I have had PD a few years and my main symptom is my toes curl up when I walk (which my dr. says is dystonia, a common presenting symptom of PD). It is especially bad when I excercise (which I do...
Very interesting story Mark. Thanks for telling it. It is good to hear you are pulling things together. PD is tough. I have always enjoyed a drink or 2 (or 3 or...) and I have found I have to cut...
Spanish, that sounds really bad. I have the blank look on the face problem (people say I look like I am stoned) but it isn't anything I can feel. I have dystonia in my foot which is where the tooes...
Just started Mirapex ER and am experiencing pretty bad fatigue and nausea. I will call my doc but are there effective ways to address that? I am only 49 and would like to stay off Sinimet....
AJ: Sometimes I feel bad for my wife since she will someday be my caregiver but I would do the same for her so I don't wish she would not have married me. To the contrary, we have had (and continue...
The doc said taking Sinimet every other day will have just about the same long-term side-effects as taking 3 a day so I am going tto go off Sinimet and try Mirapex ER. I hvae to say after one day,...
Thanks for the thoughtful reply Ed. I went back to 1 Sinemet per day until I see my doc in 2 more days. I guess I am really worried about the long-term side effects of Sinemet and that got me wanting...
Ed, do you really think it is dangerous? My thinking was if you can go from no pills to 1 a day, then 1 every otner da would be okay. I iwll ask my doctor. If you don't mind me asking, in what way do...
Thanks for the response Yekkimo. I see my doc next week but I still take Azilect and he had said to call if I needed a replacement med. I really wanted to see what I was like without the Sinemet and,...
Has anyone here who has milder symptoms tried taking Sinemet as needed instead of on a set regime? I was taking Sinemet 25/100 3xs a day but did not feel like it was helping enough to justify the...
Believe it or not the "Parkinson's Disease for Dummies" book is good. Covers a lot of ground and is a pretty easy read....
Yes--my current doc is a movement disorder specialist and is a world-renowned expert on Parkinson's but I think he is better as a research doctor than he is at treating patients....
Not sure about tiredness being a symptom of PD but when I was taking Requip it made me very tied. Mirapex did too. I couldn't tolerate them (they also made me nauseous). I do find that I need more...
Dan, Thanks for the info. I am taking Azilect already--I started it right away because I heard it slows progression of the disease. I am going to a new doc soon and going to look for an alternative...
Dystonia in my right foot was the presenting symptom pf PD for me (along with a lack of right arm swing which was a clue that something was wrong but was not a problem). Siniment clears it right up...
I have also read that it is best to start on Requip or Mirapex because they don't have as many side effects. I stared on Requip but it made me feel naseous so I switched to Mirapex and had the same...
I take a Bendaryl most everynight before bed and it really helps me sleep. I am taking Sinimet, Azilect and Amantadine....
Hi Ed. Taking the 25/100 dosage 3 times a day. Thanks....
I knew most docs avoid RXing Sinimet to young patients because of diskinesia side effects and, since I still did not have a confirmed PD dx, I went to another doc who is known as one of the best PD...
I am 49 dx'd a few years ago and working a job that requires good speaking skills as well. I have not had slurring problems but problems with soft voice and a little stuttering. Requip made me tired...
I will reply to my own post since no one else had anything to add and I went ahead and tried the Amantadine. It seemed to ease my shakiness and feeling of head bobbing and no noticeable side effects....
Welcome. The forum is good for talking with others. I have also been lucky enough to find a support group for young onset people like me, that meets not too far away. It has been invaluable. While...
Anyone tried Amantadine? I have been taking Cinamet and getting some involuntary movement like head shaking so doc rx'd this. Warnings say can cause cloudy vision and confusion. A little wary......
I was dx'd a couple of years ago and got on Azilect right away and continue to be on it. I think it makes me feel a little queasy but 2 doctors have told me it may slow the progression so it is worth...
Of course it depends on your family but when I told my family the reactions ranged from denial ("are you sure? That doesn't sound right. You're too young.") to great sympathy ("I am sorry-please let...
I cannot say I have spent any significant time looking at alternative treatments but I have been to an Indian massage therapist who tells me that Parkisnon's is related to gas--something I have never...
My doc gave me the dx of "suspected PD" about 2 years ago (when I was 47)--then confirmed by a PD guru doc about a year ago. It really freaked me out for a while but I feel like I have come to terms...
I tried Requip and then Mirapex and both made me tired and nauseous so I reluctantly got on Sinimet--I was worried about side effects. I will say the Sinimet works (my worst symtpom is Dystonia which...
Well the surgery got cancelled due to insurance issues. Hopefully I can get those resolved as the pain is severe....
Everyone's Parkisonson story is unique but when I was first dx'd I was really freaked out and thought my life was over in a manner of speaking. The reality a couple of years after the first dx (which...
Having joint replacement surgery this week. Doctor recommended pyrocarbon but insurance company will only cover silastic which doctor says will not last as long. The insurance company will not even...
I am 48 (which feels young to have PD) and I too went to a local support group meeting and, being perfectly honest, it depressed me. It was a young onset group but I was the youngest one there and...
Zazucat, Thanks again for taking the time to write that response. Met with the surgeon today and he says I am a good candidate so I am going to research a bit more and discuss with my wife but it...
I cannot say I had impulse control problems but when I was taking Mirapex and then, later, Requip, I had an incredible creative spurt. I wrote the better part of a book (something I have always...
Jazzy G, I hear what you mean about everyone having different experiences. Feels like it is hard to find another person with muchh in common. What are internal tremors? I have not heard of that....
Yes Azilect is pretty new and there is no generic version and it is expensive....
I am 48, diagnosed a year ago and on the generic version of Sinimet but next doctor visit I am going to see about a different med. Sinimet works but I am concerned about side effects. I already feel...
Zazucat, Thanks so much for taking the time to write that response. It is very helpful. I will look at those resources and further explore the surgery option. I am willing to take a break from...
That is very helpful. I really appreciate all of the sharing. Makes me fell a lot less alone. Tqanks....
Thanks for the reply Red. I do have a parafin wax machine and it does help, at least temporarily. I had not heard of an arthritis glove so I will check that out. Based on the responses here, I think...
Thanks fir the information Kitt. I will check it out....
It helps a lot. It really confirms my thinking and gives me some needed strength to keep this private until there is a real need to tell others. Thanks so much for taking the time to share....
I have had osteo arthritis for a few years in my fingers with very pronounced Heberdon's nodes and severe pain and constant inflammation in my left hand ring finger. This is particularly a problem...
Yes it is Carbodopa/Levodopa. It is generic but I understand it is the same as Sinement. Yes it definitely helps my walking so the right arm swings like it should and it also seems to help control...
Thanks yekkimo. I am sorry to hear about your bad experience but it confirms my thinking. This is a hard secret to live with, especially since I consider some of my co-workers to be good friends, but...
Thanks for sharing Lizzie. That is very helpful. I am going to talk to the dr. next time about getting off LDopa and trying Requip or Mirapex again. I did try each of those for a time and they both...
Sorry I somehow messed up the poll......
a year ago (still not convinced--see my "Correct Diagnosis and Meds" post) and have what I view as relatively minor symptoms (and I have been told not detectable to those not in the know). I am 48...
I was dx about a year ago although I am still not 100% convinced I have PD (see my "Correct Doagnosis and Meds?" post). I am really glad to have found this forum. I am 48 with a demanding career,...
Einer, Thanks for your reply. The toe curling, shakiness and right arm not swinging are what made me see a doctor but he did a lot of tests including electric current tests (sounds worse than it was)...