Look on www.oxfordbiomedica.co.uk The trial is in it's third phase I think. The average is 45% improvements in symptoms and some have had 61%. I think I looked for Parkinsons research on their site...
All I can say is my husband has taken Azilect for over 2 years and likes nothing more than bread and cheese with a glass of red wine! His neuro said nothing about diet restrictions and when we asked...
I am a 'hanger-on' as it is my husband with PD but he likes to try and ignore it so I tend to be the one who gets the info and uses sites like this. He has been on Requip XL 12mg for over 2 years...
All I can say is my husband had this done 4 years ago when he was 58. He had had pericarditis [undiagnosed] and that led to a thickening of the pericardium. He was out of hospital after 6 days and...
Oh joy Oh bliss. At last appointment [2 weeks ago] My husband was put on Requip XL at 10mg a day. He is SO much better physically and mentally. Don't know if it is just needing them once a day or a...
Thanks Yekkimo, Actually the last twice we have seen the neuro he has seemed a little more approachable. Last night he REALLY listened and after quite some time listening said what I have been saying...
gtm riviera you might just have saved my sanity and marriage! Now I can understand a bit better when you compare it to freezing when walking. It's going to be hard but I'll try not to take it to...
Hi Spugsie, All I can say is I did SO not wantmy husband to have the op. I would have wrapped him up in cotton wool and pushed him round in a wheel chair rather than him have it but he just couldn't...
I have been keeping an eye on the clinical trials for C0Q10 and one finished in January but as yet no results posted. I have lost the details of the site but one trial of 12oomg a day did show...
Hi Way To Go Spangles, It is SO good to hear that you are feeling better, enjoying life and happy to have got through the op. etc. Keep having fun. Sherwood X...
Forgot to say. My husband had a bypass as there was some furring and he has faomily history of CHD but even so we were told that it is sometimes necessary if the pericardium is so stuck that it...
Ok I'll try and explain it so don't be cross if I make it too simple I'm not trying to insult your intelligence and don't be cross if I'm too technical [I was a nurse, retired now]. Just below your...
Hi Heartache, Well if you had had chest drains in you would have had a little scar each side, I'm sure you would remember them coming out and you would have needed stitches out of them about 10 days...
Thanks so much for your concern! No he put the freezing and breathlessness down to the increased dose of Requip. It passed off and that was when he decided to reduce the dose to whar he felt...
Heartache Hi again. I am ceertain that you would have had chest drains in following your surgery. Putting it simply they are put in not only to drain fluids, blood etc but also any air that was in...
He tried it over a year ago with siimilar results. On a low dose [I think it was half a 25/100 tab x3 a day] he felt a benefit but when it was increased the symptoms got worse. The neuro said that...
Latest word is he is cutting down NOW before he tries 4mg x 3 daily!! Yesterday he locked our front door, turned to walk away and couldn't move. He guesses this is what freezing feels like but it has...
Thanks gmtriviera. He is currently on 4mg 4mg and 3mg and planning to up the last dose to 4mg next week but if there is not significant improvement will reduce. We see neuro in Aug and if he is not...
Boog I had forgotten that! My husband had low magnesium levels and after a lot of thought the Drs decided NOT to give a supplement but for him to have a diet rich in magnesium and they tested again a...
Thanks folks. We are actually on our third neuro!! My husband has this awe for consultants and thinks they must be right. I have a typical nurses disdain and question everything. It just annoys me...
Hi everyone. My husband was started on Requip some months ago. He felt some improvement in walking etc but as soon as he got to 3mgx3 a day it was as if he suddenly got worse rather than better. He...
Hi Spangles, They had my husband on a beta-blocker for about 4 months post-op as he still had a fast heart rate and he was told it takes time for the heart to settle itself down. I hope you are...
Hi again, That is just the pits isn't it. As if you didn't have enough to cope with to find yourself in that position! Similar to my husband. He found his fine movement in his right hand shot....
Don't know where you are posting from but we are in UK. Last January mu husbands case came to Tribunal. After a week during which it became clear he was going to win his case of Constructive...
Hi Spangles. Glad you're coming along well even if a bit slow for your liking! Our GP said that it takes a year to eighteen months to really get over heart surgery. This was when my husband was...
