Thank you, makes me feel better😊...
Had 25 cm removed and had my original stoma relocated. My question is has anyone else had this done and if so what did your doctor do about your old stoma hole? Mine is still open and leaking but...
I have Crohn's disease which ended up in a total proctocolectomy six years ago . I am currently in a flare again and I believe I might have a fistula connected to my bladder. Has anybody experienced...
Hello, thank you for your replies. I've been on every drug in the book it feels like, last one was entyvio and nothing happened. I had a total proctocolectomy in 2010 and am currently in my first...
Hello, about 6 months ago I found out I was in a flare up after having an ileostomy from Crohn's disease 6 years ago. I am currently feeling a lot more pain than usual, it burns really bad and I feel...
Really, that's so weird considering flare ups hurt. Thank you for responding....
I was wondering if anyone has issues with their doctor not prescribing pain medicine during a Crohn's flare ? I have been pain-free medicine free for over six years and now that I have a flair again...
Can anyone tell me what kinds of symptoms they've experienced with a flare up while having an ileostomy?...
Hello! Wondering if anyone has ever had pain under the skin where the wafer sits? Started in August and is getting a little worst. At first I thought my skin was just irritated but every time I...
Hello, I am 29 weeks pregnant with an ileostomy. For the past month around my stoma has been painful and kinda burning sensation. Anyone else experience this during pregnancy?...
What are the symptoms of the stomach virus with an ileostomy? My output has been watery, cloudy and yellow and I threw up twice....
Thank you everyone for your replies. I have just been having the hardest time with my weight since I am able to eat without any pain. I love it and I am so blessed to finally feel this way but my...
Hi everyone, I feel funny asking this question but are we able to take diet pills to help us lose weight? I've gained a ridiculous amount of weight since my ileostomy in July of 2010 and feel huge...
I was at mayo in Sept 2009 because they told me that I didn't need to have a bag but less than 4 months after my resection my entire colon became diseased and in June 2010 got my colon and rectum...
Is it me or do all doctors assume you are a drug addict when you ask for something to control PAIN! I know there is a major issue with abuse and meds but I am truly experiencing bouts of pain so to...
Before my total proctocolectomy I had a resection that was called an ileocecetomy which involved taking the section out where your large and small intestine meet. I don't think I've ever been disease...
Love sure seals!! Never had a problem with them!...
Thanks everyone for your comments and prayers! I am a little bummed about my flare and I have taken everything from Remicade to Humira to 6mp to experimental drugs and nothing helped that is why I...
Hi it's been about a year since my ileostomy surgery and I just found out that I have thickening in my intestines (Crohn's ) . I am back on 30 mg of prednisone and getting down and out about my...
I was wondering if anyone knows if doctors prescribe pain killers for anxiety and stress. I have crohns disease in remission now but I have left over vicodin from when I was hospitalized and if i...
Try going to ostomysecrets.com I use the wraps when my husband and I you know what....
Hello, I have been having the worst time healing the skins around my stoma. I try to make sure I fit the wafer on correctly and also use an eakin seal. I powder the open wounds up and everything and...
I have Crohns and about 4 months ago got my entire colon and rectum out and boy do I feel like a new person. I admit I was scared but I was also desperate to get rid of the pain. I am now feeling...
I totally understand your fear I just had my colon and rectum removed in June and I felt the same way. I just knew I needed to get it over with because I was sick of Crohn's running my life. Its is...
Sorry about the fatigue, I have Crohn's and joint pains, fatigue, headaches, belly pain and constant loose stools used to be my life until i had a total proctocolectomy back in June 2010. I have non...
Thanks Dan....I'm gonna try it....
Thank you so much....the directions were really confusing me. Do you put the vent on the front top of the bag or the back next to where my filter is? Stupid question I know sorry....
I am confused on how to use the EZ Vents can someone give me an idea...
Wow I had no idea that the high out put of liquid could mean a possible blockage. I'm kinda scared now. I think I'm gonna try the ginger ale like you said. Thanks for your help....
Thank you for the advice....I really need it right now. I just started eating salad again last week and I wonder if thats the problem. I am a little over 3 months post op....
The past two days the middle of my stomach has felt achy and I've been feeling pressure in the area. My output has been mostly watery and lots of it. Has anyone experienced this? Also I feel a little...
Thank you so much. That's cool that your in Australia. I'm in Kansas. Crazy eh. Anyway I will check it out....
I was told that for the rest of my life I am not to eat mushrooms and popcorn. I think everything else is fair game. My doc said that mushrooms act like a sponge and expand which could cause a...
Oh ok that makes more sense now. Thanks....
Congrats! I am 3 months post total proctocolectomy surgery with ileostomy and feel excellent too. I eat and eat and eat and eat with no issues. My only problem now is weight gain and I don't care. I...
Looking to find Coloplast Alterna products can anyone help?...
What is coloplast alterna?...
Looked on the website and couldn't find coloplast alterna? just sensura. I will keep checking....
Does anyone know what the sticker tabs are for? I get them every time I purchase my bags but the instructions don't tell me what the stickers are for. Anyone know?...
Just had my colon and rectum removed 3 months ago and feeling like a million bucks. Battled Crohns symptoms for too long and I guess you could say I gave up the fight too. It was a fight I was not...
Every nite I have to wake up and empty my bag because it is filled so tight with gas and stool. It has exploded everywhere on me before but now I have been getting on one knee and placing the bag...
I am gaining all kinds of weight back too. It's kind of depressing but I am happy to be feeling amazing. It's just so much fun and enjoyable to eat now. I hope I am able to control myself though....
I have gained about 10lbs since my surgery two months ago but personally I don't care because now I am actually able to enjoy my food. I used to be in so much pain and be on the potty all day before...
What are sureseals and do they come in a specific brand?...
It's been a month since my surgery and I have been almost eating everything. It was hard to get to this point though....
For some reason my wafer wants to come off every time I shower. I find myself using the ostomy tape stuff all the time. My nurse says that taking a shower and getting my 2 piece system wet is ok but...
My bum is still tender after a month post op but I was able to sit a couple days after the surgery. My doctor said it will take at least 4 months to fully recover that area....
He everyone, just wanted to let ya know that I am feeling much better. I can tell a big difference without my colon and it's great. They only bad thing is my butt hurts so bad and is very sensitive....
Hi Juls, I'm 32 years old soon to be 33. THank you for your comments they really help me get through this transition in my life. I am doing well now, just worried that my incision may be infected. A...
My output is always thick. I haven't started eating fruit yet or really anything that is not pasta, crackers, rice, or chicken. I am worried about when I have to go back to work and don't have a...