On May 31st, I got invited by TED.com to Vancouver to be part of their global audition search for their TED 2013 line up. I talked about Crohn's - mostly about my journey, but why this disease needs...
Hey guys! So I haven't been in here for a few months, but I'm happy to say that next Thursday, the 19th of July, I'm going in for my reversal! Yippee! I'm so thrilled, and I just wanted to thank you...
Ugh. My older sister is visiting from Toronto. My older sister is a nurse and therefore she thinks she can tell me about my disease and how to reverse it. It's very frustrating because I CAN'T...
What's really in fashion now are dresses that gather right under the bust and flow out. I've worn a few of those kinds to school and you can virtually see nothing, they're great. :)...
Well they initially just tried draining and packing it but after 7 surgeries that didn't go well, as it ripped open when I pooped, so my surgeon (best guy in the world) decided to put in a seton and...
It's March now and I'm at the halfway point with my ostomy. I'm so close to saying goodbye! My surgeon told me I still have something called the ileocecal valve, therefore I shouldn't worry too much...
The ostomy was the last thing my surgeon wanted to do. I wish he had done it first, to be honest. It's a tough road, regardless of whether she has the ostomy or not. But with an ostomy, life gets so...
I had an anal fissure too. I'm sorry to say that I have no medicinal advice, but it might be great to invest in a donut shaped pillow to keep the pressure off the area!...
I really love bag jokes. :) It is definitely a relief that most of my friends know, that much is for sure. Because of this, they're more sympathetic, and we make jokes too. A lot of them have asked...
As a teenager it's very hard for me to tell my friends about my ostomy because they don't quite understand. However, they do support me quite a bit. I only told them three months after getting my...
Very blue or very green icing will give you awesome output....
How long ago was your surgery? The first few weeks I had really bad pains, too. :(...
I didn't close the bag properly today and a bit of it leaked onto my skin. It's burning there, it's irritated so much. :( Does anyone have some fast remedies? My friend told me to rub Vaseline on it...
I think it's great you had that breakdown. Sometimes you need to have that moment where you realize what was given to you and how unfair it is. Sure, people have it worse. Like you, I felt guilty for...
Hello! I've had a fistula for about two years now, darn thing won't go away :( It wasn't healing so my surgeon gave me an ostomy in order for it to close because the pressure of pooping was making it...
I don't think that's normal, I have a fistula and the seton in there has never fallen out, and probably shouldn't. You should call your doctor....
Hello, everyone! An update! I leaked again which was dumb. But this time it really pushed me to change things, and your advice did too. I know I shouldn't resign myself to living like this and...
I've always been very anxious: things that weren't in my control led me to freak out and start having panic attacks, though I'd calm down as fast as I could. After my ostomy surgery in September I...
Occasionally I feel a spurt of nausea but it usually passes within seconds and I'm back to normal. :) It also happens more often when I eat a really large breakfast, I think it just needs a little...
Hi! I'm not a newbie to this site, but I mostly hang out in the Ostomy forum, which is probably why you've never seen me around. However I do have Crohn's disease and I'm in my teenage years. Before...
Thank you windy city, Jackie_0mg, and run4pancakes. I really appreciate everything. run4pancakes: I very much love to write so that compliment means quite a lot. :) I took everyone's advice and tried...
Thank you guys so much! It means a lot that you all took your time to respond. I'm going to bold each of your usernames in this reply because I have a feeling it will be a long one. mom2panda - I...
Thank you so much for responding! I hope that your daughter's surgery goes well and that if she was hospitalized in Sick Kid's, my sister works there. (: I should clarify that I did, indeed, have an...
Hello to all you wonderful people! I've been lurking here for awhile now but after last night's events, I felt I could really use a helping hand from experienced people and people going through the...