Answers, so sorry to hear you're still suffering!!! I did see something that mentioned as to how electrolyte imbalance has a part to play in getting an ileus. I don't know if you're getting that too,...
I got the Stuff, but wondered about whether you can use it with Hollister Flextend. I remember something being said about the Flextend, that you can't use adhesives with them or something? Thanks...
Answers, OMG I'm sorry to hear that! I really hope you get better soon. This is something I wouldn't want to wish on *anyone* ever!!!!!! Prayers for your speedy recovery!!! I got out of the hospital...
Answers, I was thinking the same thing yesterday! Haha! So now everything is still pouring out, but not quite as fast and furious as yesterday. It's like now everything is working too well! That's OK...
Yes, and the doc said also that gastrografin creates some sort of reaction or something that somehow gets rid of the blockage and cleans house!!! Wonder why they couldn't have saved me a lot of...
I saw the doc this morning and he was all ready to consult with his colleague, my regular gastro dr. and talk about moving me to the main hospital with possible surgery! But I said, well, before we...
OMG!!! This morning is awesome! I have been gushing output like a volcano! My stomach has gone down to normal! Do you think it's the gastrografin that I got yesterday in the barium enema that removed...
virdent, love your words of encouragement! I'm trying to do just that, but it has been a pretty difficult thing to do. But I'm plugging away. Answers - I was vomiting bile the day I came here to the...
Also I'm getting TPN (nutrients), antibiotics, potassium, magnesium, all via IV. This is my 9th day here. Somebody who knows what they're doing better show up soon....
Well, since my whole gut swelled up the doc called it an ileus but she still thinks there might be a blockage. I don't get it either as to exactly what's going on. I haven't been allowed to eat or...
The fluoroscope procedure with the catheters and gastrograph didn't do much of anything; no removal of blockage, no rinsing out of output, just some confusing pix of the gastrograph not going...
Well I just got an un-contrast CT scan (without the dye) and then I'll get one with gastrograph! Finally! I am feeling better, still have swelling and lots of rumbling and a little pressure and pain,...
Yes, a little, but I wonder if it's just the water that goes into me from the lavage which I get twice a day. I can't imagine that there's much left in me, blockage or not. I am getting a picc line...
Answers4me2, I'm not getting an NG tube; it sounds like you were in terrible agony with this and just as frustrated. They might end up giving me a picc line but at this point we're waiting for the...
Blueglass, I've been in the hospital a week and when I asked the nurse about the gastrograph, she said they give it to a lot of people and that she would ask my doctor about it. I probably could have...
Oh, forgot to mention they didn't do an NG tube. But it's still Awful! I hope you get better soon too!...
Blueglass, yes as it's turned out I do have an ileus! This is one of the most awful things ever!!! I have bloated up like you said and I think I'm over the worst. The swelling seems to have gone down...
Still in the hospital after almost 5 days... Still getting irrigations...it's getting better slowly. I'm so impatient!!! Wondered if any of you have ended up in the hospital from a blockage... How...
I'm getting this but it turns out that it's cheaper on Amazon (marketplace store) because from drugsdepot.com, even though it's only $4.49, the shipping from CA to VA is $8.XX so I'd end up paying...
Ohh wow!!!!!! I REALLY wish I'd read this before!!! I am in the hospital with what seems to be a blockage. But it's like my whole small intestine is swollen up, not like you can see specifically...
So when you put the second coat of the benzoin around the stoma after the wafer is applied, I guess it must be a very narrow second application? Does it matter if you get it right on the stoma? Also,...
Thanks for your reply Virdent. It sounds like I'm not the only one with this problem, but I will call the ostomy nurse again just to touch base. No, we don't have medical marijuana, but regular pain...
(I have a temp ileostomy, since mid-November. Will get it reversed in June or thereabouts.) Seems like the stoma is sinking into the skin, or the bulge around the stoma is getting larger, or...
Hi Patrick, I have a temp ileostomy as of 3 months ago, have got about 3 months left before it gets reversed. But Yeah, I do have sudden feelings of dehydration and tiredness, which is frustrating...
