Thanks so much Tall Allen and LupronJim! I really appreciate your replies. He did have radiation right after his prostatectomy because it was outside the margins. That was about 4 years ago. A couple...
Hi All, It's been a while, but Bill was doing pretty well on HT up to now. He developed a huge tumor on his pelvis. The doctor at Cleveland Clinic convened a tumor board and they decided it was NOT...
Sorry Jmon, I don't even see it listed on this site: http://www.homeopathyandmore.com/menu/fetchmateria.php?rec=C Does it have another name?...
Thanks again Ed....
Thank you Paul. I will send him the link. Best wishes and prayers, Dana...
Thank you Ed. Could you please tell me how many mg of turmeric you take? Are you taking it with cauliflower? The homeopaths say it needs to be taken with caulifower to be effective. Dana...
I recommended Bill take this because I've been studying up on homeopathy and there was a study at Rutgers that proved tumeric taken with cauliflower can slow or stop prostate cancer growth. I told...
Thanks everyone-I really appreciate your time in responding. Bill said the family doctor said there was residual tissue. He has a doctor he's been seeing at Cleveland Clinic. But his next appointment...
I just asked Bill to clarify-I think he may have been told there was leftover prostate tissue, but I'll confirm....
Thanks for the reply F8. I need to say first, Bill and I are just friends. The doctor told him he thinks the cancer is in the surrounding tissue and that the seeds could be strategically placed to...
Could someone please tell me if they think Bill is a candidate to have radiation seeds implanted? I was under the impression he couldn't have any more radiation after his salvage radiation after the...
Thanks again 142 and JNF, here is the info on the doctor he's seeing at the Cleveland Clinic that his surgeon Dr. Gong referred him to: Timothy Gilligan, MD, is a Medical Oncologist at Cleveland...
Thank you for the thoughtful reply 142! Sorry my siggy must be too long and got cut off. He's already scheduled another appt. for November for more testing and to discuss treatment, I just wonder if...
Hi Everyone, Bill's latest PSA is 5.4, so that would be a three month doubling time since it's doubled the past three tests, if I understand that right. The doubling time worries me more than the...
Thanks again for the helpful replies. I'm very appreciative for the time you all took to help me out. I'll post an update with the latest PSA results when I get them. God bless you all!...
Thanks for your input and thoughtful reply Goodlife. I remember you from when I was here last, glad you're still here. What you said was very insightful and helpful to me. But now I'm wondering even...
Thanks for your reply Boogee! I lost my signature somehow, I'll try to recreate it, but if it doesn't work, here are the stats: SO diagnosed 4/15/09 age 47 1/15/09=PSA 10 Dx 4/15/09=Right side=...
Thanks Andrew! Yeah, I'm thinking more like you. I don't understand how the dr. could tell him come back in three months when he doesn't even know what the test results said yesterday....
Thanks a bunch for the replies and support! Yikes-sorry for the typo-but the number was 1.3 six months ago and then 2.5 three months ago, who knows what the test yesterday will say. Does that change...
Hi Everyone, I don't know if any here will remember Bill, but a few years ago when he was 47 he had a RP operation and then had salvage radiation because of positive margins. He was between stage 3...
Thanks so much for the feedback everyone! Sorry about the typo in my signature, I corrected it-should be .3, not .03. Hugs, Dana...
Hi Everyone, Bill got the latest result- now .3, was .2 three months ago. I calculated the doubling time as 6 months. I'm very concerned about the increase, although relieved it's not worse. The...
Hi Jennifer, I hope you don't think I'm trying to scare you, but I feel a need to share my story. Not that they don't have great credentials there, the place seems to awe people with its name and...
Lots of good thoughts here. Living life on life's terms, not always easy. I was at a forum where a reverend who is a PCa survivor said for him he asked first why me, then why not me, and then what's...
It's called a ProstaScint scan. Dana...
