WOW, It's good to hear from all of you!!! Sorry I haven't been here for a while, I'm going to college and I've been so busy, for those of you who dont know me, I am 36, married, have one son, and I...
Hey everyone, it's been a long while sence I've posted. I have a lot of catching up to do. I've been doing real good, it's been one year sence removal of colon and rectum. I now have a permanent...
Oh Cindy you have already helped by giving me some hope that i might not be doomed for another surgery. haha, i'm gotta make me an apt with my GI, he's only about an hour and a half away where my...
I got so excited about BCIR surgery , I wanted to get it done, but I found out they wont do it on people with chrons disease. so that sinks big time. I'm glad your doing good and I'm glad it works...
OK when i got up this morning I was a little sore at the bottom of my belly just right underneith the scar from the drain tube. I can feel a knot there. Is this a hernia??? i hope not !!! and if it...
Hi , I am so glad Holly is doing good, it may take a bit but she will adjust and feel good about everything after she is recovered and sees how much better life is without the disease holding her...
i dont know how they compaire to other places by price but i get mine from edgepark medical supply, you can go on line and check out the prices , plus i think that if you dont have insurance they...
hey i have only been sewed up for a few months , the only trouble ive had was some bad pain, i think it was from the stitches that were still there. i hope you get feeling better soon, let us know...
Hi Holly's mom, I remember you from the CD board when you posted last year. I am so sorry that Holly hasnt gotten better. I hate for anyone to have to have a ostomy but I am here to tell you, that as...
GO SWIMMING !!! Take a long hot bath !!! unless you are having trouble with leaks you shouldnt have any problems. If you need to you can tape up around the sides of your flang with the pink tape, its...
Welp. I saw my surgen for the last time today !!!! I hope anyway. Its been three months since having my colon and rectom removed. He is very pleased and so am I !!! my bottom still has a little ways...
Janene, I am sooo glad your doing so good !!! I would like to have the Bcir surgery done but I was told that they wont do it on Crohns patients. Good luck and hopefully the next 12 days will go fast...
I hope things are getting for you. Even though getting the bag is the best thing i have ever done for myself, It may be a little harder for someone else to get use to. It sounds like you are ready to...
Hey Bridget, I dont see why there would be any reason you couldnt be a cop. Do you have any restrictions on your physical activity? I think you should go for it. There has to be cops out there...
Some of you know I had my colon and rectom removed in May. I was left with a big open wound on my butt from where they removed the fistula tracks and my rectom. I havent had any problems untill a...
Hey all, I feel so good since we got back from the beach. I had a great time and I was able to enjoy every minute. Thats a big change because before my bag I would have been sick and in the bathroom...
I got so excited when I heard you all talk about BCIR, I got on the web site and e mailed someone about it and now I am so dissapointed, They wont do it if you have crohn's. I was really thinking...
Hi Sandee, I've CD for about 8 years. the first three wasnt too bad but the next five were real ugly because I developed fistulas on my butt. about six all together. I had two seton surgeries and...
I am having alot of gas too, I thought maybe it was from just having the surgery but I use the assura bags and they dont seem to be working as well as they used to. I usually have to (burp) my bag...
Hi guys, Sherrine , dont feel bad. I know everyone is different. I am doing a lot better now. its been a month and I am glad i had it done, I'm not glad i had to have it done , but its better than...
Hello everyone, Thanks for all of your prayers and wells wishes. I had the surgery on the 6th and I got to come home on the 12th. I have been stuck on my couch up untill a couple of days ago. My...
Hey guys, we'll be leaving in about three hours, Thanks for all your well wishes and prayers. i'll chat at ya when i get home, take care !!!...
Hey Sherrine, i am wondering if i will have to go that long with out eating because i already have a ileostomy and they are suposed to leave it where its at. the nurse is suposed to call me in the...
Hey all, I go to the cleveland clinci on thursday for all te pre stuff and then they are going to do the surgery on friday may 6th. I am scared, nervous , and all I want to do is feel better!!! i...
