms/problems that I have. I was wondering if there...