Hi Everyone, Could anyone here tell me what the test is called that they give you before salvage radiation to highlight where the cancer cells are? All I know about it is he has to get a liquid...
Thank you for the replies. He got a test a couple weeks later because it was at another hospital he is probably going to have radiation at. The other hospital also said it might take a little longer...
Before surgery, Bill's PSA went from 10 to 15 in 4 months. I calculated this as about a 6 month doubling time. After surgery, it went from .11 to .2 in about two weeks. I calculated this as .6 month...
Surgery was 7 weeks ago and his PSA was .11. How bad/good is that? The two people we've seen now both recommended hormone treatment with the radiation. He thinks his PSA is low enough that it's okay...
Thanks for the replies. He's pretty set on radiation. He has extensive positive margins, so both hospitals are recommending it, and he seems to prefer radiation before jumping into HT. I think he may...
It's been about 6 weeks since the prostatectomy. My boyfriend has about 1/2 the erection as before, but it's not capable of penetration. He can get an erection capable of penetration with the pump,...
I have to ask-are there any men out there who still have desire after getting hormone therapy and enjoy a passionate kiss? Dana...
I was looking at the clinical trials for this and they indicate "solid tumor". Can someone please explain what this means? Does it mean one that has well-defined edges? Dana...
Yikes-the surgeon's office told me today that the oncology nurse yesterday totoally missed the positive margins in the path report. I made her read it twice and she still wrote in her notes that the...
Thank you so much for the replies. I think my main confusion is whether it's locally advanced or systemic. I tried asking her today and couldn't get an answer. The Dr. Charles Meyes you mentioned...
We went today and it turned out to be an oncology nurse. She said the path report didn't indicate positive margins.The doctor told me they scraped alot at the rectum area but couldn't take it any...
My boyfriend asked if this was for provenge. I don't think so, but could anyone here tell me what this is? It looks like using people as guinea pigs for the protate cancer vaccine I read about :...
Thanks, I really appreciate the information and the time to respond. Hang in there hugs to all, Dana...
I'm mostly thinking of the prostate, but would like to know either. My bf will get radiation soon and I'm wondering if his psa still rises after that, how soon before he could have radiation again....
Does anyone here know how many times in a 10 years period a person can have radiation? Thanks a bunch, Dana...
Got the results today. As I expecetd, he needs radiation. He's now T3A, N1, MX. The dr. said one out of 13 lymph nodes was positive, but seemed to think that was the only thing that mattered. He said...
The doctor's assistant at the Cleveland Clinic today told me they never give prostate cancer patients chemo because they don't think it's effective. I'd appreciate any feedback. Keeping the forum in...
Why do you ask John? What is the standard treatment when it's escaped the prostate? I was calling all week for the MRI results and they weren't ready before surgery. He had the MRI the Monday before...
Thanks so much for the positive words, it helped and I really needed it today. I guess because I'm a vain female I think about hair loss. I guess it's more connected with breast cancer because the...
My boyfriend had robotic surgery at Cleveland Clinic today. The surgeon's demeanor wasn't very encouraging at all. The operation took about 6 1/2 hours. He said the gland was stuck to the wall and...
Hi, I've been posting on the prostate cancer forum because my boyfriend has a serious case and is having surgery next week. A couple days ago they found a 2 cm tumor, they said is likely...
Thanks again for the time in replying. I'm struggling with fears and when the one doctor said he thought it was a bad idea, I heard that a lot louder than the other lady saying after 4 weeks it's ok....
My boyfriend loves his bike and a friend of mine who's a nurse for 20 years with cancer patients advised me he shouldn't ride the rest of the summer. Another doctor agreed. But the doctor who's doing...
I posted earlier about choosing between surgeons. The feedback agreed to go with the most experienced surgeon. Now I find out that the hospital with the supposedly more experienced surgeon would also...
Thank you everyone for taking the time to reply. I was scared about the wait because I didn't know how fast it grows, I've been told Gleason 8 is aggressive. He also hasn't has the bone and CAT scan...