i was planning to have my takedown in Nov-Dec 2014...
When i raise my concerns with my surgeon , he just thinks that because i have Fybro that i will be extra sore and longer to heal. I havent told my surgeon about the poop because i asked others on...
Hi Guys I am new here, i use to post on UC ages ago In december 2013 i had emergancy total coloectomy and temp ileo July of this year i had my second op , which was creating the jpouch I have a few...
Hi Anthonyv i havent been on here for a long time and i noticed your from adelaide Im also from adelaide and i was wonderings who did your jpouch?? Im having the 3 step and just had the jpouch...
Thanks guys for all your information They have taken me off Iv steroids and put me on oral but I feel im flaring again while in hospital ..I'm on 125gm of Imuran atm as well. I just wanna go home and...
Iv been in hospital for the last 6 days and caved in nd agreed to go on Imuran Since Iv been dx with UC Iv been trying to avoid taking Imuran Can everyone please tell me if u do gain weight with...
I was on Vedolizumab open label, so I was getting the drug and it didn't work for me. Which was disappointing. I thought it might be the drug that would give my life back...
Do u guys dilute the oil before u apply them on youself?...
i was on vedolizumab and it didnt work for me i know about 5 more people that was on vedolizumab and it didnt work for them either...
Well For the last 2 days iv been having a fever and extreme stomach pain and nuasea , so call the head dr of the trial on his personal mobile phone.. Told him what going through, first thing he asked...
hello , i havnt been on here for a while just wanted to see if anyone is on the vedolizumab trial i will have my 4th vedolizumab infusion this month so far it has not worked for me atm im suffering...
I really wish I can go on the trial your on now...
Fndcureforuc, where are you from? Have you any concerns doing this trial?...
ge0rge, im glad the trial drug ur on is working im suppose to start one next month but its vedolizumab here in australia adelaide but im keen to know about the one your on. seems ur one has less side...
its called vedolizumab man i have a crappy month, iv spent one week in hospital and im on my second flu for the month its 1:38 am in australia. i have a fever and coughing my guts out and running to...
is this the bar your talking about http://www.ffactorfoods.com/detail_fudgeBrownie.php...
i got the impression they want me on the drug asap and they need me to be on 20mg steroids sooner then later they said they want me be in a stable non flare condition , and then once im on the trial...
So I'v been made to taper my steroids real quickly So I can go on the trial drug. 50 gm for 5 days 37.5 gm for 5 days 30 mg for 7 days 25 mg for 7 days 20 mg and stay on that for the trial drug Right...
I have the same fears as you..my Gi wants me to go on aza I'm figure now I might try it if it might help me and give me some quality of life, also what made me change my mind is, girl next to me in...
Has anyone heard of this drug ?...
After reading eveyones replies , I must be a major sook and don't tolerate pain and discomfort well lol Thanks to all your support...
Omg thinking of having 10 year remission would be better then winning the lotto. Well I have my xray back from my upper abdominal and that's where the pain is and they said its full of poop!!! I'm...
Kori , I have uc and in hospital atm My Gi is looking to put me on this trial as well. She also said I need to be stable with my symptoms and on a lower dose of pred. But since I'm on iv steroids atm...
Butte1, welcome to the forum. This forum will give you so much support and info I couldn't find with my Gi. I really feel for your situation and I'm sorry your at the Point there suggesting surgery....
Iv been on iv steroids for 2 days but no improvement Is that normal? I'm a bit worried . The nurses said it takes 24 hours to kick in It's been more then 24 hours now and I'm still flared up I'm...
Butte1, I have had the prep enema and it burnt my butt whole And it caused some abdomen pain for me. But that's me though, not to sure if you will get the same reaction. I'm so inflamed atm , so...
Christine, I'm really inflamed as well hence why I'm in hospital now But my Gi came and talk to me and basically told me to suck it up and there just gonna put under twilight.. jerks...
Byebyeuc , it didn't hurt at all!?! Man I must have the lowest pain threshold ever lol...
I'm in hospital and they want to do a flex sigmoid I told them I refuse to get one done unless I'm put under Has anyone had one done with out being put under? I had one done when I was first...
Has anyone used the salofalk foam enema? It's like your spraying foam up it butt. But seriously its rocket propelled lol I can't seem to use them...
Bdwithuc , I didn't think about asking if any of the side effects are reversable, I will have to ask. While on the trial drug I don't think u can use other meds other then steroids . I was thinking...
I'm back in hospital due to a flare I'm so depressed and hate having uc My gi is offering me to go on the vedolizumab trial I'm just confused on what I should do I really wanted to try Ldn tablets...
makiaa i was wondering if your on the fodmap diet still...
i got a script for trans dermal ldn last year and it didnt do anything for me i got my ldn from a compound pharmacy here in australia the pharmacy i went to wasnt to sure how to make it up at first...
They didnt say what drug is being used just that you can enrol for clinical trials if you have Crohns I called up but they wont take anyone with UC...
They have a new drug they are trialing for Crohns, I wonder if this new drug they are trialing will be any good for UC...
Oh and humira and remicade isn't covered through our medical system here In Australia so it cost alot of money....
Guys iv been told my body is fighting 3 things C.diff , gastroenteritis and my Uc. Plus my blood levels are low So they have isolated me in hospital Have terrible stomach cramps from the gastro and...
Hi guys Thanks for your replies and well wishes Twiggs - I am very low on vit D , I'll look at that link once I get home I think I'm going to go to another gastro when I get out Just found out I have...
Australia Learnt more about Uc on here then from my doctors...
This is the second time iv been in hospital since I was first Diagnosed with Uc. Had major upper abdominal spasms with vomiting And nausea . Had colonoscopy today and said I still had pan colitis...
I was wondering if anyone gets Dyshidrosis Atm i have a really bad outbreak on my hands I never had Dyshidrosis untill i got UC i was wondering if anyone on here gets it and what they when do when...
I got my hands on some medical news here is what it says AGW 2011, Brisbane: In two lively but mostly light-hearted debates, it was concluded that chromoendoscopy was best for CRC surveillance in...
You hate UC sometimes only?? lol I hate it all the time just yesterday i had a accident while i was out picking something up for my husband! It was horrible and i cried all the way home!...
Do you think most people with UC have Low libdo??? My libdo is Zero!...
Update- Started on the 19 Aug So far im feeling so much better Still having a few BM In the Morning but the rest of the day im feeling pretty good with minimal BM My urgency is slowing down..still...
InSoFLa, its inflammation of soft tissue, and it throbs for days and the pain doesnt go away. last night i couldnt sleep at all, it was constant pain and throbbing the only can food i eat is...
InSoFLa, Thanks so much for your info, Can i ask you a qestion cos you seem to have a wealth of knowledge I keep getting a inflammed foot. i was wondering if that due to UC its either my ankle or the...
mom2panda, Keep us posted, I hope it works for you I asked my Dr about putting me on the combo therapy but she rather me try the LDN instead Fingers crossed for you!...
InSoFla, Thank you for your information, i find you are so helpfull! Im going to try the Dr. Mercola's Pro-Optimal Whey Protein you suggested I cant any meats but fish i can and i do eat tins of tuna...