Hey all! For those of you with an ileostomy, which stoma guard do you prefer for being active in sports/activities - Stoma Plex or Ostomy Armor? Trying to figure out which one is better for comfort...
Sometimes I have gone straight through and sometimes I have been stopped...usually with a full body scanners. The last time I was stopped, they told me they needed to see the top of the ostomy and I...
Hi all, I have had complete liquid coming from my loop ileo for 4 days, even with Metamucil and Imodium. I also have lost my appetite, have occasional nausea/ bloating, more tired, and have very foul...
Thank you so much! And I hope your adaptation period is quick and you get back to living life as soon as possible! Keep us posted on how you are doing!...
GN, Post step 2 j pouch construction - does that mean you had the j pouch created now, are letting it heal, but have a temp ileo? (I am having a two step, not three, and just wanting to clarify on...
I hope your conversation this weekend went well. I was very concerned about telling my kids as well (they were 7 and 9 at the time). My surgery was unexpected so I had to tell them afterwards. The ET...
Hi all! I was recently speaking to a J poucher who told me it is very uncomfortable for her to hold it and that she worries about going on 45 minute car rides because she might have an accident. Are...
I have not had my takedown yet, but just wanted to say that I am sorry you have struggled since yours. There seem to be a lot of helpful, kind people on this site, so I hope one of them can provide...
No, my surgeon has not offered any suggestions. :( I have another appointment scheduled on Dec. 2 with him to discuss some last questions before takedown and I will try and talk with him about it...
I just changed my signature but it won't change on my post. My first Jpouch surgery was in Sept., 2013, not 2014. So I have had my disconnected j pouch and loop ileo for over a year....
Hi all, For those of you on this forum and the jpouch forum, please excuse the duplicate posts. I am trying to reach the broadest group for this question. My jpouch is still unconnected (have loop...
uc logic - I am thrilled to hear you have had such great success with your jpouch! That's wonderful! The reason I am questioning going forward with it is that I have had a decent time with my loop...
I agree. I have found that some positions cause uncomfortable pressure now, where others are just fine. And that is still after a year. So, we just experimented and found what works! I, too, think...
I actually had my surgery a year and 6 weeks ago...so plenty of time to adjust. I will have to look at my signature. :). I had read a lot of people waited 2 weeks after takedown to try anything, but...
Silent Lucidity - Yeah, that seems to make sense. I am hoping you are right for both of us. :) Good luck on your takedown. Keep us posted as to how things are going. Ryan - I am not sure where my...
Marianne - Did you take any meds when you had your loop ileo to try and slow things down? If so, then it sounds like although you needed meds with your ileo, you do not need them now... Thanks for...
Oh, man. So sorry to hear, Marianne. I wish I had an answer for you. It can be so frustrating to not feel the best you know you can be and not understand why! Hang in there and no you are not alone!...
Just wondering if anyone decided to keep their temporary diverting loop ileostomy and keep their non-functioning pouch inside? If so, how have things gone for you? Sorry for two posts...just two...
posted October 14, 2014 12:22 PM Hi all, Had my date with my surgeon yesterday and found out my pouchogram looked great. Now, it's decision time. My surgeon told me that the fact that I take...
Having a temporary loop ileostomy, my stoma is very close to the skin and pointed downward,so I use a convex wafer along with a Hollister adapt barrier ring. I also do crusting, even if there is the...
Thank you all for the responses. Unfortunately, my surgery was done when I was very sick (had already been in the hospital 3 weeks, on lots of pain meds, severely malnourished). It was a 2 day...
Silent Lucidity - I am hesitant about the takedown surgery because of all the complications/ issues I see online. There seems to be a lot! I have been very lucky and have done very well with my loop...
Hi all, I am trying to decide whether to stay with my current temp. diverting loop ileostomy that I have had for a year or to go ahead with my takedown for my j pouch. One of the things the doctors...
Jody, I am so sorry to hear about your struggles with C-diff. C-diff is what collided with my ulcerative colitis and caused an eventual full colon removal and temp. ileostomy. (Not sure I will be...
Thank you guys so much for your replies! I am about to head out the door on this adventure! I am going to take an insulated bag to keep with me when I go to the pool, etc. and will make sure to keep...
Good advice. Thank you. I'll look into the Medical Adhesive. And good to know you can get it at Walmart. Glad to hear that things worked okay in the heat when you were hiking. We will be doing a...
That's a good point! I hadn't thought about the fact that they were carried across country in trucks. I had thought about bringing a travel fridge but was afraid that might be too cold. I just...
Hi all, I am going to be staying in a cabin without heat/air in the Rocky Mountains for about a week and a half - leaving in a few days. Sometimes it can get to 95 degrees during the day and I have...
Gmark, My stoma is a loop ileo and it is round and pretty close to the skin. The exit is also at the bottom. My ET nurse in the hospital was great and she recommended the convex wafer and a barrier...
Yeah, it always makes me giggle to myself when I think that the person in the stall next to me must be asking, "Why am I smelling ______?" :)...
@Christine1946 - Wow, that sounds really scary! Glad you came through the allergic reaction okay. As for my heart, they are not sure what caused my heart to become tachycardic. I have had all kinds...
Thank you all for your responses! @ Pluot - I would have loved to have had time to research the j pouch surgery prior to my surgery, but as it happened, I got sick very quickly with C Diff, it...
I am 9 months post op with a temporary loop ileo and I have mucus discharge, sometimes off-white, sometimes greenish-brown. Might have it steady for a week and the not at all for a while. Of course,...
Hi all, I have been reading posts on this site on and off for years during my battle with UC since 1999. Last fall, I found myself very sick, in the hospital, and had to make a decision within 2 days...