I am so sorry that you are having skin issues AND leakage problems. I know firsthand that either one of those alone can make life with an ostomy pretty miserable. Your body has/is going through major...
Thanks Joe! I'll definitely give it a try!...
Thanks for sharing your experience. It helps to know that I'm not alone....
No one knows for sure what is causing them. Some have suggested that since IC is an auto-immune disease (much like Lupus) that could be why I keep getting them. However, I have a different theory. ....
Yes, they are excruciatingly painful and will usually cause blood to come through the opening of the pouch. I've been getting these since 2000 and even had to have my stoma moved to my left side...
I would love to know what has worked for those of you who have dealt with peristomal ulcers. I currently have a handful of ulcers that I just can't get rid of despite trying everything that has...
Been thinking about you Rosemary & was wondering about your appt. tomorrow. Definitely keep me/us posted as to what he says. I hope he can shed some light on what is going on and what it will take to...
I hope, when you're able, that you find a good lawyer and you go after the dr that did this to you....
Hi Matt, I've been using Hollister since 2000, new image drainable, and have also run in to this problem. However, what I have discovered is that it depends upon your supplier. For instance, if I...
I dunno Rose, for me it would depend upon how specialized and experienced this dr is that you have an appt with on the 24th. If he/she is supposed to be the best of the best, then I would definitely...
Hi Cathy, My father had extremely bad neuropathy in his feet and was desperate for relief. He's 85 and recently found out he's diabetic. Anyway, I spoke with him last night and he said that he had...
Since I no longer have a bladder fluids leave my body pretty quickly, therefore making me much more prone to dehydration. I have to really force myself to drinks lots of fluids throughout the day and...
I also found out, a couple of weeks ago, about something called HA/CMC (Hyaluronic Acid/CarboxyMethyl Cellulose) that is supposed to reduce the incidence, extent & severity of adhesions. I have not...
http://patientadvocate.org/ http://adhesionsfoundation.org/ Rosemary, I came across these websites today. Maybe they can help you get something done. I believe that if you have at least one doctor...
Rosemary, have you considered UNC Hospital in Chapel Hill, N.C. http://www.unchealthcare.org/site ? I have been going to them, on and off, for about 9 years and they have some incredible doctors...
You will get more and more confident as time goes on. I would agree that it's really difficult to put on the pouch while lying down. What works for me is being in a sitting position (usually on the...
Thanks! I greatly appreciate your reply! I truly hate the thoughts of having more surgery for adhesions as I've been told that this next time will be an 8+ hour surgery. Have any of you heard of...
Found this publication about adhesions to be quite informative: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0013231/...
Wow, over 30 views and no replies . . .I'm guessing that this means that no one has experienced this or heard of anything like this before?...
Ridgeruner, that's actually a really good idea about how you are using the eakin seal. I have an urostomy and by the 36th hour of changing my pouch, the opening is already "turtlenecking" my stoma...
Rosemary, as I'm sitting here and reading your posts I've got tears rolling down my cheeks. The medical system IS neglecting you!! You definitely need a Patient Advocate that can take care of getting...
I also have a flush stoma and had major leakage issues when I first had my surgery done. I was going through about 15 pouches a day before one ostomy nurse turned me on to convex pouches. They WILL...
This is my first post here and I'm desperately hoping that some of you may know what the heck is causing this pain. I had my bladder removed back in 2000 and then had a revision done in 2005, which...