Allie, WOW! THAT is the kind of doctor that is so very rare to find. I have fought so hard, not just with my GI issues, but my other chronic health stuff: "I am NOT a number on a page! I am NOT a...
Yes, that was, by FAR, the worst part of the entire ordeal. And actually, I can't complain much if that was as bad as I had to deal with! I had a sense that my day nurse did not appreciate my medical...
Hi Pamela, Welcome~! I'm fairly new here, too, but I've been SOOOO glad to find the kind, caring, experienced people here. There's lots of info, lots of support, and lots of 'real life' experience....
I'm SO glad to hear that Lizzie is doing better. Slow and steady! Thanks for the updates, Allie. :smile:...
Well, the aseptic meningitis sucks! Gah!! I do my IG doses subcutaneously, once a week at home. My issue is def an immune disease, but I do know that we (those with my immuno disease) tend to have...
I might have missed something obvious, Christine, but do you still have a uterus? US would show if you might have pyometra, an infection within the uterus. If you've had a hysto, then a fistula seems...
Peltzier, I was reading earlier posts from the Colectomy thread. You mentioned (in July?) that you were going in for immunoglobulin therapy. I also use an IG product, and wondered if you might care...
Prayers for tomorrow's surgery, Lizzie! I hope you can update us with good news, Allie. Thanks for all the ideas to try for hydration. Val, I did have one problem with one of my Fibro meds because it...
Thank you esoR and Hodaya, Yes, life is MUCH better. I don't really mind the frequency, as there is not pain involved. I've got a mental block about taking Immodium or Lomotil, I guess because I'm...
Hodaya, I have been released to try whatever foods I might want to try. So far, things are tending to run thru me very fast, within 60 min of eating. Surprisingly, I do ok with most meats. But fiber,...
Hi all, Apparently I've been here before, because I do have a log-in! I've been searching for a place to learn and share experiences after colectomy with ileorectal anastomosis. Guess this is the...
I'm still astounded to read what so many of you have been through. Not "JUST" the colectomy adventures, but the other tragedies that you have survived. I am humbled. I am extremely frustrated today....
My GI advised me to take it, and said that the mix of probiotics was the best available. I was able to find capsules, but they can be difficult to locate. I found them on-line, but I don't remember...
Rosemary, I'm not a doctor but have spent a LOT of time in hot and humid places (lived and worked in the Florida Keys). It is possible that you were not only dehydrated, but also suffering from heat...
Oh my, Marisa, as if you don't have enough to deal with! You are definitely in my prayers, for strength, for healing and for peace....
Lizzie, and all you other wonderful people, Thank you. For your time, and support. I'll try to be a 'giver' of support, not just a 'taker', especially as I get to know more about each of you. :)...
I'm SO sorry to hear of everyone's difficulties and complications. I know that I need to understand the positive, negative and unexpected outcomes of TC. But I'm really getting the heebie-jeebies...
Well, nothing is going to happen fast. Surgeon is away all next week. Met with both doctors, first my GI. Explained why I wanted to re-do the Sitz test, and he was really fine with it. We discussed...
Hi Jenise, That is exactly what I am afraid of, although I do trust my drs. No colonoscopy indicated the redundant sigmoid. The first one I had I was awake, because the Versed/Fentanyl was not...
Hi Leslie, Me again. :smilewinkgrin: I am re-doing the Sitz marker test. My GI understands that I need confirmation, and that this is for MY peace of mind. Monday will be the last Xray. And it will...
Peltzier, I am astounded by your courage to be your own advocate. What an incredible journey you've had, and thank you for sharing it here. I am going to re-do the Sitz marker test this week. Last...
For those who have continuing problems (hopefully less severe!) is it mostly those with pelvic floor dysmotility? And is there a 'conservative' step between keeping the colon, and removing it ALL?...
Thanks for your replies. I know I will learn a lot here just reading of everyone's varied experiences. Janie, I do take Miralax 2x daily, and when I get realllly stuffed, I resort to Dulcolax, but I...
Hi, I'm new here and have been reading this thread. I'm due to have a 'sub-total colectomy' and am quite frightened about it. History: over 10 years of chronic constipation, initially diagnosed as...
Thanks so much for sharing your experiences. I've been reading the "Total Colectomy" thread, and will spend some more time to gather information. I do still have questions! :smile: I think I'm a good...
Hi, I'm new here, and hope I can find some much-needed information. I am a 45 year old female, and live an active life. I've had problems with constipation for years, it was always considered IBS-C....