After the problems I was having with my stoma bleeding my surgeon decided it was time for me to have my reversal.He said he could move the stoma but there was no sense in it because he had left me...
Ashley, You mention Louisville, KY. That is where I had my colostomy done. Who is your Dr. Mine was Dr. Rodriguez, I really like him. I had really been thru alot when I was finally sent to him and he...
I am sorry I have not posted sooner. I did go to see my surgeon. He really didn't tell me to much. He just said that it can happen and that they can just keep stitching it up. He wants me to have it...
Thanks for your words of courage. I have an appointment tomorrow to see my surgeon. Till then I will just sit around and do as little as possible. I have had my colostomy since July 28, 2010. This is...
My question is, where do you get the friers and can you use it with sure seals....
On Saturday I started bleeding around the outer edge of my stoma. I was bleeding very badly. My husband took me to the ER and the doctor said I had someway hit or irritated an artery. The blood was...
Ok sorry about that. I have an colostomy my bad....
I have an ostomy. Almost 2 years (July 2010)....
I have a question. I need to lose weight and I have been looking on the internet and I am finding something that I have to wonder if we can do. First of all, know that I do know how to lose weight...
* Am I crazy or is it all in my head, but I will sometimes feel like I have to poo. It is so bad that I seriously have to go sit on the toliet to releave the filling. I sometime think it is all in...
I took some sinus pills the other night for a sinus headache. I woke up the next morning still yet with this terrible headache. I took some regular pain meds (Aleve). After going to work that morning...
Peroxide works for me. Just a capful in your bag every time you empty works great. I have not found that the smell has gotten better over time or maybe it is just what I eat. I have noticed that it...
I ditto what was just said. I don't know what I would have done had I not found this site. I found this site and learned so much. People on here have lived it. They know what they are talking about....
My surgeon is still talking about reversal. I go the 27th of April to have another colonoscopy. I really don't think that I want to do the reversal. My life with my new found friend is awesome. I...
Has anyone ordered sure seals recently? I just ordered some from Edgepark and was shocked at the price increase. I know they are well worth what we pay for them, but come on. It's like when they find...
That was a first for me for the 9 days. Right now I am going to aim for 7, I think I would like to just make it one week and just plan on changing everything out on Saturday. If I know I can get 9...
using sure seals, just started a few weeks ago. i am really afraid i am allergic to them, not sure yet. but i am happy with them so far, got 9 days from last appliance, not sure if the sure seal had...
There is no smell if you use peroxide everytime you empty. Greatest thing I have found so far. Just a capful in your pouch when you empty and your good to go. Sometimes I do admit I put just a little...
HAve you eve tried the adapt barrier rings from hollister. I use them instead of eakin seals and I like them much better. Also have you tried the sure seals? I have just recently gotten some. So far...
hvacchronie, Can I ask what surgery did he have and where in Kentucky he had his surgery, I had my ileostomy in Louisville, I hope he is doing ok and I do know that having someone there with you to...
I had my surgery July 28, 2010. I have drainage more often then I like. Sometimes several times a day. Does anyone still have the urge that feels like you need to have a bowel movement? I still do...
I am confused. I thought you put it over your wafer. Sounds like you are putting it under yours....
I received 2 sure seals samples in the mail in the past when I was still new to all this ostomy stuff. I did not have a good experience with them. I don't think it was the sure seals as to one of the...
I use peroxide. Very cheap and very effective. Just about a capful will do. Everytime you empty put it in your pouch. I get a quart size bottle for around $1.00 Good luck, let me know if it works....
how many of you wear marlen products and how do you like them. been thinking about getting some samples to check them out. would it be to my advantage any one think?...
My stoma is retracted as well, so what do you use if they don't make them convex?...
Is there a wafer that don't turtleneck your stoma? This drived me nuts. I switch between convatec and hollister. It comes up so far around my stoma that it I am afraid my stoma will start spewing...
I have a friend who has a colostomy. Since he got it he has lost his job and now has no insurance. He is having trouble getting any assistance. He says that if he gets a job that because of his...
does convetec sell the sure seals?...
sorry, i have not kept up with is thread, I change my appliance every 7 days. For the last 3 times i have changed it was on a satuday. I really think I could go longer but the part that hangs out...
Another solution for the oder is to use peroxide. It is cheap and you can buy it anywhere. Just about a capfill or so in your bag every time you empty it and it works great....
I am scheduled for a c-scope on the 21st. I went to the doctor a few weeks ago and he told me he wanted to do this to find out how my colon is. They do not have a deffinite diagnosis as to what is...
I don't know how you will come out but this has been one of my biggest fears. I love love love hard candies "butterscotch". I used to keep some at my desk at work all the time. I am scared to death...
I had some breaking out and itching on Wednesday when I changed. I used the Sween Cream and by Saturday it was looking great....
bearbear3, I only use half of the seal and I have no problems with it. I also wear the belt, I don't know if it helps or if it just gives me more confidence. I just know that since I started using it...
Have you tried the convex wafer. That is what I have to use because my stoma don't stick out very far. It helps to push the stoma out farther and it may help out with the dip you say you have around...
This is really wierd, I have been wondering the same thing. I have been having some issues lately and I am using the cream for it. I accually had some irritation and itching around my stoma. It...
Ron and bearbear3 I don't use a whole ring anymore, I cut mine in half and stretch, and pull, and make it the size I need it to be and pinch it back together and I touch it all over. That is what I...
Well, Maybe I spoke to soon. I have noticed today that I have little tiny white spots under my sure seal. Could this be a sign that I am allergic to it. They don't itch, but they look like they may...
I got stupid over the weekend, I decided to use one of the sample I had gotten from coloplast, but it was not convex. I thought it might be ok because my stoma sticks out sometimes about an inch or...
I use the adapt barrier rings and I am one of the ones that love them. I used the Eakin seal and like someone said it always stuck to my skin. Hard to clean off. The adapt rings do not do that to me....
OK I believe that the sure seal will work out fine for me. My question is, I order from a place called Byram. They do not carry sure seals. If I go thru some place else to get sure seals is this...
I had something similar to what you are discribing, but mine ended up much worse. I was over 2 weeks post op from a colon resection and my wound started seeping and then started smelling like poo. My...
Just used my first sure seal last night. So far so good. I will keep you posted. These things remind me of the material they put over and IV in the hospital. My daughter used to use them over her...
The only time I have thick output is when I don't drink enough. If I don't drink alot of fluids then I too get the stinging feeling when my stoma is active, especially if I have eaten alot of carbs....
I am sorry for all that you have gone thru. I have an ileostomy and I can say from that view point I know where you are coming from. I got mine on July 28th. It was the worst thing I could think of....
Which brand of wafer and pouch do you use....
I am getting used to it. I think I have another problem. I think I am allergic to the collar around the wafer. My skin is red and itchy. I never did get this way with Hollister. Any ideas? Another...
Hi Andrew I am not 20 by no means but I do know what you are going thru. Noone knows what we are going thru except those of us on here. I have a temp ileostomy, don't know just yet when I will have...
Here is a address of a site you can go to to get the prices of supplies. It has all the different brands and all the accesories http://sgvmedical.com/catalog.php?cat=67...