As others have said its different for everyone. Some are ready to be up and out a month or two after surgery, I still have issues 3 months post takedown. My surgeon says because my body went through...
So, what am I doing wrong? I follow the same routine as most do here, cleaning with TP after emptying, and I feel like I smell myself all the time! Fresh bag or not!...
I'm grateful for the rod, seeing that I had to be re admitted for dehydration so quickly after surgery (I've since learned to drink even when I'm not thirsty!), but it is most definitely...
I am ab 2 weeks post op with my ileostomy and I've only had to change it once due to my having home health and had to be re admitted for dehydration. I have a rod under the stoma currently to protect...
Answers- j pouch is for UC....
I am currently 7 days post op with a loop illeostomy. Everything is going pretty swimmingly so far, my surgeon plans on discharging me tomorrow, but I have one concern; I feel like my sphincter...
Oh dear KTJ757- we are similar stories and my heart breaks for you. I had my sweet boy in October of last year and haven't had relief since. My GI and I decided after months in and out of the...
Wow! Props to your body for lasting this long! I did a year of prednisone and if I hadn't tapered off when I did I have no clue how I would have handled it. my body (and mind) was done with it! The...
So, I've been playing around with the idea of sharing my journey through my upcoming J-pouch surgery via vlogs on YouTube. I don't know about yall, but I enjoy watching other people tell their...
Thank you all! Every day it gets closer, I get more nervous. I just try to keep reminding myself that they don't poop blood multiple times a day, or have had to be on various doses of prednisone,...
Thanks yall! I've gotten a lot of flack from people outside of my family. I don't think they understand what us UCers go through, they think I just eat bad and have an upset stomach. Part one is...
Well, met my surgeon and scheduled step one of my surgery. Is it bad to be excited?...
I'm FINALLY tapered off of prednisone! Now I'm wondering if I'll ever get my focus and memory back? I feel like I am incapable of carrying on a normal conversation with someone anymore! I stumble...
I'm finally in a place where I'm not sick in bed (or on the toilet) all day, and I'd like to start adding some mild exercise into my daily routine for several reasons: *Stress reduction *Lose weight...
Was given a 15 day sample when I had C-diff, however I couldn't get past the taste more than a few days. I tried mixing it with several different things; teas, yogurt, gatorade was the most...
Kiptyn- I have exhausted mesalamines. With each flare my dose of prednisone has to be increased and tapering is just not easy, I shake so bad all the time and I feel like my brain is broken. Recently...
So after a battle with C-diff in May and June, I found out that I've developed antibodies to remicade. A secondary doctor (by that I'm referring to a second GI my personal GI called for a second...
I just went through a similar time and it was horrible! I hope you get the C-diff under control with Dificid. Pain killers slow down the gut, which creates a breeding ground of the bad bacteria, I...
Sadly I have yet to find a good remedy for steroid induced insomnia. I have been diffusing essential oils though, and they do help me relax at night. Lavender and cedarwood are currently my...
So I tested positive for cdiff about a week ago and started a 14 day round of vancomycin. Normally I treat my flares with narcotics to slow the GO and treat the pain, however, with cdiff obviously...
I had hydrocodone today before I got the results from my tests back. I have tramadol and ativan, maybe I'll try those if the pain gets too bad. I'm actually not in a ton of pain today, which is...
Update:: had another cdiff test, which came back positive. So now we are going to treat that and go from there... my question is, can I have cliff and be flaring too? I feel like I've read that cdiff...
Thank you everyone for the encouraging words and suggestions. I will try the canasa again... I just have to find them lol. I go for a second opinion this week, maybe I'll ask that doctor about rectal...
I have exhausted Humira and Enbrel already with Still's Disease. The issue we seem to be having is finding a medication that works against both diseases. I've had great success with Kineret to...
I have, nothing has shown up abnormal with it thus far. I'm getting the paperwork ready to be checked for Remicade antibodies. Apparently where I am that is a very specialized test and they have to...
I apologize in advance if this isn't the place to post this sort of thing... I'm just not sure what else to do at this point. I've basically been flaring for about a year. It started at some point...
Hello friends! I've been a lurker for quite some time, but this is my first post. I am currently 33 weeks pregnant, my last flare was in Feb '12. Before becoming pregnant, I was taking remicade, but...