OMG. Remember him well. Was very helpful. May he rest in peace and condolences to his family. Jeff, thanks for posting....
Echoing the sentiments... Hope David is ok. He was a real help way back in 2008 with me too....
David, I hardly go on here now but I've been reading your posts since we started about the same time in 2008. So sorry for the hard time you're going through. You've been a major inspiration in my...
Just wondering... Is it also a poor indicator after RP? Mine has been .01 range for 3 years since surgery. Do I still need yearly DREs?...
I had my surgery at MSK in Aug 2008. The Dr I used is no longer with them. Overall I had a very positive experience. I got the feeling that they really cared. I have only the best things to say. Just...
Thanks so much for your responses. I feel calmer now....
I had to correct my signature, sorry. 4/10 0.01 8/10 0.02...
I reached my two-year RP anniversary. My PSA tests over these two years have been pretty consistent - every three months 0.01. I just got the results of my last test this morning and it came up to...
Hi, I had the same thing happen to me. After the first cat. came out I was ok for a short while but then got all blocked up. I went to the emergency room and had another put in. It lasted a few days...
http://www.nydailynews.com/ny_local/2010/06/22/2010-06-22_get_test_for_your_health__its_free.html ...
I was told that it is ok to have one after RP without concern. I just had mine now - 2 years post RP....
This might sound too obvious but are you sure the tests were Ultra Sensitive? Otherwise the test can only show .1 as the lowest. Only the ultra sensitive PSA test can give results lower than .1 The...
After a string of .01 I had my results also come back at .1. I got very concerned until I found out that they did not do the ultra-sensitive test. My suggestion is to make sure that the .1 was from...
I had my RP in August 08. I haven't posted in a while but have been checking in often. My Doctor recommended that I now get a colonoscopy. I am wondering.... Does the RP thin the rectal wall where...
Well, well - I am snipped and follow a strict kosher diet and still got PC. So go ahead enjoy your bacon and Chicken Parmigiana if you want. I'm not sure how healthy it is for your heart though.......
I had the same change from <.01 to .01. My Uro said not to worry but it's always on my mind. Always <.01 is better than .01. I will continue taking these ultra sensitive tests every three...
Dr. G. did mine in Aug '08 and I have nothing but praise for him and MSK. You mentioned DaVinci. I didn't know he did robotics. When I used him he only did Laproscopic without robotics. I was very...
Good question. I always wondered about that too. Hopefully someone more knowledgable than I will answer. Just curious if you don't mind my asking. Why the question now?...
For my latest post RP PSA test, the lab results came back as .1 substantially higher than my previous test , 3 months earlier, which was .01. After my initial panic, I realized that my Dr prescribed...
Thanks for the post. I always wondered if the tertiary score has any meaning....
Adjuvant is when radiation is done as part of the first treatment plan alongside surgery. Salvage radiation is done when there is a future biochemical recurrence with a rise in PSA after surgery. I...
Thanks for the posts. The discussions on this site has been very helpful to me. I think that experience is the major factor but certainly other factors such as "care", "humility", "striving to do...
I am wondering what you guys think. An aquaintance of mine, newly diagnosed with pc was considering having Da Vinci surgery with a very well known and experienced Dr. from MSK. However his experience...
Hail to the Chief! Good luck....
Just to pipe in with my experience... While everyone is different, I decided on surgery because I wanted to keep my option of salvage radiation in the case of a recurrence. I had my surgery done...
Great discussion. My thought is.... We all know not to rely just on someone else's judgment of a doctor. However I think it would be really helpful to be able to discuss the doctor/patient experience...
cvc, I used MSK and I was very happy with the care I got from the Dr [color=#0000ff>Bertrand] Guillonneau, [/u] and the facility. He does laproscopic RP....
David, I can't much add to what was said...just to let you know I'm following your story and rooting for you. Sorry you're having all this trouble. Don't lose your sense of humor and keep writing....
The worst of 2008 for me was finding out that I had PCa but the best part was also finding out that I had Pca. I am very grateful that I find out early and was able to get the surgery done. It is...
Dave, .01 is considered undetectable. Are you sure the first test was 0.00? Perhaps it was something else (like 0.01) and you were told 0.00 - meaning undetectable. Did you see the report? It would...
Angel - I don't really have much to add other than to say that I am in the same boat and I can understand your frustration. I too had a focal positive margin and I agonized over a decision on...
Tony - Your the MAN!! Thanks for all you do. Happy holidays to all!...
Once my catheter was removed, I had to get up 2-3 times to pee during the night. This gradually diminished to 0 now ( 4 months post surgery). It's possible that it takes time for the bladder to...
Sorry for your troubles. I had a similar situation and I can remeber the pain very well. It was awful!! It was reinserted for several days and everything worked out ok after that. Now I look back at...
I had an MRI and MRSI at the same time at MSK. The MRSI results did not come out because of "Patient Movements". I was very cold at the time and my insides were was shivering. Since I had already...
My experience. No pain with removal but definite discomfort. I brought along depends and pads to the office but it wasn't necessary because the Dr's office gave me an initial supply. No filling the...
I agree. I think the only exclusion for prior condition is if you had no previous coverage. But if you had coverage with another company they must cover you too. I think it's the law. Check it out....
Just checking in.... Hi'ya all - Just wanted to take this opportunity to thank you all again. This is a great forum. I haven't posted for a little while but I have been lurking here a lot. So far...
YESSSSSSSSSSSSSSSSSSSSS!...
Tony, Thanks for the link. I found it really interesting. Kudos to all the reserchers and The Prostate Cancer Foundation for working on this dreadful disease. Let's hope some of these promising...
Well... Since my surgeon will not be available until next week I called the Pathologist's office directly and asked about the size of the positive margin. I was told it was negliglble and they said...
6071, Thanks for sharing those links. Very interesting! I definitely need to find out the extent of the positive margin. I think it makes a big difference. I hope things get clearer for you on...
By the way.. Does anyone know what "focally positive" margin means? My pathology report just states "Surgical Margins: Tumor present at apical margin". I know I need to find out the size of the...
I am in the same situation. I had a positive apical margin and I am considering radiation. My Surgeon says it is not necessary to do anything at this time and he recommends watching the PSA closesly....
Thanks for your responses. I went to http://www.urotoday.com/ and it has a wealth of information. Thanks Ken. I read so much that I am on overload right now. I think I need to take a step back for a...
Thanks for your reponses. Frank - My pathology report did not describe the margins other than to say positive apical margin. Do you think I should push for more detail? Also, I am sorry if I wasnt't...
It is now 10 weeks since my RP surgery. The pathology report indicates a positive apical margin. With Gleason 6 and no extra capsular extension, the Surgeon suggested that there is no need for...
What type of surgery? open? Robotic? I too was in pain after my catheter was taken out and it had to be put in again but much earlier. I don't think you should be in pain at this time. I would...
Steve, that's funny. I lost my sense of embarassment many exams ago. However, speaking of upsetting encounters.... I was at a Urologist before my RP for a second opinion. He also had a female fellow...
Congrats on the good score... My surgeon said that after my RP no need for future DREs....