Thanks for your response, Pombear. I will give juicing a try. It's not as satisfying to take in juice rather than solid food, but I can get the vitamins that way. Take care, Lynn...
Hi all, I am 52 and I have Crohn's Disease. I haven't been on the forum since before my 2011 ileostomy surgery. The ileostomy gave me a new lease on life, and allowed me to regain my health. One...
Thanks for your response, NewShinyCD. Im trying the Hollister 1 piece pouch with filter, with an Adapt ring, and a little stoma powder for skin irritation. I cut a 2 inch Adapt ring in half and...
Im a new ostomate, having had proctocolectomy surgery 4.5 weeks ago. Ive been using the Hollister 2 piece, which Im happy with. I also have some 1 and 2pc samples with filter that Id like to try....
Christine, Ive seen some of your posts about your lingering issues. I also hope they will be resolved soon! Its a shame for ones backside to still cause problems when its no longer functional. Could...
I havent posted on this forum for a while, but i decided to have surgery, and had a total proctolectomy with end ileostomy on Jan 3. Ive had Crohns for 12 years, and have been through the ringer...
I just got a seton three weeks ago for a fistula coming from my rectum and exiting my left labia. It actually branches off a recto-vaginal fistula. I'm afraid that if I try to do anything active,...
Thank you for all your responses! it does make perfect sense to go with the colo-rectal surgeon because of his expertise. ive been in a downward spiral the last couple months, dealing with two...
Has anyone had a general surgeon do their proctocolectomy and ileostomy? ive talked to a general and a colorectal surgeon, who both say they can do it. i have a feeling i could get on the general...
hi christine, allergic reactions to cipro are not uncommon, especially swelling of the achilles tendon. a year and a half ago, i was taking cipro, and my knees and ankles swelled up, and i got a...
Thank you all for your responses! I appreciate all the encouragement and positive thoughts. In one sense, I feel like having a proctocolectomy is "giving up," in my particular situation (please don't...
Hi, I've had Crohns for 11 years, and my right colon was removed 3 years ago. Since then I've been on Remicade, then Humira. Remicade worked really well for a while, then stopped being effective....
Hi NDBC, I've been having similar problems with fistulas, so please know you're not alone. I've had a rectovaginal fistula for over a year, and an abscess that turned into a fistula coming through my...
ivy6 and ohio76, thank you for your advice and positive thoughts. i'll repost at the ostomy forum. lynn024...
scrapgirl i started having hair loss a couple years ago, maybe due to anemia or malnutrition. i could tell it was falling out more than usual. about 10-20 percent fell out. i did some research and...
Ive had Crohns for 11 years, with my right colon removed 3 years ago. since then ive been on remicade and humira, and been on and off the SCD diet for 8 years. i developed rectal ulcers, skin tags,...
exit 4, Thanks for your reply. Sorry to hear about your bad experience. Be well! lynn024...
Has anyone tried either of these? I have a rectovaginal fistula, and my doctor has told me about IV cyclosporine, which requires a 5-7 day hospital stay, and has a 50 percent success rate. I've been...
Peace08 - just to clarify, I've never had any flu shots. I was taking Cipro for complications from Crohn's. Good luck....
I can relay my experience with Cipro. I took it on one occasion, and I couldn't raise my left arm more than halfway for a week, because it was stiff and painful. The second time I took Cipro, I had...
I've had 10-20 percent hair loss over the last few months, which I believe is from Humira. I've been taking biotin, selenium, and PABA, and have noticed less hair falling out in the shower or just...
Hi Stef17, thanks for replying. Sounds like you're paying enough! I don't have a deductible, but my yearly cost would be $4800. Although Humira is working for me since I did the starter shots, I...
I just started Humira in December 08. I was informed the cost for the starter kit, followed by maintenance shots of 2 per month would be completely covered for 7 months using a co-pay card, then $50...
Interesting ... my doctor hasn't mentioned any topical treatments at all. Maybe my condition is too serious for that? -- lynn024...
Thanks for the reply, Nanners. I take Solaray Acidopholus, which has 3 types of probiotics. Anyone else with rectal ulcers who can share their experience? Thanks -- lynn024...
I’m a 42-year old female. I’ve had Crohn’s for 10 years, and was diagnosed with UC for 10 years previous to that. I had my right colon removed in Feb 07. In Oct 07, I had a colonoscopy which revealed...