Hi Captain happy, you made me laugh!! I tell you one benefit of Krapinsons, all the things we were going to do 'one day'. We're doing NOW and having so much fun. I don't know what it's like for my...
They've gone out of favour in the UK as it's been shown to cause infections but there is a system where a sheath is fitted that connects to a catheter bag. Easy for me to say but I THINK I would...
Hi, from what you say it sounds as if your biggest problem, and it sounds weraing, is the urinary incontinence so I would say try a urologist. I suppose his Doctor has tested for infection, prostate...
Hi Jen, I haven't heard much about deep brain stimulation. I thought it was only used in later stage when the Sinemet was causing problems. I know of one person who had it done. He had had Krapinsons...
I guess apart from anything else it must be a massive shock to the system! My husband [who normally eats like a horse] just couldn't eat for the first week or so. He said every time he sat down to a...
Hooray!! Welcome back brave soldier! So, so pleased you are OK and not in too much discomfort. You are doing well to be just on paracetamol. Do you know if you were 'bypassed' or not? Take it easy,...
Hi Jenny, Yes he does keep well. Only thing that gets to him is his writing isn't as good as it was but we still dance evry week and get about . We read that the tango was really good therapy for...
We are in UK.My husband's neurologist insisted he start it straight away as he is adament that trials show it slows progression. He felt a bit sickly after taking it and was dizzy off and on but that...
Karrie let us know how you get on on the 20th. Once you have had your appt. if you want to really know the details or 'talk' more I'll leave my e-mail address on for a day so you can mail direct. How...
Hi Spangles, Hi Karrie and Boog , Spangles I am thinking of you this week and dying to get your post-op post. You have to try and match my husband and Boog and be ready for home on day 6-but if...
Just a thought but it seems to me it's family and friends that seem to help the most. Even the friends we'll never meet like the ones who talk to us and give us support here....
Hi Spangles, We are up in North too! Newcastle is a lovely town and such friendly people. Will be nice to be cared for there! Will be thinking of you on the 8th. Don't expect to remember too much...
Is it not working because of tremors or lack of fine movement in her hands? Does she like to read? If so one of the new electronic book readers might be good. They are light to use, no pages to hold...
Hi Karrie, Can only tell you what my husband was told. His cardiologist said that the more he tried to excercise etc the more strain he was putting on his heart that was already struggling. That in...
Hi Goofy, I'll tell you how my husband and I handled it when he was told he had it shall I? We said 'Rubbish' and went away. That was 4 years ago and finally he had a Dat Scan and we had to admit he...
My husband was told he must take Azilect at least as that has been proved to slow progression. Anything else is up to him....
Hi Spangles, I am SOOO pleased you have found some local support. There is nothing like speaking to someone who knows first hand what it's like. Yes, my husband did go on a by-pass machine. His...
Hi Spangles! Just whistle and I'll come running! Great news that things are moving at last. We both felt somehow more relaxed about it all once we had a date for the op and pre-op tests were...
Hi again. My husband has been given a Requip Follow on Pack. Like the starter but the dose goes up in 0.5mg a week instead of 0.25 until he reaches 3mg three times a day. He goes back to neuro then...
Hi franbemadd my husband is also trying Requip. He is just starting a week of 1 and half mg three times daily. Thinks his walking is a bit more difficult and a bit shaky [which he wasn't before] but...
May be too late to help now but my husband is just finishing the starter pack of Requip and he has been warned he may get worse until the full dose is reached. Weird huh!...
My husband started it, got no improvement and stopped it. Now he is taking it again as his neuro said it has been proved in trials to slow the progress of PD so he wants him to take it. I suppose you...
Hi Spangles, Can't believe your history! My husband also picked up a viral illness, also in March and had his op the following January. He was 57 so not the right age for pericarditis and it...
My husband was also on Sinemet 25/100 for a short time. Again the dose was slowly increased but it had no effect and seemed to make it worse. We didn't believe it was PD either. He has just had a...
Hi again! Can't help re medication as my husband is also trying to get the cocktail just right. All I can say is you are not alone in setting fires!! I have burnt saucepans, pressure cookers, jam...