Hi guys, I have a j-pouch now so I don't really frequent these forums anymore, but something occurred to me recently (as a result of an immunology course that I'm taking). I began presenting...
Thanks so much for all of the advice! I gave my speech today and I was a nervous wreck, but I think it went pretty well even though I very nearly cried after it was over. I think it was a combination...
Thanks Blueglass and UCwife! Before I got diagnosed with UC I couldn't talk about ANYTHING bathroom related without getting terribly embarrassed and uncomfortable, which is probably why it took so...
Good for Jackie :] I was out partying in the city with my friends the weekend after my takedown....
Hey guys! So I'm finally back in college after two years of being too sick to go to school. Admittedly I'm no longer going to my school of choice or studying what I love (and I'm pretty much starting...
Hmm, that sounds a bit off to me as well. Either way you've already got a j-pouch now, you're just not using it, right? So at this point your chances of getting pregnant are the same whether or not...
I think I had a big salad the day I got home the hospital (maybe that wasn't a great idea?). But I chewed like a maniac, drank tons of water, and never had any problems. I wouldn't have done it but...
My surgeon removed the rectum during my second surgery when he was making the j-pouch. Since you've already had your j-pouch made, I would assume yours was also removed. Are you sure that's what your...
Yes, you're so close! Any idea around what time you'll be having your takedown? And thanks, I am feeling pretty good :]...
Aaaah, good luck! The output from my loop ileostomy was really watery the whole time I had it. Immodium rarely helped. It did help not to drink any sugary juice though....
Has anyone given their surgeon a gift? My mom thinks I should paint something for him (I used to go to art school). Or she wants to make him a glass bead. She talks about how they always used to give...
My mom absolutely has a crush on my surgeon. It's adorable. But last week I had a doctor who regularly came to visit me in the ICU and he had a British accent and was tall and awkward, but in a very...
Yay indeed! Thanks UC Wife!...
I went to the UPenn Hospital/Hospital of Pennsylvania in Philadelphia for my j-pouch! My surgeon is Dr. Bleier and I have been VERY happy with him. I also hear wonderful things about Dr. Fry. He's...
So when I woke up from surgery today I was in horrible pain and I cried. But I didn't cry because of the pain, I cried because I was soooo happy. Also, I was probably a bit loopy from the anesthesia....
Thank you both!...
Good luck with everything, love! I'm sure it will go well :]...
Hey guys! I am a three stepper and am having my takedown on Wednesday. I'm just wondering how long it took most of you to bounce back from the reversal and get even a little bit adjusted to using the...
Thanks so much, blueglass! I will look into all of those options. I have so much left over....
Hey guys! I am having my takedown surgery in a week (SO EXCITED) and I've realized that I'm going to have tons of left-over supplies. I have many unopened boxes of bags, paste, etc and no idea what...
Hmm, right now I have a loop ileo and it is TINY (not even a whole inch in width, and sometimes less than half an inch in length). Right after my surgery I would turn to the side and the stoma was so...
Hey, I'm a 3-stepper too. Oddly enough I was only in the hospital about 2/3 days after my first surgery....
Hi shelbyc! 1. The loop ileostomy (mine at least) is a lot smaller and flatter. It doesn't stick out nearly as much as my end ileo did. I also have higher output. I get leaks a lot more often than I...
I had to start using the convex as soon as I got the loop! If you're already using a convex you might be fine. Also you never know, your loop might stick out more than mine does....
Hi B'Dereh! I couldn't tell you how much time you'll need off after the take-down because I haven't had that yet, but I have had my other two steps done. My 2nd surgery was a LOT tougher one me than...
He sounds like a smart kid who just can't sit very still. He could still easily outgrow that. My little brother was the same and now he's 10 and has gotten much better and he doesn't have any...
I should be having my takedown surgery in about a month (I'm a 3-stepper like you) and your post has made me feel a lot less anxious, thank you :] Especially about the drainage, I have been having...
I met my surgeon once and then had my surgery about a month later. He did a great job with my stoma, it stuck out far enough and I never ever had a blockage. He said it was easy because of how small...
I also just had my jpouch constructed and I'm having similar discharge pretty often. It's really watery with some mucous, and I get small cramps before I feel the need to pass it. The past couple of...
I don't regret it one bit. I knew my UC wasn't going to get any better and I was only going to continue deteriorating if I didn't get my colon out. The surgeries have definitely been worth it. Also,...
I am hoping to have my takedown sometime in October/early November, I am very excited (and terrified)! I just want to rush everything and get this bag off of me. I am having tons of trouble with...
Ooh, also I forgot to mention, I had my first blockage ever with my loop ileostomy. That was a nightmare. I think it's a lot easier for that to happen with the loop ileo, and I'm not sure how you eat...
Hey Richochet, I don't mind at all! I'm doing alright at the moment, but this surgery was definitely a lot tougher on me than the first despite how sick I was going into the first one. I had some...
Rosemary, thank you so much for your reply! I do think it was a blockage. And the CT scan only showed small fluid collections that they later sucked out with a big needle (I don't know if any of...
The doctor that came to see me didn't want to do any x-rays because I am scheduled for a CAT scan tomorrow morning. But a bit earlier some output finally pushed through and I do feel better (just not...
Thanks for replying, 80sChick! So I might be partially blocked, yes? Even if nausea has yet to hit me? I just can't imagine what else this pain could be. A tiny bit of fluid has come out in the past...
Is it possible to have a blockage without any nausea/throwing up? Friday I ended up back in the hospital about a week after having surgery. I was mostly concerned with the agonizing pain I was having...
I had to go and google them, YUM....
Hi Serenitee! I think I'm mostly just comparing my loop ileostomy to the end ileostomy that I had before that. My end ileo stuck out a lot and was sort of cleaner looking, if that makes any sense? My...
I think they want to keep the bar in for longer because today they are sending me home with it still in, uuugh. I might also go home with the jp drain still in. Also, last night after the 3rd leak me...
Hey guys, so I had my surgery Wednesday evening. I now have a loop ileostomy and today I got a good look at it. I don't like the look of it at all. It has that bar going through it and it looks kind...
Trixiemom, I already have to cut my wafer with the end ileo because it's a bit of an irregular shape so that should be alright. But it's good to hear that you haven't had any problems! Scrap Girl -...
Hiya! So I'm going in for my second surgery and I know I'll be coming out with a loop ileostomy instead of the end ileo that I have now. I've heard that a loop ileostomy is more difficult to manage,...
Haha, aw, I hope you're not too scarred by the incident. I think we're opposites though. At first I was kind of scared to touch the stoma, but these days when I'm changing my bag I wind up standing...
I eat all of those things and I've never had any problems! Seeds do come through, but it doesn't bother me....
Also, it just occurred to me. Could this be gastritis? I'm not entirely sure how that manifests itself....
So I had my first surgery about two months ago and for the most part I've been doing great, aside from some skin irritation. These past couple of weeks I suddenly have a gnawing, burning feeling in...
I was having veggies as soon as I got home from my first surgery. I just chewed like crazy and peeled whatever I could....
Oh, and feel free to email me! My email address is on my profile page....
Hi Heather! I'm 21 and I had my surgery about a month ago, so I definitely understand what you're going through. I'm also having some trouble adjusting to the ileostomy, but then I think about how...