In the weeks leading up to my surgery, I virtually retreated into myself trying to cope with the idea of such a surgery. After the surgery, I cried every day for month. All of that is completely...
Oh absolutely it's very terrifying in the lead up. And it doesn't help when people are ringing you up at work(!) saying things like that to you. But don't mind them, just focus on you and all the...
killcolitis , I've been on azathioprine since 1996 and it did get me eight years of remission before I flared again and after becoming steroid dependent, a permanent illeostomy was considered my...
I went out for dinner for my 1st proctocolectomy anniversary. I celebrated the hell out of that weekend, let me tell you. It'll be three years this coming January and I have to say that while I am...
I read about this on Twitter. As you say, it gets mentioned in some medical dramas but not really outside of that. It's not a 'sexy' disease by any stretch of the imagination so it'll be interesting...
Thanks everyone for the replies. I'm going to start with walking. I don't mean this to sound like excuses but at the moment, I'm enjoying being able to eat like everybody else to start on a diet...
I'd like to know when other people have decided to take up exercising or healthy dieting after their surgery. I had mine in January, things are going well, my surgical wounds are completely closed,...
Radox is a herbal bubble bath. It started off as salts you'd put in the bath to ease aches and pains and now there's a whole brand of shower gels and bath products. It's very relaxing and really does...
Isn't it amazing how all these things can help us in one way and mess us up so much in others. I ended up soaking my feet in Radox before I went to bed and it really helped with the fidgets. I was...
Hah Theresa, I hear you on the leg shaving bit. When I took off the anti-embolism stockings after wearing them for a few weeks, I nearly had a fit at the sight of my legs! My GP has given me sleeping...
I've been having trouble sleeping for the past three weeks. At first, I thought it was because of all the noise and what not on the ward but now that I'm home, my sleeping hasn't improved. I get...
Thanks everyone, especially for the advice. It's so good to have this place to talk to all of you. I'm doing my best to keep my attitude positive but some days are harder than others. I will admit...
Hi everyone, I had my surgery nearly a month ago now but I was only discharged from the hospital on Monday. There were a few post-op complications, namely when, a week after the surgery (I had my...
Actually, my mother's uncle, Frank, who ended up in a nursing home and because he was blind, would have all his possessions, which were few and far between at that stage of his life, in a pillow case...
flchurchlady, I'm glad to be able to say I have managed to hold onto my sense of humour. It wasn't easy but I decided I wasn't going to lose my "spirit" so to speak. I didn't want to become bitter...
Thanks everyone. Last year I began to suspect that surgery would be in my future so I wasn't completely shocked when the doctor suggested it. Now as it gets closer, the nerves are starting. I knew it...
Hello everyone, I checked but didn't find a newbie introduction thread so here I am. I've been lurking for a while now and reading everyone's very informative posts and I must say I really like the...