I have had the same problem before. Not saying that you are experiencing the same thing as I am. But I found that I was cutting my wafers to large. In doing so it would expose the skin around my...
Everyone with an Ostomy bag know that they can smell from time to time. I am wondering what everyone uses or does for odor control. I my self try cleaning the bag out every time I empty it (when at...
I have to agree with finallyfree. Also they can treat everyone differently. I have bad stomach cramps when I take them and not so much loose output. But i am sure that everything will be fine....
I will replace my wafer every 3 days for the most part. Some times i will try and get 4 days out of them. My bag I change every 2 days. And you are right, I have found that water tends to take life...
I empty my bag seemingly a lot as well. But I like my bag to be compliantly empty as much as possible. I tend to drain it 10 to 15 times a day depending on what and how much I eat. But there are...
I agree with 80sChick and stripey you should see your wound care nurse. That could be a few different things. I myself had a problem not to different fro what you are describing and it just turned...
I agree with everything that has been said so far. I just wanted to add this because it has helped me in my intimate life as well as keeping the bag from leaking. I use a Hollister belt Product...
I have never had a problem form oranges/grapefruits other than they give me a stomach cramp. I agree with OHIO76. If you are worried about a blockage, just chew the hell out of them....
I have found that Imodium is a god send. I would try it at low does and see what happens. Also I have found that diet playes a big role in my gas output. I looked up gassy foods and tried to cut them...
I am going to Kihei on Maui. I leave on the 30th. I cant wait. I am still a little nervous about going body boarding with my bag, but will have a great time. I will let you all know how it goes....
P.S I am travailing in 6 days and will let you all know how it goes for me. (I wont go down with out a fight) If you hear about some crazy man being arrested at the Sea-Tac airport it might take me a...
What I am worried about is I dont want to be patted down in fear of my bag falling of and I dont want a scan because I think it is against the constitution. Here is a link of the pictures that it can...
Swimming is not so much what I am worried about. It is that waves of the ocean. tearing my bag off with out it being supported. I will be going to Hawaii and I have always dreamed of swimming in the...
I have had an ileostomy for 18 months now. I still have a lot of output form it so I started to take imodium and it seems to be helping but not a cure all. I hope it works for you. Let me know...
How bad is it falling out?...
I just got a new Stealth Belt in the mail 3 days ago and my dog has already chewed it up making it "almost" not usable. I dont even know how to feel. I got it for my trip so I could go swimming and...
What is the Kenalog spray you use? I have never herd of that....
That is a great question. I payed out of the pocket for it, but I never did check to see if insurance would pay for it (I just amused they would not) But it is worth checking into....
I agree with flchurchlady. However I am a male so getting sexy lingerie was not an option for me. However my girlfriend does not mind at all. I wear a hollister belt and I will tuck the bag into that...
I was just wondering what product everyone used. hollister, coloplast, one piece or two piece? Give product numbers and you track record of it. What worked and what did not work. What is the past or...
I just ordered a Stealth belt (it was shipped today) I am going on vacation in two weeks and want to be able to swim and what not. I have herd good things from my Ostomy nurse about it (why I ordered...
I was 19 when I had my Colon removed form Crohns. They gave me a J-Pouch and 2 years ago they removed that along with 1 1/2 feet of small intestine from infection. I don't know if i would recommend...
Here is a link to some great (I think so anyway) informational videos for any one that has or will be getting an Ostomy or knows anyone with one. I hope they help....
Thank you for sharing your story. I hope that your Ileostomy is reversible and things start to look up. I to just had an Ileostomy placed and found it difficult the first month or so to find the...
It is great to hear that you are feeling better! Thank you for sharing with us! Keep it up....
I have had 5 Fistulas in the past. I am sad to say that 3 out of the 5 were from my infected J-Pouch (witch I just recently had removed) I also agree with getting a second opinion. They some times...
"And for once I wasn't denied that I had pain!" THAT IS GREAT!! It has taken me a long time to convince DR after DR that I am having pain. They all just seem to view it as a small thing or not...
I am very sympathetic to you. I have been on and off prednisone for 16 years now and the mood swings are not good, or so I am told =) The only thing that helps me is knowing that it will help with my...
@lamb61 they generally tell by doing a CBC (complete blood count) it is a sure way to determine if you are in need on an iron infusion. I my self have been on iron infusions Bi-weekly for the past 6...
I have that problem every day. I myself have been eating less gassy foods and have been taking gas-x (I have been told that it helps) Because i find that most of the time that I go to the bathroom it...
Agreed, I consulted my DR. and he said that it would be fine to use Miralax on a daily basis. I however have to use Imodium (anti diarrheal medicine) now on a daily basis because they took out my...
I am sorry to hear that you had to go though that. I too was on remicade and had a very similar problem. After treating it with prednisone and a month later i recovered fully. I am now on Humeria and...
I am a 27 year old male and I have been though a lot of different scenarios for that exact question. I have found nothing is a long term answer (maybe because i get board so easily) I have found...
Remission can mean a lot of thing for a lot of different people. The definition is "the state of absence of disease activity in patients with a chronic illness, with the possibility of return of...
I have had similar situations with my Dr.s they have told me there is no relation and I should not worry.In some British research Gout is very common with Crohns and they are looking for a link (They...
My mom was diagnosed with Crohns when she was in here late 20's and ever since she had her first child (My sister) she has not had a symptom since. For what that knowledge is worth. However from most...