Hi I feel the same as you most of the time,,, Its tough its a hard thing to live feeling miserable an lonely bored an like nothing much makes you happy except simple things which yo cant do all the...
O yea I get very nervous about all appointments that I end up wanting to cancel it , but I dont cancel it, I have anxiety anyway though so its not strange for me to feel nervous and Id think anyone...
I had a colectomy 2017 was an emergency so maybe it will be different in a planned colectomy, but I have some pains from where they cut my muscles I think , its not that bad just if I move too fast...
I had a colectomy last september it was an emergency though as it perforated , Im not on any medication as I dont have crohns anywhere for now atleast and my gastro doctor told me its not likely to...
I just use toilet roll to wipe the stoma an all skin around it...
I wonder why this happened,, tonight just now I had pain come on in my rectum which I have never had before except very slight pressure feelings before,, I felt like maybe It was because I needed to...
I dont think it would be a problem for the skin as it has a flange on all the time anyway keeping the same one for longer shouldnt hurt anything , iv read on other places people saying you could keep...
Yes it could be from drinking yep, i have been drunk a few times since i had my ileostomy and the following few days after I get some indigestion issues acid pain after eating type thing an extra...
Maybe juice the veggies an drink them so they wont have the fibre just the vitamins , no bits that way, you dont need the fibre anymore , I dont have your problem though , I dont eat alot of healthy...
most days I dont have a colon anymore so dont think its bad for me...
Hi sorry your suffering like this I dont trust doctors what they say they didnt diagnose me with crohns for ages and then I feel didnt realise my problems with so many tests when it got serious they...
When I cough i dont feel like i can cough as hard anymore since my surgery, It feel bad on my stomach if i try coughing as normal...
I dont think I get dehydrated I sip on juice alot in the day drink alot of tea when Im at home but dont drink more then before i had the ileostomy, I was told to be careful about dehydration as Ill...
Hay thats good that youv seen a difference :) Im not sure how much you should take but not anymore then the packet says your allowed, I take 2 tablets only when I want to not have to worry about...
Ya I think dehydration can cause your heart to go fast, cause when in hospital when I had some tachycradia they kept telling me to drink lots of water, an when I had to go to hospital because of a...
Im not against medication im sure it can help some people although it never seemed to do much for me, luckily I never had any bad side effects although the worse thing was that many anti depressants...
It was gradual recovery process for me very gradual to get feeling stronger , I kept noticing myself getting better and stronger each month an 6 plus months after surgery I felt better at 6 months...
I know what you mean at first I kept wiping that fold up bit loads people said to me i dont have to so i dont anymore only wipe the first small part an it doesnt make a difference it dont smell, but...
Well the main problem is smoking so maybe buy her a book on stopping ? Its so hard to stop smoking but if she want to she can, i understand her not wanting to let a disease rule her life choices ect...
Ya your meant to drink more so they told me but I drink mainly sugar free squash and tea , i dont drink hardly any water and im always fine even though i have no colon , so it dont have to be water...
Yea i got very depressed in the hospital after I had my ileostomy i had it in an emergency , well at first I was happy to get it I thought its good and will be convenient not needing to go to the...
O yes you wouldnt go through another surgery to make a stoma again if your not suffering that much I wouldnt anyway, My rectal stump is still acting up most days now so its probably a very bad idea...
Thanks for that :) Ya its permanent which is why I am mostly worried that I might feel regret after its removed as Ill never have any option for going back to a more normal body ect , But I guess...
I saw my gastro doc nicecup an hes is going to do tests soon to check my rectum, i know its probably gonna come back with bad results as i keep having flare ups of what might be crohns in my rectum,,...
I just got a slow masticating juicer it was a cheaper one £59 but works fine i decided not to buy an expensive one as i didnt know if id keep up using it for very long , you can find cheaper ones...
Iv always had anxiety since i was a kid but wouldnt think anxiety causes crohns but crohns can make you anxious not knowing what the future holds...
I havent found any studies done on just nicotine alone so i cant say i would guess its not good for you though but they say its bad for healing but i always healed from cuts ans scraps at normal...
Im a girl i tuck mine into my knickers, they are big knickers lol and not tight on me so it isnt pushing the bag tight against me anyway an it holds it up for me, i dont like to leave the bag hanging...
Ya same here i dont think i ever had fistulas or anything in my rectum an if i had it in my rectum all along which i must have done it wasnt that bad, only had urgency feelings a few times a day an...
I have took it sometimes the same way as you when i had a boil an found it made it better by the next day, if i dont take tumeric the boils i get take ages an ages to go on their own, so it seems to...
Thanks ncot , I want a reversal sometimes though even though it would be a risk i think i might just do it an take the risks but then other times i think no thats foolish ,but you still have not had...
Maybe consider getting a dog or other pet for company? They bring in dogs to old people to help them feel better think its meant to be helpful for depression to stroke a dog , I dont have the same...
I have been feeling anxious about what will happen if crohns comes back again, last time i got sick suddenly i think because of a stomach bug brought it on,, as partner had a stomach bug too at the...
I dont think diet causes crohns , some people were vegan for years anyway then got crohns, why do some people eat terribly an dont get crohns but others who eat better do get it, doesnt make sense to...
Mine is 28mm but its an ileostomy so they are normally quite a bit smaller then colostomys iv heard , if your doctor says its ok im sure you have nothing to worry about...
I may have had crohns while pregnant but didnt know it at the time just thought i had ibs or something an with any blood i thought internal hemorroids i didnt want to get it checked out, so probably...
I am seeing my gastro doc soon actually so he could refer me for second opinion you mean ? He is much easier to talk to then my surgeon actually i feel he lsitens to me an dont talk over me well my...
no i havent asked for a second opinion i am not sure how to do that even lol an plus i would feel abit rude about saying that having social anxiety i worry about thiings like that an dont like to ask...
I only had mild symptoms for years an years an didnt think much of it so didnt decide to get it checked out even though that was stupid, they dont normally diagnose people with crohns an then it...
The only thing that gets to me about having it is mine is not a perfect one its still sore as had complications with mine an the doc says he wont do anything to fix it as its too dangerous to do...
I dont think there is anyway to stop it coming out , A girl on a you tube video i saw said she gives herself an enema sometimes to get rid of alot of it if she is having alot of it,, maybe you could...
Maybe one day there will be something new to make life even better for people with ileostomy although i cant think of what it would be an having stoma isnt too much of an inconvenience from my point...
Maybe take some immodium and use a bigger bag an dont eat too much either , wow your poor hubby has had/has alot of problems but good for him not letting it get him down...
have mine for life im pretty sure and i dont mind now was pretty depressing before though but its nothing compared to some others problems...
Have you tried mangos they dont seem to affect me an i was told they are fine to eat, im sure you can eat most fruits but peel the skin, i dont bother eating much peeled fruits though as most of the...
I dont think stress/depression will cause cancer its more likely eating red meat will cause cancer, i dont know i havent researched it but why would lying down after a meal cause cancer, babies lye...
I dont think coffee is bad but if your sure it was giving you problems then dont go back to it, I am sure after so long your body is able to cope fine without caffeine now , it sounds like your...
You wont need to order supplies before surgery they wouldnt send you home if you didnt have stuff they will give you supplies when you leave hospital , when your in hopsital the stoma nurse will...
I feel down more when i have more pain its normal i think , i dont wanna be in pain i want things to be simple an easy an have pain free life , it isnt terrible pain either but just knowing it wont...
I lay on my stomach sometimes but i dont think iv ever fallen asleep that way as im still too nervous about the bag maybe bursting but i assume its quite safe to lay on your tummy as it never hurts...