hello Derek , i read with interest your idea for getting out of a chair , i tried , but unsuccessful. i sat on a dining chair ,legs out as far as they would go and hands on my chest.Absolutely...
Hello Ann , just read your post about sinamet plus , i swear by it . when i start this terrible jumping and jerking i take just one half of sinamet plus tablet . Its like a miricle, it takes 20...
Hello Girlirish,sorry ive not been around to cheer you up,been thu' ups and downs like you. Reading your post and also Stella Maries i feel i am back among friends. you yourself my dear have once...
Hello Girlirish, sorry i hav'nt been able to reply for so long, my pc was out of action.I know how you feel it,s horrible , but take comfort knowing a lot of us feel the same and we all constantly...
Girlirish , please don't let my answer to Bobw post scare you . I am sure its because of the number of pills i take in 24hrs ( 30 ) that helps to make these odd problems happen . The reason for so...
hello bobw,have just read your post ,believe it or not you have completely described what i have been unable to do or admit to. i have been on mirapexin many months now and as yet have not made week...
Hello Girlirish, that was a nice post from Ann Ireland , is she realy your twin, she had me smiling too.Good luck to you both. Grace...
Girlirish, now you realy have given me somsthing to think about...deafness. Bad enough trying to put earings in and managing buttons and things, with silly fingers but hearing aids and batteries must...
Hello Girlirish, I was so pleased to read your latest post and to know you have started your meds. Just to hear you say you feel so much better brought a big smile to my face. I have been on...
Hello Girlirish, good for you , the photo albums are a good start for , keep going and good luck. Keep smiling. Grace...
Girlirish, A big happy new year to you ,iknow it can and will happen for you. Recently i have been realy down in the dumps and feeling just the way you describe, i felt close to screaming point some...
hello girlirish , i know how you feel , but i am sure if you would just try the meds you will start to feel so much better and more positive .Today started very bad for me , realy shakey quite a lot...
ttwarrior'1, your post has set me thinking about my restless legs,night before last it was so bad legs all over the place and banging them together so hard it looks as though i broke a blood vessel...
Ed, regarding DaTSCAN , i have looked up one or two notes i had written after scanning the web . This may be of interest to you......but with Parkinsons cells die off and are replaced with LEWY...
hello girlirish, i am in a similar position to you , one neuro changed his mind after about 6yrs said i have not pd and was very rude about it all . i changed to another nuero who isnt quite...
dsastacks, so glad to read your post.i was diagnosed about 6yrs ago showing my right foot turned and completely pointing to my left instep also tremor in left hand. Phisio nurses worked wonders for...
Billy, I too have been away and I am just catching up with your post , Thank you so very much for your advice, last week was very bad but I know all I have to do is read your post and it puts that...
Hello Dawney, i have only just found your post , i hope i can help a little .I will be 79yrs in september and doing well ,diagnosed pd 6yrs ago . I am on madopar cr/sinamet plus and mirapex,since...
Hello Chris , sorry i did'nt answer your question about coQ10 , i hav'nt been given that one so i can't comment . My meds are Madopar CR 8 daily/Sinamet Plus as required and Mirapex 180 micrograms 2...
Hello Chris , yes this fatigue is a beast and one it seems you can't beat, i usualy sit in the armchair and wait for it go ,but yesterday was a really bad day it lasted the whole day,felt quite fed...
ED I have been on Madopar for about four years , found it very effective and it is backed up by Sinamet , Mirapex has now been added , by the way ilive in the UK. Regards Grace L...
Billy this morning i was grateful to read your post about the terrible days which we all suffer with, you have explained how and why and the fact that we have to deal with the cards we have been...
Hi Chris , nice to hear from someone else in England.I live east sussex and feel bit isolated at times.I understand about devastating fatigue its horrible specialy when you can't do a thing about...
Hello Everybody,regards mirapex i am now on this med.i wasput on a six week course starting with a minute strengh iwas fine up to 4th week then 5th week was terrible spent 2 days in bed , went back...
hello everybody,I am wondering what is in store for me,I am just starting mirapex and my pdns said it will take 6 weeks to reach my full dose of 1mg tabs....1 tab 3 times each day. I have started...
Hello Stella Marie,i now have a power wheelchair too,it's much better so it's by by to the scooter. the p/chair is an indoor/outdoor,i can take it on the community bus which opens up what i can do &...
michelle,I have just seen your ref: to black/blue hands,backs of my hands have been the same since before I was told I have pd,palms also tingle,some days they are darker than others.If people...
My pdns nurse came to check on my meds and any problems I may have. I said I am always waiting for my head to catch up with my eyes,her reply was..no problem, it's to do with dopomine behind the...
Glambert......I have now updated my user name to Grace L...
Stella Marie Thanks for your quick response,I now understand what is happening to me,my family will too,I can't use my w/chair myself someone has to push me (no strengh).I know what you mean about...
I can't sleep at night either altho' sinamet plus does help,off periods get longer in daytime,feel horrible,feet shuffle and walk like I'm drunk,hands becoming weak..no grip,legs very weak too,use a...
Stella,I'm fairly new to PD problems similar to yours, original tremors under control except in stress,if I laugh and talk( & I do quite a lot ),tingling & numbness in hands and feet loss of balance...