December 2010, I had an ileo-rectal anastimosis. No j-pouch, as my surgeon thought it was Crohns and not UC. It was terrible, with 20-30 bms/day. Almost worse than my disease. I took maximum doses of...
They are treated very similarly, so unless you need surgery (like I just experienced), it won't really make a big difference. I was diagnosed UC (classic symptoms and presentation). Just had surgery...
Hi everyone, I am new to Chrons. Dx UC 2002, had colon removed a few months ago, and they decided that it is really Chrons, not ulcerative colitis. My colon looked nearly perfect, except where it...
I forgot to mention that I'm still using a wound vac, which is working well. My ostomy site is about an inch deep now, which is great. My other wound is also progressing, but not as quickly. The...
Another update: I had the second surgery, where they did the take down. Part of the reason I was so concerned about diagnosis, is that I still have a rectum. If it is UC, they would remove that too....
Hi, To catch you up to speed since I am new to the Ostomy World: I had ulcerative colitis diagnosed in 2002, did all the meds, and just had my colon removed about a month ago. When the surgeon...
Thanks everyone for the advice! I met the surgeon, and he is great. I actually need 3 surgeries. Sad. Oh well. Got the first surgery scheduled in just a few weeks. Flare is starting up again, coming...
I am on Prednisone. I am currently tapering, at 20/day. I hope to be off of it by the time for surgery, but it will take about 6 more weeks til I'm done with it. I had to be on it for about 2 months...
Hi everyone, I am new here. I've had ulcerative colitis for almost 9 years, and have gone through ALL of the meds. I am ready for surgery now, and will probably get an ostomy and a pouch in 2...
Hi everyone. I haven't been around for quite some time. Started Remicade a year ago and have thankfully been in remission since the end of '08, about 6 months now. Remission isn't "official" until...
I just glanced down the list here as I was thinking of posting, and you already posted what I was going to ask/say!!! I am in just about the same spot as you are right now. I am starting my first...
First... My insurance will be changing, and I'll be without insurance for the month of June. So, I am waiting until July to start Remicade. I am currently taking meds in the meantime, all that I can...
Talked to GI, and it's official! I'm starting Remicade. I am stopping the Asacol, as it may be the culprit as to why things suddenly got worse. Asacol or not, things weren't getting any better. If...
Q: I haven't actually begun the Canasa yet. My GI wanted to determine what part of Rowasa I was allergic to. Because I challenged Asacol, Canasa might be a choice now. But, the headache and other...
My husband is a nurse, and it took caring for a patient with UC for him to "get it." Well, mostly. It really hurts though, when they don't. Sometimes I wonder if it is worse for us or them. When I...
After the last colonoscopy a couple of weeks ago, my GI said that he thought that I should start thinking about Remicade. In the meantime I had another Prometheus test to see if he could up my...
I had an interesting thing happen the other day. I was at the hospital getting blood drawn for a prometheus test (doc wants to up the azathioprine). The woman drawing the blood looked down at my...
I saw a hematologist last year, and had an iv iron infusion. I had been anemic for more than 15 years. Since then, no anemia. I would strongly recommend going....
Hi, I'm new to this forum. I got sick with the same cold that my entire family got the first week of January. They all got better. I keep going back to my primary care doctor. I had a sinus infection...
Hi, I'm new to this board. I was diagnosed with asthma about a year ago. At that time, my doctor (primary care) gave me Advair and Albuterol. I was only to take the Advair for 2 wks (which I did)....
Sorry, I just can't be happy about the weight gain. I am obese. I an 5'4" and weigh just over 200 lbs. I keep gaining and gaining, and I am too exhausted to exercise. I am happy if the laundry and...
roadtrip, Tell me more about the aloe vera. I have a friend who swears by the juice for anything. I thought that you couldn't take the gel internally. Thanks, Dixie...
Just curious how many of us are out there who gain weight with IBS D??? I have averaged 6 lbs a year, no matter what I eat or don't. Any suggestions for weight loss? One of my docs suggested South...
I second what pb4 said. Pencil poop is from inflammation as far as I know. Over all, sounds like we have the same poo. Changes all the time. Dixie...
I forgot to add that I cheer when it is normal!!!!! Dixie...
I also have D first thing in the morning. In fact, I go and think that I am done. Before I am out of my bedroom, I am back in the bathroom 2 more times. It doesn't matter how long I sit there, it...
I don't take probiotics. I have tried them in the past without a noticeable difference. IBS and IBD are different. I just can't seem to tell them apart, because I bleed no matter what. Fiber is very...
Just wondering if anyone out there has this same lovely combo of diseases? I was diagnosed with UC a couple of years ago, but my GI just informed me that I also have irritable bowel. SO... he says...