/community/emoticons/smurf.gif I get muscle spasms,or dystonia in my right hamstring, right calf, right hand, right side of my neck, and my toes. I used to get them 50-100 times a day. My mirapex...
Hi everyone, The creatine research study starts in April at Northwestern movement disorders center in Chicago. I live in a suburb and can take the train into the city. I was diagnosed in June 2005 at...
/community/emoticons/eyes.gif I am on Mirapex .5 mg 3xday. I am also on many other meds. Sometimes, I feel like the doctors have a medicine for everything. I was on a very small dose of mirapex...
The creatine trial is going to start in April. Alot of centers are participating. I'm going to be in it. It's for 5 years. Check it out at one of the PD sites. They had a big announcement on 3/22....
/community/emoticons/redface.gif I slowly worked up to .5 mg 3x day this week. I have insomnia and get these exhaustion attacks. But, I am doing so much better. I was on a very small dose - .125 3x...
/community/emoticons/sad.gif /community/emoticons/smurf.gif Everyone must be having a great Saturday. No posts since last night. I went to my PD support group today. They had a speaker who talked...
Some neuros seem very non-chalant about PD. They don't understand how it feels to have PD. I'm glad your going for a second opinion. Good luck. Calming...
It seems like alot of peoples tremors start in their hands. Mine started in my foot. For a couple months before, I had a constant right eye twitch for a few weeks. I think all of us had PD for years...
/community/emoticons/smurf.gif Jules, Thank you for the reply and your advice. I am taking 300mg of effexor for the depression, which is alot. I go to so many doctors. The neuro said she would sign...
Jules, Thank you for replying. It's amazing that people making these decisions don't appear to understand that PD is extremely complex. They think it's just some shaking. For me, the depression and...
Medication works well. I try not to think about about the future. I eat right, exercise, if able, go to physical therapy and doctors, couselling. I'm beginning a new approach. I was severely...
/community/emoticons/cool.gif Everyday there seems to be another surprise with my symptoms. As usual, went to sleep at 2am and got up at 7. This morning, my neck is having trouble moving. The neuro...
Thanks for responding Ed. This is a great sight! I'm enjoying it immensely. We can all identify and learn from each other....
/community/emoticons/cool.gif This is the first time I have posted. I have had PD for the past 1&1/2 years. I was 52 when diagnosed. It started with a foot tremor. I now have rigidity, dystonia,...