Just a follow up.... Mom passed away less than a month after starting this drug. Not sure if it helped her symptoms any, or if it even possibly contributed to her quick decline. Never did figure out...
Having just been to the neurologist today because my mom, after 25-30 years of Parkinsons, finally has started with Dementia/Psychosis. I have to disagree with the sound mind, bad body comment. Her...
My mom got very ill from meds one time, and they took her off Stalevo cold turkey. She had no issues. She was taking the 150's 6 times a day. Not suggesting it, just letting you know our experience....
My mom is 86 and has had Parkinsons for the past 25-30 years. She suddenly started showing signs of PD Dementia and psychosis. She was just prescribed this newish drug to help with hallucinations,...
Hi Dan, My mother has been taking various forms of C-L for almost 30 years. She will be 84 in May. I do not know the dosages, but she is now on Stalevo 200, having just switched from the 150 about a...
Welcome Penny, I do not know of any in your area, but if you are willing to travel, there is a wonderful clinic close to Seattle Washington. Booth Gardner Parkinsons Center @ Evergreen Hospital. My...
I feel for you cj. Parkinsons is different with every patient, so the only advice I can offer you is to spend as much time as possible monitering his care. You know your father, so do not let the...
Yes, it is a great relief to have her out of pain. I can deal with her increasing dementia, because it does not bother her. She is happy as can be. I took her to the Parkinson doctor, because her...
Lol, just an update. Hopefully I wont be posting in the "chronic pain" forum any longer, as moms pain has gone away. She is a new person. Don't ask how, or why, because I have no idea. She still has...
Lol, I am not done with my rant/horror story. This first part was just about the lacking of understanding of Parkinsons by medical staff. That part of the story was about her second hospital and...
Part rant, part warning for people with Parkinsons who are hospitalized or in a LTC facility. A little background. My moms is 83, and has had Parkinsons for going on 30 years. She has been...
Wow, glad I was not the only one. I shattered my wrist about 20 years ago, and they rebuilt it with some type of fairly large metal plate and 6 screws. It healed well, and the doctor said that it...
30 years IS a long time to have Parkinsons. The only symptom, she has had until recently is tremors. Her doctor has said that people that have severe tremor actually progress slower with the disease...
My mom has had Parkinsons for the last 30 years. She has been taking Stalevo (The 150mg 7 times a day) for about the past 5 years. She has many side effects from it, including some of the ones...
Thanks for the ear. I think you are right about looking at the whole body. It makes sense that fixing one part of the body might put additional stress on another part, in part causing a chain...
Good lord, it just doesn't end. Moms pain seemed to be better when I posted last. She was walking with her walker again, and doing much better. Now, out of the blue, she has extreme pain in her right...
Just thought I would update from our visit to the PM doctor on Tues. It was an odd visit. He went over the notes from the surgeon he sent us to, and decided to immediately move ahead with the SCS...
I am not sure if it is true everywhere, but I know here in Washington I was able to buy it myself, and then Medicare reimbursed for it later when I submitted the receipt....
Any thoughts on a TENS unit? She has had one used on her in PT, and said it helped. I guess I know it wont help immensely, but my main question, is there any reason NOT to try one. Can it cause any...
Hi David, I bought my mom one from Sams Club. It is a Hugo, with a thick seat, and a small storage area under the seat for her purse. She loves it, loves it, loves it. It is a little difficult to...
Thanks Merrida, I did not even think of that. Lol, especially the pregnant woman part just never crossed my mind. I will check into it, because I think that would at least help relax her. It helped...
She used to enjoy massage, but now she cannot lie on her stomach at all. Her PM doctor had to sedate her just to do the steroid shots because she could not be on her stomach because of pain. She used...
Thanks again for all the input. As you could probably tell from my original post, I already was very hesitant to follow through with either surgery, and after reading all of your posts, as well as a...
Thanks Merrida, I don't think they are talking about doing spinal decompression, but maybe they are. There are so many terms that I am unfamiliar with, and trying to learn quickly. He was talking...
Mom did have either an MRI or CT scan with contrast. I am pretty sure it was an MRI, right before the pain Dr did the first injection. I took the results with me to see the surgeon, and he said she...
Thanks for the replies and support. Her pain doctor is a certified anesthesiologist. He did the original injection, which a believe was a facet joint injection into her SI joint. Then a different...
Thanks for the quick reply. I do have those concerns about her age, and her primary care doctor would need to sign off on it before doing anything. When she had her fusion, she was supposed to be in...
My 83 yr old mother went through this about a year ago. It almost killed her. It was caused by Simvastatin medication. It took her about a month to recover once she was removed from the medication,...
I would love any advice I can get to help make an informed decision. My mother is 83 and has extreme back pain. She has had 2 surgeries, the last one being a spinal fusion 6 years ago. Her pain...