Have you tried Calmoseptine cream? I found it to be somewhat soothing....
Hi Speech2014, My situation is similar to yours. I had a laparotomy to remove endo from my bowel. They took about eight inches of my bowel and part of my rectum. About a week after surgery I ended up...
Please don't worry too much if your tumour marker comes back elevated. My doctor did this blood test on me because she was worried about my ovaries. My levels came back very elevated and I stressed...
I had a temporary loop ileostomy and I passed gas through my bum all the time....
Hi Lynn, Welcome to the group. I had my loop ileostomy reversed on October 30th. My situation is a little different from many here because I don't have UC and I didn't have j-pouch surgery. I had...
I had my takedown a month ago. I would recommend that you have some adult diapers on hand for the first few days and some kind of cream for your bum. I have been using Calmoseptine and it seems to...
I used the Hollister M9 Odour Eliminator drops and found they worked pretty good for me....
Thanks for your responses. I'm home from the hospital now with some nasty antibiotics to take for two weeks. Keeping my fingers crossed that they work. Being in the hospital is really getting old.......
I had my reversal surgery 16 days ago. Everything seemed to go well, but after I got home from the hospital, my pain started to get worse. Over the weekend I was getting stabbing pains that would...
Good luck with your surgery tomorrow. Keep us posted about how it goes....
My story is similar. A week after my resection I started to bleed. I didn't have any pain and almost decided to stay home. Thank goodness my husband forced me to go to the ER. When I got there my...
My surgeon said I should have the ileo for at least 3 months. I'm not sure why but he said it would be better to wait that long before the reversal was done. It wasn't to let the leak in my colon...
Hi speech2014, I just had my loop ileo reversal 9 days ago. They took 8 inches of my colon to remove endometriosis. A week later I had a leak at the anastomosis and had emergency surgery and temp...
I agree with ddd45. I couldn't imagine the ostomy nurses I had discussing sexuality issues. In my experience, the nurses didn't even provide the information they should have with respect to the...
I spoke too soon - the first movements I had were pretty solid, but last night I pooped my pants. Twice :( Wasn't a lot of warning. I had a bad gas pain and then there was nothing I could do to stop...
You mentioned you were on Lomotil - I think this is the prescription form of Immodium. I had my takedown a week ago and I have been using Calmoseptine on my skin. It seems to be soothing. In Canada...
I just got home from the hospital today so I was there for 6 days. They would have sent me home 2 days ago but after what happened to me after my initial resection, I told them I wouldn't leave until...
Glad to hear you are home and on the mend. Don't worry about the staples - I had them for both of my laparatomies and was scared the first time they took them out. It doesn't hurt at all....
Thanks! Makes me feel better. I'm not passing gas consistently yet and my belly is bloated so they won't advance my diet yet. I'm not getting enough calories because I can't handle anymore broth and...
I had my reversal surgery late Tuesday afternoon. Since then I have been on a clear fluid diet. So far I have been able to pass a lot of gas, but things haven't started 'working' yet and my tummy is...
Ha, ha.....I'm having my surgery on Tuesday and I a also making 'preparations'. Had my hair cut yesterday, am going for a pedicure tomorrow and have done the necessary trimming :) Nice to know I'm...
In my experience, what you are describing is perfectly normal. I actually had a couple of normal BM's from my bum after I got my ileo. I have also had redness around my stoma. I use stoma powder and...
Good luck on Monday!...
I actually went to the ER on Sunday because my heart rate was high and I had a high fever. They ended up admitting me and I've been in the hospital since. I think every department of the hospital has...
Just found out yesterday that my reversal is scheduled for next Tuesday. I'm soooo happy because I wasn't expecting it but also a little concerned - haven't been feeling great the past couple weeks...
I have had my ileo for 5 months and I find that sometimes it doesn't matter what I eat, my output is pure liquid. I wouldn't worry based on the consistency alone. I would be concerned if there is no...
I've been using these blue cloths that they sent from the ostomy supply place. They are big so I cut them in quarters and dampen with water. So far my supply has lasted for 4 months, but I'm almost...
My nurse told me I could take immodium, but nobody told me you could get a prescription from the doctor. So....at first I was just buying it at the drug store, which can get expensive if you are...
Thanks summerstorm. Still not sure what it is. Not period cramps because that's over. Last night I was in excruciating pain. Felt like a blockage at first. Bad pain under the stoma. Eventually the...
Good luck! I hope you get the job....
You could also try using immodium to slow things down. Personally I haven't used it for awhile because last time I did (and probably combined with something I ate) my output ended up like cement. I...
Don't they sometimes have special equipment that is used for pregnant women? Maybe it could be used to avoid pressure on your belly? I often sleep on my right side all night and have never had a leak...
My husband makes me eat it :) Same with the chips. The chocolate is all me though....
B'Dereh is right - everyone is different. In the beginning I thought I would try to stop eating by 7pm. However, since my husband doesn't get home from work until 7 most nights we tend to eat late. I...
Does anyone get lower back pain that they think is related to their ostomy? Last week I think I had a blockage because I had a lot of pain under my stoma. I also had really bad pain in my lower back,...
This sounds normal to me. The first few weeks I was having to get up 3 times during the night to empty and during the day I was emptying almost every hour. Now (4 months later) I sleep through the...
Thanks B'Dereh. I thought I would get in fairly quickly because the surgery is less complicated. My first surgery (not the emergency one where I got the ileo) seemed to be scheduled more quickly and...
Wow! 15 dresses. You sound worse than me ;) I am notorious for buying things and returning them later. I think I end up returning more than I actually keep. I am so indecisive! I will keep both...
When you buy bigger hose, do the legs feel baggy? I hate that feeling :) Although it would be better than feeling a leak. Hmmm.....maternity panty hose. Never thought of that. Sounds like a great...
Christine, I also ended up buying two dresses. Was so relieved that it wasn't difficult to find something (only tried on 3). Congratulations on your daughters wedding! I'm glad you had such a great...
Since getting my ileostomy 4 months ago, I have been content to lounge around the house in yoga pants and the fanciest thing I've been required to wear over the summer is shorts, t-shirts and...
ActiveUCer, It's the 'linear' filter on my pouch. I don't always cover the filter and I would say I have only had two tiny leaks in four months. And I think they were probably after I had been trying...
I've had my temp ileostomy for four months and I still get a lot of air in the bag. I use Convatech pouches with a filter, but I'm not sure how much the filter actually helps because the bag puffs up...
Thank you. I hadn't heard of 'diversion colitis'.....that makes me feel much better. I was worried that either my original pain was coming back and the surgery was all for nothing or that I had some...
My discomfort comes and goes as well. It's not unbearably painful, just uncomfortable at this point, although my tolerance is pretty high, I think. Not sure why I am randomly farting all of the...
In May I had a bowel resection to remove endometriosis. They removed eight inches of my bowel, close to my rectum. Before the surgery I had a great deal of pain/pressure in my rectum and I was...
It just felt less stressful for me to be honest. And I wouldn't want to burn any bridges in the industry I'm in. The job opportunity is a good one but If I don't get the job, I don't get the job and...
Thanks B'Dereh. I find the whole process of looking for a job stressful enough without the other complications. Since I am hoping to have my reversal this fall, I had planned to wait until I...
Hi mom2panda, I think I'm going to try to start changing standing up at home to see if I can get comfortable with it in case I have to do it when I'm out. It upset me because it was the first time it...
Thanks for the suggestions. I could try the seal or ring but I don't know how to use them. The wafer does always seem to lift in the same spot. I think I will make an appointment to go back to the...