Hi! Congrats on your upcoming takedown. It was an exciting time for me, since I had so many complications after the first step. Go to www.j-pouch.org, those folks can help hugely in all of this. They...
LOVE THEM LOVE THEM LOVE THEM!!!! Ive had my ostomy since Nov. 16, and am getting takedown in a day and a half now (VERRRRYYYYYYY nervous!). Now i lost so much weight so fast that i had bumps and...
Hi lightworker, im so sorry for everything you have been through, and that you continue to suffer. I wish i could offer you any helpful info, but if you want to gain weight, im in the same boat. Im...
Hey guys, i just thought id throw in my opinion here too. I agree with Depiro. BCIR really is a last resort, as described by everyone i talked to, including my surgeon and gastro at U of Chicago....
Hey Cleo, nope i havent had a pain there, but i DO get one on my left side, above my hipbone, but im not at all sure its not something like an ovarian thing. But with the RVF im not at all sure i am...
Rob, i completely understand the desperation. That 10 years when they said i had IBS and i was losing it in my pants all through high school and college, i would have done ANYTHING to get it fixed....
Hi Rob! Im so sorry to hear about your situation. But it begs the question, are you ABSOLUTELY sure its IBS? I was told i had IBS for 10 years, from when i was 12, and was on the toilet all the time,...
Hi Shellee... well i cant relate to your problem, i had ulcerative colitis and am awaiting surgery #2 to get rid of my ostomy and get reconnected...but i wanted to tell you i am so sorry to hear...
Tammy, i feel horrible for you. I cant offer any info on being able to piece it back together. I can only say that i have my ileo now, and it took me a bit to resign myself to it when i was told it...
Hey New2UC, My j-pouch first step was Nov.16, and i would say my little clyde stopped shrinking around abouts the middle of January..about 2 1/2 mos out...sorry to give you the bummer news. But i had...
I use the Hollister 2-piece Convex system...New Image Drainable Lock and Roll pouches in beige..these are the only things that really are comfortable for me to wear. All other either fall off me, or...
Ha,well thats about right isnt it? I have that expelling mucous all the time, cuz i still have intestine hooked up, since i have a j-pouch everything is small intestine though..no colon or rectum...
Cleo, i may be a bit different here, since i had UC and had j-pouch surgery and have had Clyde here since November 16, but i would do it again in a heartbeat. This of course knowing mine will be...
oooh, i wish you teh best...by the way, i am 6'0 tall, but you can just fold me right up with my Clyde the crapbag and i fit neatly in a suitcase.... ~Eileen...
hi jrjolly! Well i have a temp loop ileo too...what fun, huh? Well its basically a situation where your output is a bit liquidy and that makes bags difficult to manage. Mine last about 2-3 days now...
HI CINDY!!!! i come bearing hellos and thanks for moderatings from the UC board. Im glad to see you on here, though not so glad that you have to have an ostomy too. I had 10 years of its all in my...
Hey stomski! Im going in for dynamic proctogram (same as the pouchogram) #3 on April 20th, for my surgery on the 25th to fix the fistula. They are a bit uncomfortable, but really nothing too bad....
Stomski, hi again, yes of course you can do everything you did before, and you can do that with the bag too. Just a month out of surgery and you can start lightly, nothing over 10 lbs, then gradually...
Hey stomski! well im sorry you are having a time with leaks, i did too. Really it does settle down, you are still so soon after this surgery, you cant really look at what you have now because it...
Hey stomski, CONGRATS! Im where you are buddy, and usually the surgeon said he waits 3 months...im already 4 out but i have a complication, so im waiting to see if that will heal itself all up nice...
Mark- these questions would be great and might get a quicker answer on www.j-pouch.org, for people who are considering or who have had surgery...great place to go for any questions at all! ~Eileen...
Hi Mark, well i had a laproscopic j-pouch done, and i know from my surgeon they like to do the laproscopics only on those relatively young and relatively healthy individuals that come their way. But...
Hi rosemarie! well the spray makes the skin really tacky really quickly, as soon as you spray you can slap that sucker on...the wipes i havent used, so i dont have much to say on that. But i can tell...
Oh by the way, i use a two-piece system, so when i say let it dry before you put the bag on, that wouldnt be the same for a one-piece, youd just put the paste on the bag and slap it on, not really...
Hi rosemarie!!! Well i wish someone would have told me all this too, so no problem, any way i can help! As to the paste, you put it on the inside of the wafer, the way the nurse did, i must have...
Hey Rop! I am awaiting reconnection too...yey! I had my op (1st of a 2-step) on Nov. 16, and would have had it Feb. 16, but i developed a fistula right after surgery, due to surgery (thankfully not...
Hi Rosemarie! Well i have an ileostomy, just a bag on the other side, my whole colon was taken out about 4 months ago after unsuccessful treatment for Ulcerative Colitis. I had some awesome ET nurses...
Hi Mark! They generally do 2-steps 60% (what my surgeon told me) of the time, and the rest are 1-steps. These are reserved for people a) in relatively good health, b) relatively young, c) with long...
OOHOOOH, ME FIRST! haha, okay well i had UC undx for 10 years, all the symptoms and bleeding and all the nastiness. Then i moved to a new city and a good doc and finally got dx. After a year of meds...
Hi there! Well i had my first step of a 2-step on Nov. 16. They told me i would probably have a one-step, but of course they got in there and realized they couldnt cuz my small intestine was too...
HI! well i am awaiting my second step of a 2-step, so i have a temp ileo but i have my pouch already formed....while the operations are hard to recover from, you do, and from what i can tell, you are...
Hi everyone, Im jumping over from the UC board and read this initial post and would like to clear something up. IBD is not a sentence for colon cancer. After 8-10 years IBDers need yearly...
Hi guys! I had surgery in November of 04, and i have my 3-month check next wed, the 15th. I have had STRONG urgency, especially in the beginning, and i did actually lose it in my pants twice, but the...
Yeah Hey Depiro!!! Youre right, dont use ANYTHING but water to clean the stoma and the skin around it, because any residue from anything you use will prevent a good seal. The itching is usually a...
Hey Hopeso, great to see you in a different forum!!! Well i had most of my rectum removed, but they left a little, i think its called a cuff, to improve the chances for continence. I have talked to...
Red, I am a moderator on the UC forum, and so living with UC, i can understand why you are nervous. That and the fact that i have to decide within the next week which surgery i want. In my case they...