You sounded like me for the first year after my ileo. The shortness of breath was horrible. I would end up in the ER and they would give me fluids and then I would get a big bill and I knew I had to...
Hi Chas, Congrats on the bun in the oven! I bet that has something to do with the stoma being pulled in a bit, but I don't know for sure. I am sure you will get advice on this one, but I have never...
Hi Christine, Looking back 5 years now I was so stressed out before surgery, but it will be fine, just use common sense and take time to heal. Everything will fall into place, and remember to chew...
I was in my 50's but also had been in UC land for 12 years, and we are at risk as our colons have UC for that long. I didn't choose to have UC but I did choose to have the colon and rectum and anus...
Thanks all for the replies! I knew you would know. I think we will try rubbing some vit E cream on it and see if it helps. Leslie and Dennis...
HI all, I don't get any good answer from the doc, so I will ask you guys. My hubby had the DaVinci surgery a couple years ago. His prostate was extremely large and they had to open up one of the...
Thanks everyone for the good advice. I didn't really know about the peeling off of the nerve, but I do think some damage must have been done at that time. We will just live with that and maybe do the...
Hi, I am the wife of a nice guy who had prostate removal by DaVinci method almost 2 years ago now. The doc said both nerves were spared, but after all this time he cannot get an erection no matter...
Hi Bob, This woman is my mother!!! That is why when I was sick and having my surgery, I was praying she would not come to be with me her only child, her daughter. Some folks just don't do well with...
Chassity, I have been post op since 05, but I had spots on my legs till last year. I think finally they are going away. I went to a dermatologist but he didn't have any clue what they were. I just...
Kansas City Missouri, Hopeso, (Leslie)...
Hi there, seems like you have suffered long enough. I have an ileostomy and the discharge is not like stool that has set in the colon for a while. It is more liquid and still has a less offensive...
Hi. As a former member of this forum, I have to put my 2 cents in on this issue too. Now I have an ostomy, but I still feel bad for everyone of you who are suffering with this horrible disease, and...
I have had my bag for 3 years and packed up the boxes of meds and showed them the door! Not having a hole down there is weird, and the bag in itself is strange, but I love not having to find...
Hi, After my ostomy surgery (for UC), I had very watery stool, and kept getting dehydrated, so the ostomy community said to eat "thickening foods". They were applesauce, mashed potatoes, pasta,...
Hi, I am a lady with a permanent ileo, and I feel like it was due to constant c-diff infections. It is an infection that I feel I got due to my antibiotic use. I really do believe it. Actually I had...
My friend, your post bring tears to my eyes! I have been there, and now I am so much better, and able to live a normal life again. My suggestions are the following: 1. Odor drops in the bag each time...
Hi Kids, Long time since I checked in. I had to read this though. I did go to my local CCFA for a while while I was suffering with the UC and then a few times after my colon, etc were removed. We had...
Well I had DB call the robo doc yesterday and get an appt. for next Thurs to talk to him about he latest weird thing that happened after the surgery. Last week he was pooping when he got his one and...
DB is afraid for me to call the doc about the purple penis head during the pooping erection, because he thinks the doc will stick something up his back side, to recreate the condition that makes it...
Paul, I sure hope you are right. It was a shock to see it like that. Usually before the surgery I only saw it in the "dark". But now he lets me keep an eye on his parts and all the robot wounds. He...
Kids, it has been a month since robo surgery. DB is not having erections so good except when he poops. He is getting a pretty good one then, but my concern is that the head of the penis looks purple...
We got the catheter out at 7 days and spoke to the dr about getting some ed drugs and he acted like it was too soon. He said he would give us some if we wanted some, but wait just to get healed up a...
Hi kids, Well we got the catheter out today. DB was all clenched up and ready for pain, and the doc already had it removed. I smiled. All the path report was good news for DB and me too. So now we...
You guys are the best. Les and DB...
