Hopeseeking1, I was on 6MP (mercaptopurine), Lialda (and previously Asacol), with attempts at things like Canasa and Rowasa for about 9 yrs. I was been prescribed prednisone a number of times which I...
Blimmy, I've got the largest size. Going to try something else and see if that makes a difference -- referring to whether it applies too much pressure so that output is pushed back under the barrier....
Ridgeruner, will check on the sizes as you suggested -- mine may simply be too tight. 80sChick, will check out the ostomysecrets underwear. Thank you both....
I've been using the Trendy Top for several months following surgery. It supports my ostomy bag rather well. The only concern I have is whether it is applies too much pressure to the top of the stoma...
Yes, for me, the urge does subside relatively quickly (although I sometime have to sit down in the restroom to let it pass.) Discharge can occur and, I believe, could be greater depending upon the...
Hello, I believe you'd mentioned interest in hearing from others who have had surgery. And, I believe others have said that you'll know if/when the time is right -- which I could only agree with. I...
A doctor once told me that eating causes a spasm, presumably one that travels through the digestive system. I defer to the experts, but thought this was worth sharing....
Hi ActiveUCer, thank you so much for your response. The info you provided is quite comforting. Perhaps I should have realized it, but I was expecting 4-weeks before being able to return to work. The...
Sue and Cita, I love you for your kindness and caring responses, and I wish you the best! Thank you! I will take your advice. -Steve...
PS I'm told pneumonia that I have now somehow should not be causing symptoms that I am feeling....
Hello All, I was wondering what the "normal" recovery time after total colectomy is. I had surgery ending with an illeostomy on 9/17. I was a bit pooped (winded), but after about 3 weeks my...
I think everyone is different. I didnt put too much stock in non-western medicine when suggested by a friend for example. Surgery is a big step, but I am inspired by a younger family member whose...
I second, or 22nd those "hyperventilating", "ROLF", "tears in my eyes" comments. I'm sorry, that is too funny....
I've had UC for 8 yrs. I've only considered surgery for the past year. It's good to know that a surgical option exists. For me, the potential pros of surgery outweigh the cons. I've not given up....
After roughly 7-8 years of dealing with UC, I've opted for surgery too. I wish you the best!!!...