Hi Donutz, Yep, I have that too. The latest being this morning. I was in excellent condition before the surgery (temp ileo) 3 months ago, but since I lost 15 lbs. after surgery I'm sure I lost muscle...
Thanks ladies, I think I will order convex samples like what you've suggested, I'm coming off 3 days of using one of the last cut-to-fit flat wafers and the larger flange size. I've only got 2 or 3...
HI Ann, Thanks for your answer. I'm thinking everyone who has answered me in other posts are like "oh man, here she goes again..." LOL Well, I've read from the Hollister web site that your wafer...
I have a few questions, not knowing much about all the products and looking at unhelpful websites. I'm 2 1/2 mos. out of surgery with a temp ileostomy. Bear with me, please...
Haha, Stripey I bet I read your solution for the bag elsewhere, I'm sure I didn't come up with it on my own! So this morning, I changed the wafer which I hadn't done since Thursday. One week plus...
Ohh, yeah that's just what I did, went back to work two months after surgery. And I'm still feeling icky; some days I feel almost normal and other days I feel like crap (haha, literally!) All I've...
'Morning all. I have a temporary ileo, due to get reversed in a few months, June or so, I guess. Stripey, I think that was the main reason for not lifting yet, according to the nurse, hernia risk....
Hi y'all, me again... In the hospital, the WOC nurse said I could do anything "except" for karate, boxing, and ... heavy weight training. Well, that last one is exactly what I do. Does that mean for...
Hi Eva Lou, Oh, OK - didn't realize it would take that long to heal. I have a temp, due to get put back in about four months, so I guess technically it might not be totally healed before they do it....
Well, I'm a newbie and I have pouches with filters only because they sent them to me as samples and I'm using them just because they're free. I ordered new pouches without filters, except for the...
I'm far enough out from surgery now, 2+ months, that I think all that healing is done. But I still have all kinds of weird pains, heaviness, achy "upset stomach" feelings in the stomach &...
Oh, you know I just figured that same thing out this morning! I know exactly what you're talking about! The top of my underwear is just under the bottom of the flange also, with only just the...
Stripey, I've worn pants without the stoma guard belt for the past couple days and it works ok so far! :cool: so instead I've started wearing the regular ostomy belt but it's weird, because it sort...
Yep, I'm a newbie too and have been trying the Adapt lubricating deodorant. I like it, and it's not irritating my skin. However they gave me a product in the hospital which I bought more of, it's...
Good morning y'all! Another nice night without a blowout...except that wasn't too hard to do since I hardly slept at all. :( I'm happy to get so many useful replies! Thank you for all of this! So......
Hi all, went through 3 nights of NO BLOWOUTS, happy! :) Haven't been snacking on a lot of chips/crisps during the day at work, haven't eaten snacks after dinner, have been drinking more water/liquids...
Phew. Got through last night without a problem. One thing I meant to mention is -- the blowout three nights ago was actually with a bag with a gas filter. So it didn't seem like gas would have been...
Well, it just *almost* happened again, this afternoon!!! I was coming home from work, had to stop at the store, and when I got home and changed clothes I could see that the output was heading toward...
Oh, so far I haven't heard of a bigger bag, at least I haven't seen one from Hollister. Where do you get them? But it's not the bag itself that is blowing out, it is from around the sides of the...
Hi, So I have a temp ileostomy (2 mos. into it now); most of the time I can cope. I wake up at least once per night and have to empty the bag and have not slept 8 hours in a row since coming home...
Def get "hot" by then -- oops...
I received the Stomagear guard yesterday. I adjusted the belt like the directions said, put it on and tried on all my pants. My (smallest) jeans that I was wearing prior to surgery were tighter but...
Hi, Ok so it seems that one pair of my jeans hits right across my stoma and if I am careful I guess I could wear them; once I get the Stomagear guard I should be ok. My dress slacks for work I...
Hi y'all, had a temp ileostomy done mid-Nov and found this forum. So far I've been wearing leggings but I'm going back to work soon and want to wear my existing pants. The stoma is just below my...