Hi Kids, Well on Friday the 14th of Dec. we went in and got the surgery. It was 5 hours long and the doc said that the thing was huge, and due to that fact, he had to do some reconstruction at the...
I don't know if DB is getting cold feet about the robot surgery on Friday the 14th or what, but he seems scared and I never have seen him like this in our 36 years together. I have been scared right...
Oh my goodness, what would I do without you kids? I am sitting here crying tears of gratitude, for the support I am getting here. I have always been the sick one with the ulcerative colitis and then...
Well it is almost 3:00 in the morning and I just can't get over the visit yesterday with the robo doc. I know they have to tell you stuff that can go wrong to cover themselves, but man! It was the...
Thanks guys for all the help! Tomorrow is the day, so I'll let you know how it goes. Les and DB...
Hi Kids, Well tomorrow (Fri) we get pre-op tests done, then see Robo-doc on Monday. I need to get a list of questions together to ask him and am drawing a blank. Any suggestions? Also is it normal...
Thanks all, I still have much to learn. My brain is getting tired, but I will not stop till I feel confident that we kinda know what we are facing. With you all, I know we can do it. Les and DB...
I can relate and am so sympathetic with you. After 2 years of my being sick with UC and now it's been 2 years with my ostomy, my hubby has to have surgery for prostate cancer. I hope that strength...
If there is sex after surgery, is there any semen? Is it bloody? For how many times? Is the urine in the catheter bag bloody? Red, pink, clots or what? What is normal, or when does normal happen?...
Dr Walsh's book says not to get retested for 3 months, and some of you here have been tested at 6 weeks. Why? Dr Walsh says that that is way too soon. Les and DB...
Please have them do a blood test to check for celiac disease. It is easy to live without gluten if you get a positive result on that test. hopeso...
Hi Kids, We had our visit with our urologist and he said Den can have the daVinci with his big prostate. He said they can get a kidney out of that incision so a prostate should be fine. We will meet...
Thanks all, Seeing doc tomorrow for more info. Les and DB...
Tamu, What do you mean by injections? Les and DB...
Hi Kids, We have had a good talk tonight and thanks to all of you guys. One question we have is that they told DB that his prostate was one of the largest the uro had ever seen in his 30 years. His...
DB is 56 and believe me he has tried every regimine to get the bowels going. The docs have tried many things and to no avail. He would drink a half gallon of apple cider each day. (gained weight...
Hi Kids, Well after 10 days we finally heard, one core positive, gleason 3+3. I have no idea what that even means but that's what I will learn from you guys. We meet on Tues to talk. 1.My hubby has...
Hi, I think they might not want to risk it for themselves and any liability, but what if you sign a waiver or something. I see them work on tiny premature babies, who can't breath and have heart...
Thanks so much for the responses. I am going to have DB read them all. His DaVinci surgeon(should he have cancer has done 80 surgeries.) We hope for the best and that we won't need it. Will let you...
Hi, we go for the biopsy on Tues the 16th and I get the impression that the doc thinks the DaVinci is the best way to go. (His son does the operation) And I was wondering if you have to have chemo...
Hi Annie, I did have a surgery during a horrible flare. I had strange cells in my urine, and they put me to sleep in the hospital and the urologist and the guy that puts you to sleep knew I was sick....
Thanks so much for the help. I cannot believe how much weath of knowledge is in this forum. The other night I didn't think I would ever get to bed. I will keep you guys updated, our doctor's visit is...
Thanks folks, Yes his prostate is very large, and with a finger exam they said last year it felt mushy. He has an appointment for the 14th to go in and talk to a doc in the group he has been dealing...
Hi all, well I am the wife, and my hubby has had issues with psa tests and biopsies since 2002. The biopsies were ok, then and the number ranged from 4 to 5 to 7 and back to 4 last year, but the last...
Not having the feeling of pooping razorblades. The best part was the day I gathered all my huge bottles of Asacol, and enemas, and prednisone, and, suppositories and donated them to a freind. Not...