betterdayz, I am a 41 year old male. I was diagnosed about a year and half ago. I understand where you are coming from, I also have 4 daughters. The thought of being a burden on any of them or my...
Thats absolutely true Lanie, whenever I go outside to do stuff I always stick my phone in my pocket. Like I said earlier I would never suggest anybody try to go out and shovel snow if they arent...
I have been dealing with pd for a little while now and my abilities have lessened steadily over the last year. I am no longer working which is challenging my feeling of self worth at the age of 41....
I am certainly not an expert, but I wouldnt think the back pain would be from the meds. Stiffness and soreness is a big part of pd. Even though my back pain has gone away, I fight stiffness and pain...
What PD meds are you taking? I had very terrible back pain for years before i was diagnosed. Tried chiropracters, therapy, over counter meds. Nothing worked. After I was diagnosed my nuero put me on...
I havent been on here in a while. After being on Sinemet for a little over a year, with limited success, my MDS has decided to take me off it and try Stalevo to try to reduce off times. Wondering if...
Thank you curbman for posting it, and thanks to yekkimo for leaving it as long as possible. Very interesting and very informative..............................Colt...
Dan, sinemet had kind of a weird effect on me at first. For probably 3 to 4 years before I was diagnosed I was very stiff and sore and really didnt know why at 37 years old, lots of back trouble. I...
Sorry Dan I should have added this to my last response. I thought you were pretty against taking sinemet. Have your symptoms worsened? Let me know how you are doing I have always appreciated your...
Hey Dan I remember when I first started taking sinemet I was worried about the eating restrictions also. At first followed them pretty religously with decent response to medication. After awhile...
My wife applied me for soc sec. around the middle of June. Everything Ive heard is that I would be denied initially and would have to go through the lengthy appeall process. I was very surprised when...
well Dan Im no expert but like I said Ive done alot of reading. There are several parkinson plus disorders which are diseases related to parkinsons disease. All these diseases as well as parkinsons...
I was diagnosed with Parkinsons disease in October of last year but Im pretty sure something was wrong 3-4 years before that. I had all the typical signs tremor, severe rigidity, stooped posture,...
Thanks for replying Dave, I will have to take your advice I'm sure and get a lawyer. Can you tell me how long did it take from the time you were denied til you were awarded benefits. I'm trying to...
i was wondering if anybody with young onset parkinsons like myself has had any luck qualifing for ssdi. I am just starting the process, I cant go back and do my old job and symptoms have been getting...
Dan, You asked me to respond about visit to mds about whether he plans to eliminate sinemet. Well acually he increased it now Im taking 1 &1/2 every 4 hrs. After doing several movement exams and...
Dan Dont really know. After waiting for about 3 months to get in Im finally going to see a movement disorder specialist next week. Not really sure what his plan will be but I know I was pretty bad...
I hope my wife doesnt feel like shes going to bed with her grandfather everynight. Dont mean to be rude but those words are fairly offensive to those of us who are young and dealing with this....
There is hope geez!! Dont know all about your situation but symptoms can be managed fairly well. I am 41 years old and have had alot of problems with my pd, but also have alot of good times also....
i have been on Aziletc for about 4 weeks now. Still taking sinemet four times a day and mirapex three times a day. Noticing some improvements but Im not sure if its the Azilect or the continual...
Thanks Ed. Do you have problems with dyskinisea, not sure about spelling. If so is it disabling. Can you tell me if you were able to work first few years while on sinemet. My job is fairly physical...
Having only been diagnosed for about 8 months my symptoms have progressed fairly fast. My neuro recently put me back on Sinemet 25/100 three times daily along with Mirapex .25 three times daily after...
DeChantal..........................I have only been diagnosed for about six months now. Dont know if I have any advice other than at times when I start to feel depressed or start to stress about the...
Sonja.....................Like I said just keep track of whats going on with yourself. When a symptom comes on make note of it. From what I understand movement disorder specialists are the doctors...
I have noticed something different happening with me in the last month or so wondering if anybody else is experincing this. I know that swallowing and even choking is a late pd symptom, this is not...
Sonja.......................Sorry I probably didnt word that very well. Yes I did have tremors but at the time I first visited the neurologist my tremors werent noticeable. Even thought the neuro...
Dan......................Actually Im left handed and I rely on it pretty heavily as right side is most affected right now. That is really interesting to hear about though. I need to get serious about...
Sonja...............Even though tremors had began with me by the time I first visited the neuro, the day I first went I didnt have any. The neuro examined me checked out my handwriting and watched...
Hey Sonja..................... The last sympton I had come up before making a doctors appointment was a tremor in my right hand. That went on for a couple of months now its still primarily there but...
Hi Sonja, I am definitely no expert having only been diagnosed about 5 months ago. I am 40 years old and would guess by sympton onset have had pd for at least 3 years before diagnosis. My first...
Dan Thanks for the advice Dan. I got a call back from the nurse at nueros office and she found a way with my insurance to get me on azilect for only 25 dollars a month so Im pretty excited about...
Hey Dan, Just got back from neuro today, he saw that my symptoms were progressing pretty rapidly. Refered me to a parkinsons specialist at KU med. He also discussed putting me on azilect to try to...
Thanks Dan, i was recently put on mirapex. Have you been on this, was it helpful if you were. How expensive is the Azilect?...
I dont know if mine is leaning forward but my neck seems to be getting weaker all the time. When I sit at the table I have to lean my head on my hand or when I sit on the couch to be comfortable at...
I am 40 years old and by my guess Ive had parkinsons for at least 3 years already. It started i guess feeling very stiff and sore all the time although at the time I had no idea that was because of...