I have just been diagnosed with Ulcerative Colitis after 16 months of Hell, I had a iliostomi, when my large bowel was damaged during surgery to remove a very large Cancer tumour and after it was...
Well when I look back at my posts to you I seem to have a lot of bad nights, but i asked my doctor when I went in if there was anything in the pelvis or tummy area as he knows about my bowel and he...
Hello everyone, was in a lot of pain last night and had a few accidents everywhere, how embarrising, I have been like this for 3 days and I am very tired, I was going to go to the hospital but I put...
Subzeromambo thank you have fun!...
And what is more amazing is I said to my doctor 'but we didn't expect the chemo to do anything' and He said, with a big smile and look of surprise "I KNOW!" I must be blessed I hope they are right, I...
I have some interesting results from my cat-scan - The doctor said " Perhaps your type of cancer is hard to read on cat-scan, but there is nothing solid in the now leftover sack, it appears to be...
Hi I am still being woken up though the night, I have started to use coloxal with senna, I have been taking it at night but I am trying to figure out how much to take and when, I had a very bad night...
My bowel seems to be a bit better, I am drinking sena tea and taking coloxal at night, one is a softener the other a stimulant,(both natural) I am trying to work out when I take these things so I am...
Hi everyone, well I am still here, thank you for all the information it is great, I will check it all out, yes it is a shame, but I will be asking for his qualifications to be treating a patient with...
Hi everyone, the doctor told me he thought I was constipated and the try to take maxicol, I did and it worked for that day, now I and back to where I was, I eat really well and the stoll is soft in...
Hi I have tried different foods and eating at different times and I am pretty sure it is normal to be, concerned in my circumstances,I am not depressed, just scared and worried and i really don't...
Dear Sarah, I will be seeing my oncologist tomorrow and I am going to let him know about the pain and the bowel problems, he is a liver specialist and will probably send me off to a bowel person,...
Sarah, Thank you for answering so fast, I have been mentioning it to my doctor, but they don't seem to hear me, maybe I will have to be louder, I have been waiting and hoping it will fix itself...
Hello I hope your all feel well today, my name is Maggie and I had an ileostomy reversal in January 2012 and I have had nothing but problems with my bowel ever since, most nights I am up going to the...
Hello how are you ? I have had a complete hysterectomy and have had no problems reaching orgasm, I believe female orgasm has nothing to do with her ovaries, she has glands on her kidneys that are...
Hi Carbamazepine is good for nerve pain, I have suffered with Trigeminal neuralgia for 20 years and Carbamazepine or Tegritol, is the only thing that has any effect on the pain, I am so sorry to hear...
Hi when I was going through my radiation treatment, the nutritionist told me to drink Gateraid or staminade as they have all the salts in them, if you are concerned about hydration, perhaps you...
Hi Thank you everyone, it is day 5 since the surgery and I came home yesterday, it is an interesting experience, I am grateful for taking note of and doing my pelvic floor exercises, but I am feeling...
Hi I am excitted I will be gpoing into hospital tomorrow to have my Ileostomy closed, thank you for all your encouragement and good advice, please wish me good luck....
Hi madigascar, I have bought some maternity belly wraps from eBay and cut a + on the left hand side, put it on inside out like a skirt, then lift the end up and over the bag, it works well. Maggie...
Hi Jackie I am a little confused, do you mean your stoma only works once every 2 days ? I am unsure about the mucus from your rectum, although I had a test to see if my bowel was open and healed, and...
madigascar i agree the white gluey stuff is probably off the seal, I use Welland Adhesive remover wipes to get it all off and then, Welland WBF Skin Barrier wipe before i put a new wafer on, it makes...
Hi I had the same problem, but it was the night time support I really needed, I tend to move a lot and I don't like to wear underware to bed, so I bought a maternity belly band from eBay and turned...
Hi can anyone help, I have a loop ileostomy, which is to be reversed very soon so I went for the test to make sure the large bowel is not leaking and Oh my goodness the pain, he put a tube in my...
Hi I am finish with the radiation treatments now and all the burns have healed over, I am feeling more comfortable, tomorrow i have to go and have a text to check the integrity of my lower bowel, and...
Hi I have a couple of questions, can anyone tell me what the xray is called that you have to make sure your bowel is not leaking (before an ileostomy reversal) and what to expect when i go in for it,...
Hi jamiee I hear ya, and Sara14 I agree, I smoked for years and then gave up for about 20 years, 3 years before i got ill I started again, mainly due to stress of a marriage break up, then I gave up...
@Smackie, I believe you can buy a belt you can wear with a vertical bag, called "Sting Ray" this might be better for sleeping. What i did was buy some maternity belly belts for from ebay for $20 and...
I don't like the weight of the bag even a little either, so I made a support out of the bottom of a cotton/spandex singlet, I had in my draw (bonds ladies) I cut the top off it just below the bust...
Hi I have been trying to find something comfortable in with a convex as i have a 1inch stoma that is about 19mm and it is in a depressing in my tummy, I was using Coloplast Altrena (14243) but i...
Hi Aheartlikethis 131 I know the doctors said it is not your heart, but did they tell you or give you any advice on what it could be ? or is there a free clinic you could go to to get some help ?...
Thank you all so much, it is wonderful of you all to try to help me, I appreciate it very much....
Thank you all very much, I am just doing my treatments and trying not to think about it, one day though I will have to look at my life and wonder if it is all i want for myself for now and the...
Hi thanks for all your comment, I sew and i have have many nice lace belts, garters, mini skirts and bustiers, it is really not about anything I can do, it is out of my control, I can not force the...
Thanks Subzeromambo, I will try it, what a good idea, I sent away to try some products last night they should arrive soon there is a wafer that is shaped like a peanut or an 8 that I think might...
Thank you summerstorm and stripey, I have asked him he says he does not know, why I just don't do it for him anymore, I know it is there but when I try to go to basics as you put it, it goes to...
Thanks privey and Dan - I have a open sore around my stoma and a radiation burn on my tummy, with very sore soft skin just where the end of the base plate sits, I will try Friars Balsam Compound...
Hi Sana, I am glad it is better, I hope you have no more problems, personally I have never chewed so much in my life and I am not sure my teeth are going to hold out at all as I don't have many left...
Hi I don't know I have not had the surgery, I have a ileostomy and have only ever had one blockage and felt sick and was sick, sorry I wish I could help, good luck....
Hi I am RarelySeen and joined the site after reading some of the helpful suggestions, thank you, because of the nature or rareness of the tumor I had and the added ileostomy, I am finding it very...