I have not posted much lately, but I have been checking in to follow all the old and new zeros. It is wonderful to read so many positive stories. This week-end my husband Larry ended his battle and...
Dear Erlien, I cannot express how deeply I feel your loss and pray that you may find solace in knowing your husband will no longer suffer. In so many ways I have felt a connection with you and your...
Les, I am so happy for you that the Taxotere is working. I will continue to send positive vibes your way that you have continued success. Karen /community/emoticons/eyes.gif ...
Hi Worried, My husband has had nephrostomy tubes for about 6 months. It is very important to watch the bags for any sign of infection We check the appearance of the urine every time he empties them....
Dutchy, I am wishing you the same. Love, Karen /community/emoticons/eyes.gif ...
Dutchy, I understand how difficult it is to stop chemo--may each moment you spend with your husband be filled with love and peace. I will keep you both close to my heart. Karen...
Geon, In 41 years of marriage, do you think that it was only IC that kept your marriage together. A husband to hold, to talk to, to share with, to dream with is what makes a marriage survive and...
Les, You and Carol are in my thoughts and I hope that the chemo trial is a success for you. The side-effects of chemo can be so frustrating, but it is so important to keep a positive attitude and to...
Here is Larry's...
Bill, I have had a few surgeries in the past and one thing that really helps me with the time before surgery is to concentrate on moving my blood away from the surgical site. I visualize moving the...
Hi Jack, My husband used Zometa for a few months, but had to stop because of other complications with his kidneys. His oncologist had also said that Zometa was important because of bone mets and I...
Tony, Thanks for the response. I tried to e-mail you but hotmail won't let me!! I'll go to the sites you mentioned. Thanks for your help. Karen /community/emoticons/eyes.gif ...
Jim, Good luck with the chemo--may it search out and destroy!! You are in my thoughts and prayers. Karen /community/emoticons/eyes.gif ...
HI Jack, You may also want to check on using Zometa during your treatment as it helps the bones rejuvenate and remain stronger Karen /community/emoticons/eyes.gif ...
Where do you get the blue wristband? I have wanted to put up a sign in the office at the school where I work--something like "Do you know what your PSA is?"--maybe this month would be a good month to...
Morning, Five days is a little soon to experience any of the side effects of HT--this does not mean the PSA isn't dropping though. Think positive. Enjoy your libido while you have it!! Karen...
Thank you all for your kind words, prayers and support. I would like to acknowledge each of you individually, but since that is difficult, please know that each of you have continued to touch our...
I haven't posted in awhile, but I received so much advice and support from this site at the beginning of Larry's journey, that I wanted to post again. We started Hospice last week and it was a very...
Lifeline, What type of chemo has Rob already received? How long ago was last treatment? We were told that nausea and vomiting can occur sometimes 5-7 days after treatment. Is he treating PCa or a...
I will keep you in my prayers. Although it is hard at this point to relax and wait for test results, try to find something that will keep your mind and body active and distracted as much as you can....
Tony, I'll take as many "and more" as possible! Thank you. GB, Karen /community/emoticons/eyes.gif ...
My husband has been on Lupron since diagnosis and has since been diagnosed with a second cancer that has caused intense pain throughout his body. I have changed his dressings on his nephronomy(sp?)...
Diana, My husband gets Lupron shots every 3 months. He did not start having side effects until about 1 month after the first shot. He was also taking Casodex at the time. Karen...
My husband has a harder time staying awake than trying to sleep, but it is due to his pain meds. Not sleeping is so frustraing and I have always felt that sleep aids only work for a few days and then...
I agree completely with Dale and will continue to keep you in my prayers as you continue to fight this disease. You are an important voice in this forum, as well as others, for getting the word out...
Jim, Glad to hear that you are coming home and on the road to recovery. May God continue to watch over you and yours. God Bless, Karen /community/emoticons/eyes.gif ...
Hi Morgan, There is a regular member on this forum who had a PSA of 1900+ and in my personal research, I have found more. Although it is hard to wait for the results of tests, try not to think of the...
My thoughts and prayers are with you and your wife as you continue forward. Sing so that the whole world can hear. God Bless, Karen /community/emoticons/eyes.gif ...
My prayers are with you as you continue your treatments. It is good to hear that the nodes are clear. Bless you and yours, Karen...
Erlien, Larry is tolerating the chemo well--just very tired and loss of hair, but he is experiencing a lot of pain. The oncologist continues to work with the pain meds and I hope he can reach a point...
Hi Dutchy, When my husband first began his chemo, we had to go to the local hospital as it was a holiday week and the oncologist did not want to wait a week to begin. Our experience there was not the...
J & J May God watch over you in the coming weeks and may you have great success. Karen...
Richard-- I am glad you are alrignt and that you know your own body and are strong enough to advocate for yourself. Larry (my husband) was scheduled for his second round of chemo this week and his...
Break-ins are such an invasion--your home is suppose to be a haven of safety and love. I will keep your parents in my prayers and will be sending ZEROs your way! God Bless, Karen...
hi southerndraw72, from all my research, i have found that surgery is not preformed with metatasis. the treatment would be hormone therapy. has your dad had any cts or bone scans to check for mets--...
Prayers to you and your family God Bless, Karen...
Lifeline, I cannot help with info in Canada, but I can pray for a new hope, a newfound strength and the presence of grace for both you and Rob as you continue to move forward in your fight. If...
Dutchy, How are you and your husband doing? Is he receiving chemo yet? Just wanted to let you know that I have be thinking about you both and praying for your continued strength. Karen...
May God hold you gently in the palm of His hand and give you strength and patience in this new phase of your journey. Karen...
Les and Carol, Thank you for checking in with us. It has been a long week, but Larry seems to be tolerating the chemo well, so far. He is extremely fatigued and achy and his pain meds don't hold him...
Susan, Dr. "Snuffy" Myers does have a chapter (6) in his book about IHT.He states "My own conclusion is that IHT is preferable because it is certainly less toxic and at least as effective as...
Thank you for a focus for the week--God Bless Karen...
Dale, God continues to work wonders. I am happy to hear your good news. Please keep my husband in your prayers as he begins Chemo tomorrow. I know your faith reaches far. Bless your good news!! Karen...
Morning, I posted a reply to you on my thread then I found yours. You are in my thoughts as you begin each new day and may it be blessed with hope and promise. Karen...
Dutchy, I am sorry to hear about your husband's second cancer too. It sounds like your husband and mine like the word "advanced" in everything they do. I see in your signature that they started out...
Diana, The second primary cancer is the neuro endrocine carcinoma. We just had new CT and MRI last week which showed all the enlarged nodes throughout the body. The kidneys are blocked by the tumor...
Okay--this prostate thing is getting out of hand--Monday Larry (my husband)had a biopsy on his lymph node at the base of his neck as the new CT showed nodes throughout his abdomen, pelvis, lungs and...
Here's what I know-- HT --Hormone Therapy used to stop testosterone production(Lupron and Casodex are 2 of the drugs used) wet--incontinent dry--no longer incontinent margins--the edges of prostate...
My husband started with Casodex (PSA 279) and then had another PSA test before starting Lupron for a new base --His PSA had dropped to 179 in only a few weeks. His last PSA was 12 so the PSA can drop...
Dutchy--Thank you for info on the Yahoo site, (I will spend some time there tonight.) I pray that you and your husband find an answer soon and I will keep you both in my thought and prayers daily....