The dr ended up calling me back by the time the stopped. She was concerned about the top of the pouch not being healed but all looked good today on my pouchoscopy and i have takedown set for...
k so the way the test works is you go into an xray room an lay on your side and the place a very flexible rubber tube in your rectum only about 3 inches or so, They then start to pass the enema dye...
Surgery is sched for july 3rd and I asked my RE about my upcoming disney trip last week in aug. She said id be fine by then. He exact words were: 2 weeks out your going to hate me, your going to...
Glad to here your making progress...anything is better then it was right? Glad to hear he is working on the car and getting up a bit. About the Barium Enema. I had mine on tuesday and according to...
I had my gastrografin Enema the other day all went good. i had some cramping(very painful) afterwards and she wants to do a flexable something or other exam I know I go to sleep for it. Thats tuesday...
GREAT JOB!! I went swimming 4 weeks after surgery and it was great glad you enjoyed yourself!!...
I went today for the test and everything went great. its been 7 weeks since surgery and all healed up. I meet with surgeron on friday to talk takedown surgery. BUT I have had cramping since i left...
First: Let me say I COMPLETELY understand your frustration, disappointment and aggravation. I have my Temp Ileo sugery on May 1st. Alot of people on this forum can tell you the heart pour messages I...
lol no lie as soon as I tclosed the computer my incision started to leak and it caused the seal to break down around my stoma. I was in the tube anyway so I pulled it all off and enjoyed my bath bag...
I forgot to also say i have my CT scan thursday to see if I have an infection or what is causing the oozing...
well I have been using my convex wafer with the stoma paste vs the eakin seals and coloplast seals I was using and so far so good I havent had a leak since 8:30am yesterday. now I need to knock on...
I called hollister and they are sending me out some starter kit. I have been using a bag and wore it to bed last night. still woke up covered...
I have seen 2 ostomy nurses. who have been no help. I am not depressed just mad and frustrated. If it didnt leak and when it doesnt leak I am fine and happy. but I am constantly worring about leaking...
I can no longer relate to anyone. Maybe I could relate to an older person wearing depends. Right now I feel like the room is pitch black and I can’t find the light switch. How is it no one can help...
here is what I wrote my surgeon...My incision started to flood orange liquid again tonight. More so when I stand. We need to figure out something about the leaking from the ostomy. I could deal with...
its so frustrating. I took the metamucil last night, Half of a single serve packet and I woke up at 5am to a semi solid stool. had some water mixed it but def some solid, did the same thing around...
wow!! thank you al for your responces!! I am still so nervous about it. I guess if I was prepaired as it seems you need to be ill be more confident. if I can get everything to thicken up I wouldnt...
I am just trying to do as i am told as far as thicking it up. it was basically water. I tryed half the pack of metamucil and was fine and it worked better so I guess thats what i will do for a while....
I had my proctocolectomy on 5-1. I currently have a temp ileo with some leaking issues. Leaking issues aside, I am wondering when you felt comfortable with everything to go out for more then an hour....
you dont have any leaking issues?...
I had a proctolcoectomy with j pouch construction and temp ileo at Robert wood johnson in new Brunswick. they ordered me coloplast instead of eakin seals. I used the for the first time today but I...
I had the same surgery you had on may 1st. although mine was for FAP. I have a J-pouch and will have a reversal in 6-8 weeks It honestly wasn't bad at all. it takes about 6 hours and that day by the...
sorry it took a while for an update. The ostomy nurse came and was helpful. She changed everything and did help. ordered my supplies(which were delivered yest) I went to the surgeons yest and she was...
Hi. Thank you both for responding. I havent been measuring it because the system they have me using right now bypasses it you just roll the wax ring back if you need it larger. However a visiting...
Hi. I am 26 and just had my jpouch and temp ileostomy surgery on Tuesday{5-1}. I have FAP. I am having horrible leaking problems, mostly because I am not a thin women. I have been changing my bag...