Thank you! I already found it and love it!...
We are going to Jscksonville, Fl...
Thank you for the information! We are going to the Mayo Clinic the end of June and should know more....
Thank you!!...
I am desperately seeking anyone who has been diagnosed with PBC. My husband has been recently diagnosed and is in stage 3....
I'm looking for anyone who has been or has had family diagnosed with PBC. My husband has just been diagnosed with it and has apparently had it for years. He is in stage 3. We really need to find...
Thanks for the advice. Before my surgery I was up to eight glasses of Miralax water or juice a day for months, never worked. Maybe it will this time! My surgeons office just called and are going to...
Hi everyone! Sorry it has been forever since I posted. I have been on a few times and tried to read up on the postings. THere have been too many to keep up with!! My husband's grandmother (93 yrs....
Gosh Lizzie, I just get so frustrated when I read your posts. I feel like these doctors think we all have some sort of mental problem. What is this junk about being afraid to poop? Whoever even heard...
Rosemary, Thanks for the information. I have already had the celiac tests and nothing showed up. It could be a wheat allergy however. I shouldn't have eaten the cheese. I did finally go overnight...
I have been so busy with things that I havn't been able to catch up on all of the posts. I am having alot of problems. If all of you can remember, for two years before my surgery I could not digest...
Jen - I am so sorry I have not been able to get on the computer in a while. I am so sorry you had to go back in. Was it because of a leak? I hope you have a good Thanksgiving at home relaxing!!...
Hi everyone! I have not been able to get online lately, been on vacation in the Smoky Mtn. SO much has happened since I have been gone. Jen, My bill for my total colectomy and an emergency surgery...
Doug, Tell Jen that we are all praying for her and wishing her well and most of us know exactly what she feels like right now. I found this forum only two weeks before my surgery three months ago. My...
Hi everyone, I posted two days ago and apparently it did not go through. I hate that! I have been extremely busy and our internet tower was struck by lightning and I havn't posted in a while. It took...
Janie, I feel such relief just knowing someone feels the same way I do. That is exactly what is going on with me! I drank prune juice last night and finally had diarrhea once!! I felt better...
Jenise, My doctor said that eventually I would go about 3 times a day. But that is unfortuanately not happening. I drank prune juice last night and went one good time finally! I am going to drink...
Lizzie, I am continually thinking and praying for you!! I know tomorrow is such a big day for you, in more ways than one. I am praying for a speedy recovery for you sweetie. You have been such an...
Hodaya, my doctor told me that at 6 wks. I could lift 10-15 lbs. However, I knew that I couldn't. I may be completely different than you, I am still very weak and have trouble lifting 8 lbs. and I am...
Hi everyone! I only have a few minutes, so I wanted to go over some problems I am having. I am having every couple of days and only for an hour, sometimes less, at a time, this horrible pressure...
Pitz, Why did you have to have the bag? I hope you can have your reversal. Let us know how everything progresses. Mary, The problem with the diet is this. For two years before surgery my stomach...
Mary, My goodness, I am worried about you. What a terrible time you had, I can't imagine an open wound for even four days, but for four months!Please let us know as soon as possible what happens this...
Janie, I am experiencing the same thing these last few days. I am not really feeling anything moving. Tonight I took my first dose of Miralax, which was the first thing to make me go since surgery. I...
Hello everyone! I hate to hear that so many of you are having trouble. Hodaya, I am especially concerned for you. Do you think they made the connection site too narrow. I have heard of this. I am...
Hodaya, My goodness, what a terrible situation you were in! I feel like I can relate because it was horrible for me in the hospital as well (16 days). I had the ileus and ended up having a second...
Hodaya- I am soooo happy you are going home tomorrow! About time!! I hope someone will be staying with you because you will need alot of rest and help for the first couple of weeks. We all really...
Jen, My surgery was July 8th. I had a suspected leak at the sight of the anastamosis and had to be rushed into emer. surgery on the nite of the 13th. My bowels would not wake up and I had an NG tube,...