Hi sherrine, you made my day by telling me your story. /community/emoticons/yeah.gif I hope i recover fast too, I'm glad you are better . thanks !! /community/emoticons/smile.gif who did your durgery...
Just like everyone else ,I didnt want it done, but I am glad I did, now I am ready to have it permanent so I can really feel good, and get rid of the fistulas since the D#mn things wont go away on...
Hey Cindy, Have you tried the small bags? Coloplast makes the two piece systems and you can change the pouch without changing the flange, I used these for a while, you could use a small bag and maybe...
Heck yea Pin cushion, there's always room for my fellow bag buddies,...
I am sorry your husband is , well, i dont really know the word I'm looking for, but my husband is about the same way. We have been having other married problems too but I know it all has to do with...
Hey Sharon, I use a lite comvex puoch and the eakin seals. The eakn seal hole is bigger than my stoma too but i just kinda form it a little to make it smaller, It works good and it has helped alot...
OK, I have a temp. ileostomy , its been almost a year sence my surgery. My fistulas are horriable, they have gotten 100 times worse and I cant stand the pain anymore. I saw my surgen yesterday and we...
Hi I'm T jane, (Tonia) I have read some your post on the CD board too. Your fistula problem sounds alot like mine. I am so excited about getting rid of them by having my colon taken out but it sounds...
First, WOW. i havent been here in a while and I am so happy that There are more peeps to chat with now. Used to be you couldnt hardly get any one on here. I went back to school, so i have been pretty...
Tenaciuosdei, Thanks for that tip, I will defanantly try it. Thanks again...
hey pin cushion,,,, its been a while, but i got the cover made and its good,, thanks for the idea !!!!!!...
HI Tracy, I have a temporary ileostomy due to severe fistulas in the perianal area from crohns disease. I had my surgery in May , I dont know yet if I will have to keep it forever or not , the...
Hi Michelle, I've had my ileostomy just sence May. I have severe fistulas from crohns disease, it's supost to be temporary but I have thought about making it permament because I feel so good ,I have...
Does anyone else have or had an ostomy because of fistulas? If so how long do you think you'll have it. and What med.s are you on. Thanks Tonia /community/emoticons/tongue.gif ...
lol !! /community/emoticons/tongue.gif You can see mine on chrisnsteph's group page on the crohns board .how about you? Tonia...
I know all the bad that comes with the tanning beds and the sun. I dont go alot but I am very faired skined and if I dont get a start of a tan in the bed, the sun will burn me, and burn me, over and...
Thank you Shaz !!!! Tonia...
Thank YOU!!! I will remember that !!! I ordered on line and a man called me today and said they got my order wanted to know what hospital I was in and said he would sent me a catalog. he never said...
I ordered then from Edgepark today. Thanks. now hopefully my insurance will pay. their supost to, but usually I gotta fight them on every thing. Thank you Lesrich!!! Tonia...
what company (suppliers) do you guys use to get your supplies??? do they except insurance? the ones i'm finding on the internet wont take insurance. /community/emoticons/confused.gif Thanks Tonia...
what is the difference between durahesive barrier and stomahesive barrier??? please answer quick !!! thanks Tonia...
lol,,, were not very talkative are we??? lol here's a question how does the adheasive hold in a tanning bed??? i need a tan, cant stand to lay out in the sun, thanks Tonia...
Thanks Pin Cushion,, I am gonna try it this evening. That was way smart. you should get patent for them. Thanks again !!! Tonia...
Hey why dont we send our pictures to one of you guys that knows how to make a web site so we can see what we look like,,, we did it on the crohns board.. can anyone do this,,,, maybe we can tell...
Hey guys... you know those pouch covers you can buy? I'm sure someone has some,, Pin cushion I think you said you made your own? well I thought I'd make my own too , so here is my question:::: Is it...
Thanks,, I think i might have lettuce and tomato on a sub, but i'll stay away from others for a while. I'll remember to chew it up real good. Thanks Tonia...