Hey Gongs, I don't take any medications for diarreah, I am doing FINE in that department. I just take maintenance drugs for Crohns Disease (Asacol and Humira). My stomach looks fine, there is a scar...
I am on Humira and so far, it has been fine . . . I am a little concerned about all of the problems and the lupus that others are experiencing. I will definitely keep attuned to my body changes!...
Googs, You should talk about this with your doctor, but I would think that you would be fine in five months . . . I was fine after three weeks, but my story is a litte different. Congratulations on...
Fall Colors and Guy . . . I just had my ileostomy reversal surgery with Dr. Orkin, he's terrific. I live up in Takoma Park, MD, so I have been seeing the Docs at Capitol Gastroenterology up in Silver...
Hi Guys, So, it really seems like this "falling apart" is a more common occurance than the Drs. like to tell you. I have posted before on the list about my sad story . . .it's about the same as you...
Rebecca, I live in the DC area and just had major abdominal surgery (reversal of ileostomy, hernia repair and repair of fistula to my stomach). I interviewed Dr. Eckhauser at Johns Hopkins (supposed...
Basil, I have had every test in the books. I would DEFINITELY go for the pill cam . . . it's easy to swallow and I had no problems with it at all, and it delivers a much more comprehensive look at...
Potato chips in British speak...
Best of luck and wishing you good news!!...
Jersey, I don't think that a leak in the resection can "fix itself" . . . if you have all of these abcesses, your Dr. should order a CT Scan to see what is going on in there! (That's just my two...
Also, if you have ever taken Prednasone (steroids), it makes you suseptible to osteoperosis . . . my doc prescribed Boniva when I had to have heavy doses of pred....
Actually, there are lots of tips about how to prevent leakages . . . they are pretty common. Every person is different and the ways to prevent a leak will come to you with experience (I hate to say)....
Hey Jackie, I will keep your dad in my prayers . . . I know how hard it is to be going through a "bad patch", but I am sure that the Dr. will be able to get it under control. Post anytime, and let us...
emrose, best of luck with the trip . . .go for it. As long as they have an ER where you are going, it sounds like your husband is really wanting to make the trip and it would be "good medicine" . . ....
Hey jmm, I'm glad that my experiences might help with your dad. This forum has been great for me also, in terms of knowing that there are others out there who are going through similar health issues....
Hi jmm, Gosh, it does sound like your Dad has been through the wringer this year! He is SO fortunate to have you as a care-giver and advocate. My husband is a RN and he was totally indispensible when...
Hi jmm, This is Blossom (Peggy). I am a 59 year old woman who has had crohns disease for over 30 years. I have about one-third of my colon left (I don't know how many feet that would be). The...
Yes, the Dr. would prescribe prednasone for a flare, whether it was crohns, ulcerative colitis or IBD . . . steroids are a terrible but effective drug. I hope that both of you are helped and have a...
Just to add to these posts, I had my reversal on November 3rd, after having an ileostomy for 10 months. I have about one-third of my colon left (how many feet would that be?). Right after the...
Rosie and mom9mom, I also had to have emergency surgery when my bowel resection started leaking into my body cavity (I wonder how common this is??). I was in ICU and hospital for 6 weeks, then home...
Rosie, Thanks for keeping us posted. I hope that this will be the LAST surgery for your SIL, and we're all pulling for her! Let us know after you visit today. Blessings, Blossom...
Really interesting how different folks have reactions to different alcoholic beverages!! So, I saw my gastroenterologist and he's really happy with my surgery results . . . I am now only on 6 Asacol...
Thanks for all of your posts and cautions! I just saw my gastro doc today and he cautioned me to try one glass of wine and see what happens. He did say that alcohol and coffee are the two big no-nos...
Rosie, I, too, had emergency surgery when a bowel resection started leaking into my body about 5 days after that initial surgery. I had peritonitis and was in the ICU for a week, then the hosptial...
I am currently recovering from ostomy reversal surgery and I have no Crohn's symptoms at the moment . . . maybe because my colon was out of commission for 10 months? Anyway, I am adding back foods...
Amanda, right after surgery they will have you on heavy-duty pain meds (I was on morphine) and I could not feel ANY pain /community/emoticons/smile.gif I just now got back from having all of my...
Hi Ritas, I think that I only have about that much colon left, and I just had a reversal. I know that from reading older posts to this forum, some folks have much less than that and have had...
Hello Forum Friends, I have just had my ileostomy reversal on November 3rd and I thought I would post a few tips that really helped me through the surgery and the days in the hospital. I am now home...
Thanks Peggy!! I am actually a Margaret, named after my grandmother (Margaret Franklin Blossom). . . but both of us always were called Peggy....
Thanks to all of you for your encouragement and for sharing your own experiences. I do find that the doctors are never really aware of all of the discomfort and real-life issues that we all face. As...
Hello All, This forum is wonderful for offering advice and support. I have had an ileostomy since January, when I had emergency surgery after a "routine" bowel resection that fell apart after four...
Thanks Ohio . . . I will try to post a new subject line tomorrow. More later!!...
Hi All, I am scheduled to have my ileostomy reversal on Monday, November 3rd (only 6 days away!!) . . . and YES, I have already voted (USA). I have two-thirds of my colon still, and they will attach...
I don't have pain, but I have to wear a hernia belt to keep me from bulging out and I can't lift anything at all. . . My doctor explained that the big problem with a hernia is that your intestines...
Thanks for your support LOL gal . . . . I will keep you all posted. To tell you the truth, I'm terrified of another surgery (since that bowel resection went so bad), but I have lots of folks praying...
I have a major hernia due to the emergency surgery that I had. I had to have "open wound" healing because my bowel resection fell apart & I got peritonitis. I am scheduled to have the hernia repair...
Hi All, I am scheduled to have my major abdominal hernia repaired on November 3rd. I got the hernia from having open wound healing from emergency surgery (my bowel resection fell apart), so it's a...
Thanks so much Ohio . . . I really am struggling with the decision . . . both my gastroenterologist and my colo-rectal surgeon are urging me to do it and think it will be successful . . . but I...
I have had an ileostomy for ten months now and I must say that after the first few months of getting used to the bag, and how to manage it well, it is really OK!! No one can even tell that I have an...
I have had CD for over 30 years and never had a surgery until last January. I had to have a "routine" bowel resection due to scar tissue that was discovered during a routine colonoscopy. I had the...
I live in Takoma Park, MD . . . . known as the "Berkinstock Capitol" of the DC area, lots of old hippies and liberals like me . . ....
I use the new Coloplast Sensura 2-piece system. It works the best for me. However, I know in our Ostomy support group, many folks use the Convotec 2-piece and like that the best....
Dear Praying4Healing, So terribly sorry to hear about your worst day ever!! I have had an ileostomy for 10 months and I had periodic blowouts for the first 5 months, but I went back to my ostomy...
Takoma Park, MD . . . outside of Washington, DC...
Thanks Rosie! I am a totally new member and am just learning the protocols . . . Pibbin, wishing you all the best and a full recovery!!...