Strengthenme Hello, I go along with Ed. Why treat a slight tremor? Overtime you will probably manage to control a slight tremor with a bit of mind over matter rather than relying on meds early on....
Ann Well done. There are some of us getting all concerned in case we lose our driving licences and here you are getting a brand new one. Can't say how pleased I am that despite all your problems you...
Hope you continue to enjoy the good days Ed. I think that when we say good days we are really saying it with tongue in cheek because a good day is when you wake up with nothing wrong with you...
Hi all, Ed's last post should be standard reading for all of us who get PD. It's because we are all so different that the neuro's have no standard way of treating us; therefore, they can only be...
Hello Ann sorry I am a bit behind with a response to yours about dribbling. As far as I know its fairly common for PD'ers to dribble and the reason is because we do not swallow as often as we used...
Ann I too suffer with poor sleep and when I get desperate, say after 2 or 3 nights of very poor sleep I take Amitryptyline 1 tablet of 10mg. This is prescribed by my GP who tells me it is absolutely...
Sandal I too did not start on medication straight after diagnosis but gradually came to realise that I needed it when the tremor in my left hand was uncontrollable. I started on a low dosage of...
Ann Hope you are doing ok. I have been on Sinemet for 6 years and can only say that I rely on it to help with my PD symptoms. Mine is an uncomplcated med regime because the only other drug I take for...
Just a word about support groups. Like Bear, I was not the type to join a group, especially if it meant meeting people in advanced stages of PD. It was a sort of denial I suppose. The first time I...
Good evening Mayfly I was diagnosed with thyroid problems 20 years ago and have successfuly kept in under control with prescribed Thyroxine. It may be a different type to the problem you have but I...
Strenghtenme, Congratulations on having a new grandson and I hope that he brings as much joy to you as our little one has. Whenever I feel down I think of him and it all seems so much better. Let us...
Hello Ed, pleased to hear you had a good trip. Sounds like it was worth the effort. I have a problem in going off on holiday. My wife keeps on at me to go with her even for a 4 day break but it makes...
Hi again Why am I on it is a good question and one that we should all ask when prescribed meds for PD. Unfortunately, we all respond differently to the illness and there only general guidlines. We...
Hi there Girlirish understand your point but its hard to give advice when we are on different cocktails of meds and by and large have varying symptons. My own way of handling medication is to take...
Calming is right. Medication works well but it is always worth remembering that they have their own consequences and the long term use of certain meds can lead to distressing side effects. When I was...
Hi Girlirish Not the ideal talking point on a fine sunny morning but constipation is real and it can increase the misery factor you feel when you are so unwell, especially if you have symptons you...
Hello Strengthenme You sound really upset and at the end of your tether and I don't blame you. You have a lot of stress at this time. Lifes like that sometimes and I cannot count the number of times...
Hello Ann, Its nice sometimes to have some soothing words and have people care about you but, at the end of the day, you are still left with the illness, be it Parkinsons or any other and you have to...
Hello Banana Sorry to hear that your Dad is having a difficult time...being 76 is hard enough without having PD to cope with. But its not all bad news and the main thing he has going for him is the...
Hello again GirlIrish Feeling unwell can take on many different forms simply because PD affects people in so many different ways. I belong to a support group where some do not have any tremor but can...
Hi Girl Irish The others have given you good advice. Don't be afraid of the medications but treat them with caution as all drugs have their own consequences. My way of dealing with them is to manage...
Hello HH thanks for reproducing the announcement re ProSavin. I can understand Shakeys reaction to yet 'another miracle drug' but thank goodness there are people out there doing the trials. I have...
Neil Hi there. I have had PD for about 6-7 years now and like you am affected on the left side. My big toe started to become very painful about 2 years ago and the smaller toes just wanted to curl...
Hi Neuron I have tremors that are mainly concentrated on my left hand. I also get gripping and curling of my left foot that I understand is a form of dystonia. I have many other PD symptoms but as...
