I'll take your advice NascarRon and esoR!. I'm almost 12 years in and though I don't leak that often, I still do some times... I've gotten back into running and find it difficult to keep it on after...
I have a 32 oz. water bottle that I try to fill up at least twice a day - Normally about 96 oz. of water a day and I can definitely tell when I don't drink enough. However, I put a Propel packet into...
I had my rectum removed in 2001. I enjoy sex - didn't before because it was painful - I run, don't notice anything other than my quality of life is AWESOME! Life is soooooo much better now than...
Your Ostomy bag should not limit you EVER! I have had my bag for 10 years now - I'm only 33 and no one has any idea I have the bag unless I tell them. additionally, when I tell them that I've had 38...
I had very similar issues as you... Had 13 surgeries while pregnant including loop ileostomy. 8 weeks after my son was born I had to have my entire colon removed due to severe peri-anal abscesses and...
Okay... so Its probably been a year since I've posted on here. Last time I did, I asked about swimming as it was right before my 10 year anniversary and we were going to Hawaii! The suggestion at the...
I have had my ostomy for 9 years and have basically kept the same style supplies, inlcuding the paste. As I read on this forum, it appears, I may be in the minority. Do these Eakin seals function the...
My silver lining is, now that I've had a complete colectomy, I'll never EVER have to drink that nasty colon prep stuff for a colonoscopy!!!...
Benedryl helps my itchiness. Perhaps I should look at why it itches instead of attacking the symptoms but benedryl almost always helps me! good luck...
I had to cut the seal so I could fit it around the flange. And - for the record - I am the biggest dork ever. As I am typing this, I just realized that the white paper part of the sure seal peels...
So I took everyone - I mean EVERYONE's advice - and ordered my Sure Seals! Got the shipment today! Haven't tried them yet but I sure think that I could have saved all but 47 cents on shipping if they...
Thanks Everyone - guess I've been missing the boat having not tried Sure Seals to date. I guess I felt if its not broke don't fix it, but I am not taking advantage of newer, potentially better...
I nearly never post on here... busy life, but I've got to figure out how to solve a problem and you all are the ONLY ones that can help! I've had my ostomy for over 9 years and at the beginning, I...
I actually had my loop illeostomy done when I was 17 weeks pregnant! I was pretty sick and they were worried I wouldn't be able to finish the pregnancy. I didn't notice any issues with my stoma...
As for itchiness.... I've found that a benedryl right before bed is very helpful... I used to take it because the pain meds caused me to itch a lot but after I got off those, I found they are still...
Hey, I posted the same issue on the Crohn's site but no one that responded had a bag or knew any cops with a bag so was wondering if any of you know any cops that have an ostomy? I'm looking into law...
T Jane, My surgery was in the beginning of January 2001 and by May the wound had pretty much plateaued, (I don't have exact measurements). That is when we first tried the "wound vac" Yep it is what...
TJane I've been watching for you to update us. I'm glad to know you are doing well. You sound like you are going through just about exactly what I went through as far as the pain and packing the...
Hi TJane,! I have been so busy at work and we are still in the dark ages at home and don't have a computer yet. I see you posted a month ago. Man life has been crazy.. anyway, no, unfortunately I...
This is a nice change. I was diagnosed with Crohn's disease 6 and a half years ago. After the initial flare I was fine for two years. Then I got pregnant and my disease went out of control. Had to...
Hopeso, Apparently my wound was not my old anal opening. Mine had been a fistula tract. They said they couldn't just sew it shut because then pockets of puss would form and get horribly infected....
I had a chronic wound for 3+ years in my perianal area after they removed the colon, anus and rectum. I guess it was an old fistula tract that would not heal. I tried the vacuum twice. That was...
I had my entire colon, rectum and anus removed so no exit strategy left. I've been in remission since then and though I sometimes wonder if they could have done something different I know that is...
DePiro, If I notice a significant amount of itching and I don't plan on going anywhere, I'll take a benedryl. That always helps but can cause drowsiness. I take it a few times a week so I don't...
I just found this site, I have been a member of the Crohn's site for a few months and this week at work has been slow so I've been "looking around" I have had crohn's since 1998 (I'd just turned 21)....