Wow that is wonderful. Glad to hear you are doing so well. I love hearing these stories. J can't express how he feels. I can tell by how he acts that surgery helped him. But when someone that has...
I second the gatorade. That is what the doctor always told me to give my kids when they had a flu bug. G2 orange tastes pretty good, better than some of the others I think. Hope you feel better soon....
I agree you need to discuss this with your doctor. I understand your concern. I had myself worried sick until J had his second opinion at Cleveland Clinic. J has a permanent ileo and has mucus often...
I use them on J's as well. He has one piece pouches. They are great. He is very gassy and makes venting a breeze. Hate it when he doesn't have an EZ Vent on his pouch !...
J has always had variations in his stool consistancy. Some days VERY thick, some days VERY liquid. I just thought it was normal since that is the way it has been for 2 1/2 yrs. Most days he just has...
They used some type of mesh or something on J when he had emergent lysis of adhesions 6 mos after his colectomy.I can't remember for sure what it was called. So far 2 years later and no problems....
Congrats on getting released. J loves KFC mashed potatoes !...
Hugs and prayers sent your way. Please keep us posted....
Crohnie CJ, What is even crazier is that I am in LV schools to and live right down the road. I am on Montgomery Rd in Mary Ann Twp. We are neighbors. I graduated from LV as well. Click on my name and...
Hope all went well....
J has ice cream EVERY night for a bedtime snack. Doesn't really seem to affect him....
Newark, Ohio......about 40 miles east of Columbus.....down the road for the HUGE Longaberger basket building....
/community/emoticons/smilewinkgrin.gif /community/emoticons/smile.gif /community/emoticons/smile.gif ...
Glad all is going well....
Good luck, will be thinking of you....
Ultrasounds just show "lumps" better than mammograms. Normally if someone has fibrocystic disease (lumpy breasts) they prefer to do an US over a mammogram. You probably had an US when you were...
Congrats. Enjoy those babies, but take it easy. Take advantage of folks waiting on you while you can !...
Congrats and welcome home !...
Have you eaten any pasta with tomato sauce? J eats a lot of pasta (he doesn't chew so has to eat foods that can be smashed or soft) and his output can get kind of red/brick colored. I totally...
I use the Osto EZ vents on my son's pouches as well. They are wonderful. He drinks from a sippie cup, so we are constantly needing to burp his bag. I order mine from his ostomy supplier. Here's a...
Glad you are feeling great & life is good for you ! That car is very sharp !...
Glad all went well. Best wishes for a speedy recovery !...
We just had a second opinion at Cleveland Clinic for my son for the exact thing. We were told at the time of his subtotal in 2008 that he would need to have his rectum removed in the next few years....
Thanks for the update. Sounds like Charlie is on the mend. My condolences to your family on the passing of your father-in-law....
Any Idol watchers out there? I heard on the radio tonight that the contestant Casey has UC. He missed the Thursday show last week because he was in the hospital. They said he had been in the hospital...
That's hilarious /community/emoticons/smile.gif /community/emoticons/smile.gif ...
Have a safe trip home. Honk as you go by (Ohio) /community/emoticons/smilewinkgrin.gif ...
Good Luck /community/emoticons/smile.gif ...
Tried many, many different ones on J. Hollister, Coloplast, Convatec, one piece, 2 piece, paste, you name it we tried it. I got samples from everyone. Talked to the ostomy specials at each of the...
Good for you !!!...
Thanks....
Thanks, guess he was having a low output, hungry day /community/emoticons/smile.gif Just makes it very difficult since he can't tell me, it is always a guessing game and sometimes I get a little...
I wonder if J has partial obstructions sometimes. He has such a high tolerance for pain and doesn't communicate if he is uncomfortable. We can tell if he is not feeling well, but not sure about mild...
Haven't heard anything for several days. Just wondering ?...
Wonderful news. As you said, each day will get even better!...
We took J for a second opinion at the Cleveland Clinic this week because he has quite a bit of mucus and it has some blood in it prob 7 days per month. Dr said it was normal, nothing to be concerned...
/community/emoticons/smile.gif /community/emoticons/smile.gif /community/emoticons/tongue.gif ...
Good Luck, we will be thinking of you....
Just got home from J's second opinion at Cleveland Clinic with Dr Strong. First let me say we were impressed with the whole experience. Everyone was very nice and there was not waiting. Best news is...
Wow, sounds like you had a very in depth consultation. Everyone heals differently, but I would think you would be fine for your vacation with the timeline you spoke of. I am sure the sooner you can...
I use Eakin Seals for J. Paste is messy for him. He sometimes doesn't like to lay still during changes. However, I have requested some Adapt rings to try....
Sometimes going to the ER is the best way to get your foot in the door and make things happen faster. Only thing is, you usually get the doc on call if that matters to you....
Congrats !! Enjoy your new life and your trip....
J has an appt at the Cleveland Clinic (main campus, Cleveland, OH) on Thursday for a second opinion. It is about a 3 hr drive for us. I did research online as well as looking around this website and...
Congratulations ! Looks like you need to change your user name. /community/emoticons/smile.gif ...
Good luck. Keep us posted...
Yippee. Tell Charlie to expect a BIG envelope on Thursday...maybe he will be home and need it forwarded /community/emoticons/smile.gif ...
Thank goodness. Poor little guy. Hopefully the recovery will speed up now and he will be home in no time....
Chocoholicres, thanks that makes me feel better !...
I don't remember her name, but she had an accent and was very nice. I was hoping maybe J could have a lap procedure. I discussed that with her, so I hope he does lap procedures too....