Hi there Photonut I have been diagnosed since 2000 but have had the symptoms of PD for maybe a couple of years before then. 1) my level of disability is about 25% although it creeps up on you and its...
ArizonaJoy Whatever you do do not think that because your husband has been diagnosed with PD its the end of the world. What Shakey has said makes lots of sense and although people with PD have...
Els, it makes me sad to know that you are so down right now. Although you say the disease is in control try to think back to the better days, days when you don't feel so crappy. I know its...
Good morning Girl Irish and others reading this post. Just to add my two pennyworth about the shakes. At the start of my PD I was put on Diazapam as I was very uptight. I met a PD specialist nurse at...
Hello Diane Like your Dad my name is Bill and I am 74 next year. I was diagnosed straight away but not put on medication at the time. As my symptoms got worse I started on Sinemet and later on...
Hello Herky I can sympathise when you say that your family does not seem to be aware of the difficult time that you have some days. I have had parkinsons for about 7 years and it now affects my...
Steve I have had PD for 7 years and am age 73. I have had both knee joints replaced due arthritis but one of them is not good and it is quite painful to walk. I also have gout which is due to kidney...
Hello Girlirish Sorry your visit to the neuro didnt go so well. As others have said, try not to get stressed. I know its easier said than done but honestly, a few months down the line , even if you...
GirlIrish I find that my tremors are worse when I am anxious about something; even the slightest bit of anxiety gives me the shakes but when I am relaxed the tremor is not noticeable so much. Seems...
GRACE sorry I did not see your message sooner but I was away. Those good periods I mentioned are what keep me going....when I get really bad I kid myself that it wont last long and have a little...
Pina I too had my thyroid problem treated with radioactive iodine back in the early 70's and been on varying doses of thyroxine ever since. I have never associated my PD with the thyroid problem...
Pina Have a look at the post further down the list on vivid dreams. It will not give you the reason for the vivid dreams but may put your mind at rest to know it is quite common and not a consequence...
Jack I too get curling toes just as if I am clenching them but like Ed its just the left foot. Its been suggested by a doc that the cause is Dystonia which I guess comes with PD. I also have very...
Elisha I started having vivid dreams a couple of years ago. There was no apparent reason as I didn't have any change to the dosage of my meds (sinemet and selegiline). They are not nightmares (some I...
GirlIrish I remember that my first sign of tremor started as an occassional pulse in my wrist as I sat in front of the TV. Because it persisted I went to the docs and ended up being diagnosed PD. But...
Hi All Interesting so see that Chris gets no tremors with his PD which means tremors cannot be blamed for his fatigue. Thats not to say that tremors do not cause fatigue in others but the more you...
Hi Chris I too suffer with fatigue and of all the symptoms I get count that as one of the most debilitating. I belong to a support group for PD sufferers and from what I see and hear ALL of the...
Tami Sorry to hear about your problems. I really do hope that your husband starts to feel better soon. I dont want to give conflicting views and make things even harder for you but from my own...
Laura W Glad the messages of support have helped you. I've had PD for over 6 years and like your husband also had prostate cancer. My wife does'nt put my PD down to that but to the shock of having a...
LouH Sorry to hear you are having troubles coping with the mouth movements. I dont know if you have parkinsons so perhaps your involuntary movements are different to mine. All I can say is that mine...
LouH I have had PD for 6 years or more and one of the symptons I get is uncontrolled movements of jaw and lips. It makes it difficult sometimes to drink a cup of tea without slurping and also because...
Els and Ed. Thanks for your replies. I have not taken them in properly yet as I dont have much time on the computer just now. However, I do have a quick question and that is how do I find out where...
Hi there. this is my first go on the board apart from my introductory message and I feel a bit guilty about starting a new topic but I have scrolled through recent months postings and in my limited...
Hi there, My name is Billy and I live in Chelmsford UK (about 40 miles from London) and I am a new member. I was diagnosed 6 years ago and am currently on 3 Sinemet Plus and 1 Sinemet CR at bedtime....