I had lots of concerns about the safety of my stoma at first too so I asked my surgeon about it and the only thing to worry about would be a very hard direct hit to the area. I'm pretty active so...
I had major skin irritation when I used Sure Seals so unfortunately I had to quit using them. My WOC nurse recommended using this stuff called Convatec Duoderm. I think it's meant as a wound dressing...
I did some pretty rough mountain snowboarding in Montana last winter with my ostomy and it worked out great. No pain or injuries to speak of (other than really sore legs.) Of course, falling on your...
I was just at the Mayo yesterday having an MRI and sigmoid/ileoscopy. After the results came in I met with Dr. Tremaine and he thinks I should go for a reversal. I still have my rectum and sigmoid...
Yes, the belt really helps keep it all in place and offers an extra security....
ucfree, it's not necessary but I do order the sterile gauze sponges to clean around my stoma because I'm comfortable with them. I also use some peristomal wipes that my supplier carries to clean off...
Seriously check out the ostomysecrets.com page and look at the wraps. I wear one all day every day and I don't have to turn my bag sideways. Also, it is extremely easy to empty with it on since its...
Chevy, you can do anything you want with an ostomy. I regularly golf, play tennis, ride my motorcycle, run and lift weights all without a problem. Having a stealthbelt or something similar with be...
Allison, I had the same problem with sure seals irritating my skin. I found a pretty decent replacement by using convatec duoderm extra thin 4"x4" wound dressings. I just cut the square into four...
Question for the folks that have gone to waterparks or even just sat in a hot tub: How confident are you in your seal when you're dealing with all that water? I've had my ileo for about a year now...
I'm nearing a year post surgery and I can eat absolutely anything without any worries. At the 2 month mark I was a lot more cautious than I am now, but I never encountered anything that gave me...
I've been on Cimzia for about 4 months now and so far so good. I haven't noticed any side effects and the disease in my terminal ileum is no longer active which is fantastic. I do have minor skin...
I fasted starting at maybe 8pm the night before. I have an ileostomy due to a partial colectomy, so I don't have to do the major prep that folks with a colon usually do. After I made my appointment...
I just got done with a trip to the mayo and Dr. Tremaine was my doc there. The way it happened for me was I got there on a Monday and met with a doctor in training that went over my records and then...
I find just placing my hand over my stoma even without a cloth will muffle it nicely. Just putting some pressure on it and pressing the pouch up against it seems to keep it from sounding like typical...
Since I've had my ostomy I've only been to the gym a handful of times, but when I have gone I just end up showering at home. Does your gym have any private shower stalls?...
Love 'em. The Union Jack one especially....
I'm sure you're out there, I just wanted to ask a few questions. I had a subtotal colectomy with an ileostomy this last July due to my battle with Crohn's and was originally hoping to have a reversal...
Also wanted to say thanks for the info. I'm going to give these a try since I haven't been too thrilled with my convatec products. I'm really anxious to get back to a more active lifestyle, but I've...
I find the scope part rather relaxing thanks to the fantastic drugs they put you on....
I had a similar experience a few weeks after my surgery after eating a ton of red jello. I was almost positive I was dying or something, but then I remembered my WOCN telling me that eating beets...
I use the same system as NASCARon and I love it. Right after the surgery they gave me some Hollister bags, but I could not get a good seal going for more than a day. I think the key to success is the...
I would refer to that as a "dual sneeze"...
Hi everyone, I've had my ileostomy for about 2 months now and I'm starting to notice some darker red spots that kind of look like ulcers on my stoma. I'm worried that they might be the appearance of...
I'm also about 2 months out of surgery with a temp ileostomy and I also had problems with my bag wanting to come off all the time. I'd have to say that using an ileostomy belt is the best thing I've...
Thanks for the response. I actually realized that it was probably from my diet, the night before this happened I had some fairly greasy teriyaki chicken and noodles, followed up by a chimchanga for...
I forgot to add that I feel about 100 times better after having the surgery. Having to deal with an ileostomy is a little inconvenient, but is well worth it considering how much healthier I feel now....
I honestly don't notice any difference. Of course your abdomen will be really sore for a few weeks after the surgery, but now that I'm on week six I feel relatively normal even though I'm missing 80%...
I just recently (6 weeks ago) had surgery to have 80% of my colon removed along with an ileostomy. So far I haven't had any major complications or trouble. My question is: does it matter if my stool...
Good to hear from all of you, thanks. I feel a lot more confident about that 3rd infusion now :)...
I just had my second infusion of remicade 2 days ago and I have felt some relief from the pain in my abdomen, but I'm still feeling bloated and having trouble passing gas, and I have bloody liquid...
I was able to find some Reishi mushroom pills at my local grocery store. It doesn't look like its an extract, but rather just powdered Reishi mushrooms in capsule form. I'm going to try the...
I did have a CT scan about 2 weeks ago and there were no signs of an abscess. Would the CT have shown a fistula if there is one present?...
I'm going to try and locate some Reishi extract in pill form today. Any results for you yet Kasper?...
I was just about to post a topic with this same question. I've been thinking about trying a probiotic to see if it helps for awhile now, but I don't know much about them. I'm currently taking a...
Valerie: My chills usually come after a particularly rough visit to the bathroom. Vin: Interesting that you say that. When I was getting fevers for a month straight they would always start in the...
Thanks for all of the responses. I do get the chills during the day and then sometimes at night as I'm going to bed and then I'll wake up covered in sweat. Its comforting to know that I'm not alone....
Hi everyone, I've been occasionally browsing this forum for a few days now and I just decided to make an account. Just some quick background on myself: I'm a 25 year old male, and I was diagnosed...