If you have any anxiety you should visit www.j-pouch.org because it is full of useful information! There are thousands and potential j-pouchers and people who have already gone through the procedure...
Hi, I also have a temp ileostomy, but I will have mine for around 9 months by the time things are said and done. I regularily get around 6 days wearing time out of mine now that everything is healed...
Hello! It's totally normal and I found that time, more than anything else, helped resolve the problem. As your small intestine gets used to it's new job, the gas will start to go away and eventually...
I think a lot of gas is normal after any revision to your ileostomy because things have to wake back up and get used to functioning again. I think in 2 weeks you'll be feeling much better. In the...
Primal Defense is the name of the Probiotics made by Garden of Life. They are expensive if you live in Canada. Ordering on-line can save you up to $20. Here is a web-site that lists the product...it...
There are Probiotics under the brand Garden of Life, they are specifically designed to target people with intestional difficulties. You can order them right online are purchase them in not...
I am a teacher too! Yes, if you are going to be out of the house for an extended period of time it is a great idea to keep a complete travel kit with you. My ET nurse gave me a little Hollister bag...
Pam?! What a good idea...that's one I might even try myself! I agree with Martha, this site is wonderful because there really is no question that you can't ask. /community/emoticons/smile.gif ...
Sometimes that happens to me and it's usually when I've eaten things that tend to thicken the stool. Have you tried just gently running your hand over the bag and stoma to work the stool down when...
Is it stool or is it mucous? It's unusual that it is only starting now since he's already had his ileostomy for a year. That along with the stomach pain might warrant visit (or at least a phonecall)...
It does not hurt to get your staples out, in fact you will probably feel better when they are gone. I found that they tugged on my skin and made sitting in a car very uncomfortable because of all the...
Bag lady, I saw my surgeon yesterday and he said that my stomach/ostomy should not be that active before eating in the mornings so he prescribed a drug called Ranitidine. It's used to reduce the...
Hello, I reading another post earlier today and something in there caught my eye and got me thinking! I was wondering how people's ileostomies function when they wake up in the mornings. Ever since I...
Judith, If you give me your email address I can scan a copy of the diet for ileostomies and email it back to you. If you are not comfortable doing that you can go to www.jpouch.org and there is a...
There are way too many young people who have to deal with such difficult health issues....and I am also one of them! I am 24 and I had a total colectomy on March 13th, so right now I have an...
Harry, It is a scary thought to have a permanent ostomy, but I think after the initial shock of the surgery wears off and you are on the road to recovery you will realize how much better your quality...
Hello :) I have had an ileostomy since March of this year. I had it in order to get relief from Ulcerative Colitis and a constant cycle of prednisone and imuran which eventually became completely...
Hello Tintin, It is sad but true. You have to stay on medication in order to prevent the Crohn's from recurring. I was on Imuran for several months in order to treat Ulcerative Colitis and...
Hello, It is possible for you to use a different kind of cream that might work as well as oral antibiotics? Maybe something to take the sting of the irritation away. If your doctor says it's okay I...
Michelle, I am 24 years old and had a total colectomy in March so I, too, have an ileostomy. The goods news is as your body gets used to having this surgery your body sill start to produce less gas....
I think it takes your body a while to adjust to the way things are now. Your large intestine used to absorb a lot of water and now your small intestine has to adapt and get used to absorbing some of...
10 days is a bit long. think of how your body sweats each day. The most a base should be kept on is 7 days. I'm surprised you made it to 10 without having the seal start to come off or without a leak...
Hi guys, Just a question for you. Is it common to have rectal pain after an ileostomy. I have noticed lately that I have pain, especially when passing muscus from my rectum and sometimes it is tinged...
I am glad that you are feeling okay from your surgery. The bloating is normal, you just had major surgery and a lot of manipulating of your insides has occured! It is natural for your stomach to be...
Hello, I had a total colecctomy about 5 weeks ago. Yesterday I woke up, changed my bag(i wear a shorter one during the day) and noticed that my stoma was bleeding and a bit inflamed. By then end of...
Danielle, Make usure you ask your surgeon all of those questions! Sue is right, talking to someone one on one can also be very helpful. I know of a few people with permanent ileostomies so I have...
Hello Danielle, Although I cannot relate to the colonic inertia aspect of your difficulties I can relate to the not having a normal life from day to day. I am 24 years old and I just had a total...
Thanks Shaz! I guess it's a good thing that I'm starting to stress over little things instead of big things, right?! I must be healing or something /community/emoticons/smile.gif . I will try the...
Okay, so I'm at the point now where my staples are healing enough to allow me to saran wrap the bandaged portion and have a shower...which brings me to my question: What is the most effective way to...
Thanks so much for all of that useful information! I am already starting to feel more confident with things. I had a homecare nurse visit me today and was pretty much able to change my appliance on...
Hi everyone, I have been out of the hospital for just two days now after having my large intestine removed to rid me of Ulcerative Colitis. The surgery went along smoothly and there is a good chance...
Thanks so much for your words of encouragement, they have really helped to ease my fears! /community/emoticons/smile.gif I know I am making the right decision and I'm sure adapting to my ileostomy...
Thanks for your responses. Wow! I was thinking I would be on soft foods for at least a few weeks, but it's good to know it not be quite that long. Sue, I am going for the epidural so pain management...
Hello everyone, I was just wondering if/how your diet changed after your surgery. How long were you on soft foods before you started introducing other foods into your diet again? Did you notice any...
Thanks so much for all of your comments! I am feeling better and better about my decision and I am going to go into this surgery with a positive attitude. It is nice to speak with people who have...
Thanks for your comments, Skinsfan, I actually have Ulcerative Colitis and not Crohns so the possibility of it coming back once I have the surgery is slim to none...that is about the only good part...
[b] the surgery but I know it deep down it is the right decision to make. I am 24 and have been fighting the disease for almost 8 years...the last two of which have been a constant roller coaster of...