I read u have pcos as well. I'm 1yr post surgery for t.c and now have a j-pouch. I also have pcos and endometriosis I am 27 yrs old n want to start a family b4 I'm 30. I would love to have a...
I guess to exercise n stregth the muscles....
Has any one had to do water enemas for ur j pouch pre take down surgery?? I am supposed to do 50mg n work my way to 250mg. But I'm only on 50 still. N it's been over 3mnths since surgery. Does it...
God blessn God speed!!...
Did u have to give urself water enemas b4 the take dwn surgery??...
I had 1st surgery 5-26-11. It was steps 1n2 together. Going this mnth to start the process for the last prt to reconnect my sml intestine to my j pouch. A lil nervous cuz I'm feeling so good n not on...
Hey. I'm 26. I just had my surgery 1mnth ago. I was diagnosed with UC n 2009. It's been very hard! I feel ur pain! But having the surgery was the best choice for me. No more going to the restroom...
I have been having skin problems around my stoma. 1st lil itching then burning. So I'll change the pouch n it would b red n lil swollen. Use powder n seal. Now skin is grey n purpleish. Is that ok??...
I'm not the only one!!! I too have the same issue not as big though. I change it 1 x a day n clean it with saline n dry it n put antibiotic cream. Pack it with gauze. Still a lil pus. But starting to...
I've been doing good changing my bag 2-3 xs a week. Just changed it today n my skin started to really burn n itch. So bad i had to take it off the skin is so irritated n red!! I put powder n ring...
I'm so sorry for that news. I had colitis n my total colectomy cured it!! Chrons is a terrible disease. I'll pray for u. God bless...
God bless u. Will pray for u!!...
Hello I had my surgery 3weeks ago. I'm 26as well. Female. I had a bad experience after my surgery only because I over dosed on pain Meds n the hospital. But my surgery went really good. Was able to...
Glad to hear ur doing good!, pls keep us updated!! I should have my surgery in a few months! I will keep u n my prayers. N wat is this coco thing?? Very interested now...
Thank u for ur replies. Belong time sucks!! Talk about depression!!! But it beats bleeding out of my butt 20-30xs a day!! Serenitee will def be n my prayers. My ILEO is temp. I have my j pouch n...
I had the large incision surgery frm belly button to pelvic area. Scar healing ok except where pelvic crease is at. Have a good size wound n a lil deep. Home nurse is packing it n putting antibiotic...
So my dr said 2wees after surgery to start water irrigation for my j pouch 50cc for first week up to 250cc. I did my first one last nit stinger a bit but was able to hold n for a good 15 mins. Let it...
Thurs will b 2 weeks post op. N the pain is still going strong. I can feel wen I digest n have trapped gas. I'm getting the feeling bck n my stomach so feels weird cuz su. Is still numb. Really sore...
I'm right with u. Thurs will b 2 weeks post op. My appetite is very lil. N have to force myself to drink so I dnt get dehydrated. I'm loosing weight but it's a good thing for me cuz I'm over weight....
Wow!! Soo sorry for ur lost. I was on morphine at first n was able to push button every8 mins but morphine was not working so they gave me a new pain med and the first hit did the trick but after...
So my skin is irritating around the stoma it itches. N is sore. Wat can I do for fast relief ??...
Thnx soo much it's true it works!!! Even though it hurts to walk it helps. God bless...
I'm good now have sum issues frm the experience. Especially cuz I remember so much of it n being paralyzed n not able to breathe!! Scary. Heart rate went to 170 n fever105!! Had a seizer also. Not...
Nettiemoore, Hey there. I had my 1st surgery on the 26th. Surgery went really well n was able to have j pouch set up. N no chrons as once thought. Bad 1st night I went code blue due to over dose on...
I went code blue n hospital after surgery. Too much pain Meds. Terrible experience....
I never really used to get gas b4 my ileostomy but now i do it it feels trapped. It's been 8 days since surgery. Any suggestions??...
I'm not a skinny person , in was wondering is it harder for fatter people to have an ostomy!!...
On the 26th I'm having a proctocolectomy w/ hopefully a temp ILEO. I am 26 also. Surgery is a big thing n u can't go bck. I waited awhile n tried tons of Meds. Nothing worked. Pray n have a good...
How soon after u have one can u have sex? Is it weird or embarrassing? Does it make a big difference??...
Thank u all so much for ur feed bck. I just want to get this over with already. N having to go the e hospital bfor surgery will just b soo sad for me. I just out on the 5th of may. I was there for a...
Will being in a flare effect m surgery? It's nxt week n I started to flare up last week. My surgery is on the 26thatthe USC med center n la ca. I ca twang to get it over with to start healing! 2yrs...
I'm 26 been using prednisone for over 2 yrs on n off. Doesn't work for me orally but more effect thru iv solu medral. But I hate prednisone!! Makes me very moody! Very weak knees n joints. I'm a Crzy...
I'm finally going to have surgery nxt week at USC med center in Los Angeles ca. I just got out of the hospital may7 cuz of my UC was acting up then came home wen bleeding stopped. And now I'm n a...
I'm a lil confused is the j pouch made frm org or sml intestine ?? Cuz if I have pan colitis don't they need to take the whole large colon out? Then the j pouch is made frm my sml intestine then...
I hate prednisone !! Makes me moody achey bones n joints. N doesnt worknever!! But others it works....
I use rowasa every night but can't anymore cuz in a flare up n can't hold them in. N my case they didn't work but for others it does. Plus they say it's best to be treated at both ends. Mouth n...
Thank u all for ur replys. I honestly thought for the longest time I was alone! Then I found this sight. I have to go bcd to do more tests to verify it's colitis n not chrons. But I know it's...
Well remicade did not work for me. So now I'm looking at surgery for last option. I will pray it works for u. God bless...
Talked to GI surgeon and going to do surgery. He gave me A few options but want to know from those how had surgery to cure their colitis. Any info will help. Thank u God bless...
It's been a rough two yrs. Only stay in remission max of 2 months. I'm 26 n I just want to live again. Meds don't seem to work n prednisone is killing me! On remicade also n isn't working. Please...