Hi Everyone! Sorry I havn't posted in a while. I have been reading just have not had time to post. Hodaya- It is so good to hear from you!!!! I am so sorry about the infection, did they put you to...
Thanks Judy for the info. I had to have an NG tube for that reason during the emergency surgery because of a suspected leak. I wish they would have given it to me during the first surgery. It seems...
Tracey, That may be why I had the NG tube so long. I couldn't eat for 14 days and ended up having the TPN through the pic line. Miserable nausea. But six weeks later, it was worth every minute of...
Marissa Did you have colonic inertia? I know you had surgery four weeks before me, we have talked about that. I am six weeks post-op and doing fabulous!! What were your symptoms of crohns? I always...
I havn't had time to post in the past few days. Could someone please update me on Hodaya? What happened? I am so worried about her. Tracey, I am so sorry to hear about the kids. I will remember your...
Hodaya, Thought about you alot today. I am praying that you are doing well tonight and that tomorrow will be an even better day than yesterday! Keep hanging in there. It was worth it even if it...
Marissa, Gosh girl! I am worried about you. I don't know what the symptoms are, but in the hospital they took me back into emergency surgery for a suspected leak at the site. My stomach was so huge,...
Hodaya, I am praying for you. I know it will be awhile before you are able to post. Take it easy. It will be hard at first and I am six weeks out and I am so much better it is unreal!!! Pretty much I...
Hi to everyone! I am back home now (long trip to see the doctor). I am doing much better, still very tired. I had a small accident on the way home. We were in the car and traffic was thick. The urge...
Judy - We will definitely be praying for Sean. We have a next door neighbor (Joshua) who is 20 that has CF and is in dietary failure at this time. He is great friends with my two sons (17 and 15) and...
Marisa - I am like the others, I think your doctor should have told you what this visit was about. Are you married, I know I would want my husband or a friend with me. Let us know asap! I am four...
Lizzie - So happy to hear your good news! Why is there always someone on the other end of the phone that just has to be unconcerned!! Just let it roll off of your back. Your just going through her to...
Guess what everyone? I am much better!!!! I went 15 hours with no pain meds!!! I also got up this morning and took my first real bath (not a shower!!) and then walked a half of a mile. I am finally...
Hi everyone. I am feeling better tonight. I am only taking pain meds every 6-7 hours which is much better than yesterday. I have been out of the bed and on the couch most of the day which is an...
Tracy, Thanks alot for the walking info. I was walking so good until I got so sick like this two days ago. I am going to walk as soon as I get done with this post. I do have pelvic floor dysfunction...
Hi everyone! I was too sick to even sit up for the rest of the day yesterday and all night. I have refused to go to the ER. We live so far out, I hate to go and there be nothing wrong but gas....
Janie and Judy- Yes, I had a total colectomy because of colonic inertia. I have also been diagnosed with pelvic floor dysfunction and a small rectocele. I ate several prunes and finally went! I have...
Thanks Tinker! I havn't caught up on all of the threads lately because of my surgery, so I don't know what your last surgery was. Are they now wanting to remove your colon or have you already had...
Lizzie or ANYONE I have just contacted the doctor because I am trouble going and have terrible back and chest pain (could be gas). The nurse is contacting the doctor but thinks I need to get to the...
Judy - The thought of a tube coming out of my back for eight weeks is horrible. Did they suture it in? I am having formed Pencil width stools already three weeks after surgery. Last night my back...
Tinker - I hope they will not want to fix the rectocele at this moment because I can't stand the idea of going back into surgery. I want to get my energy back. I clean houses to make extra money....
conmarjo- I cannot believe your experience. I just had the surgery and things went bad for me also, but not that bad. I hate to say it but it makes you feel better when you realize your situation...
Tinkerbell and Hodaya- thank you for the encouragement. I was so weak after the surgery that I couldn't get my legs to function. I think the worst part was the suspected leak at the anastamosis site....