Alf- That is great news for you and without the hormones! May you continue to have that <.01 PSA!!...
That is great news!!! Congratulations!! This is great news for others to read as well. There is hope! BF is not even 1 yr post and he has maintained a .02 for 4 months from a 51! I pray everyone here...
Just saw Dr. Myers and he recommended 4000 IU a day of D3....
Hi Lynne- Its been a while and just checking in with everyone. We have been thinking of your Dad, you and your family. This is fantastic news! Im so happy to hear. Peter is now officially a .02 and I...
Hi Willie- Its been a while and just checked in. Im sorry about the PSA rising! Did you have a bone marrow MRI? That may detect micro-mets. A head MRI may be a good thing though. You in my prayers....
Congrats on your ZERO PSA! Thanks for the info. I am going to see if we can get letters from ED dr and surgeon. BF had no success with Viagra and pump as well. Tried the Trimix but hurt due to...
Mr Gimpy-- Do insurance companies approve Viagra, Cialis and Levitra all at the same time? I am going to look into this. Bob- That is great news about getting function back and hopeful for us. Who is...
Seems that most men are only allowed 6 (max) tablets a month. Insurance companies deem this a "recreational drug" even though its for therapy for post surgery PC patients or patients with ED due to...
Willie- Good luck with second opinion and hope you let us know how it goes. Is it with a PC oncologist? I feel they are privy to PC information out there that other oncologists may not know about...
Great idea. BF did colonscopy just before surgery in Jan. I think he should do one again in near future. Thanks for info....
142- So sorry that you are so fatigued. I hope you get your energy back! Alf-Thank you for the information and the laugh! BF describes the feeling as repeat of surgery as well. I guess the RT just...
Fairwind- Thank you for starting this thread and to all that posted information. I am going to take the time tomorrow to review all this helpful information. BF is G9 with invasion and mets. He opted...
BF is having IBS related symptoms such as intestines irritable, loose stools and stabbing pain behind belly button area. I feel they are radiation and intense workout related. He feels that it may be...
Willie- This is much easier for me to say and hard for you to do but you cannot get down. This lowers your immune system and spirit and lets the "C" take over. There is something out there for you! I...
Willie- I hope you can get to Sloan. I know you will get good care there. BF is at Sloan and is a G9 with mets. Although they are very good to him, you need to walk in loaded with information and...
Willie- Also talk to your oncologist about mixing up your hormone therapy. Maybe you can switch it around to see what works. Dr. Myers talks about different mixes of HT. Please let us know how you...
Willie_ I am devastated to hear what you are going through. Being hormone refractory does not mean the end. What are your stats? Where do you live? I also believe in Dr. Myers. Even though BF was...
Jim, I understand your concern and contradictions in what is right or wrong. I've read that diary and red meat is not good so BF took that out of his diet. Then I read the Budwig diet about flaxseed...
Hi Mimi, Welcome to such a wonderful group of people that I have gotten such strength and wisdom from. Please do not fret. In 1999, my Dad was diagnosed with PC at age 58 with Gleason 6 as well. He...
I may be wrong but i think a .1 is great!!!! I remember it took a while for my Dad to get a zero after he had seed implants 10 years ago. dont be discouraged if you dont get a zero. I hope your...
Congratulations!!! and thank you for sharing. This is so encouraging! May you be blessed with many 30 second and more time going forward! We are only at the 7 month mark but I have always been...
Thank you so much for your prayers! It is very trying. I am not wife yet and we are talking about it now extensively. We have been together for 7 years with our trying times in between and this is...
I have also done alot of research on this! I have a friend whose brother has recurrent thyroid cancer that spread with a tumor in one of his lungs. He researched apricot seeds and had his brother on...
Hi Lynne- Im so sorry that you are having sleepless nights! Its understandable though. I dont know how to answer but to give you Peter's stats and see if you can compare. I know that their diagnoses...
Tony- I joined HW recently and have to tell you that you are an inspiration. BF is around your age with similar stats and I always refer to your spirit and stamina (as well as others here!). I wish...
Lynne- That is great news for your Dad. I hope he is fairing well now that he is done with radiation. A big hello to your parents from Peter and me (even though I didnt get to meet them). Since we...
Zufus- Will never be upset when someone gives their opinion and actually value everyone's opinion. Trust me, there are times where you second guess yourself. At the time, two surgeons, one from Sloan...
Brad- Thank you for the info on the trial. He really is too young and its so aggressive for his age. He is treating with Drs. Scher and Zelefsky at Sloan which we are very thankful. HT has its side...
AAS- Please let us know how your Dad fairs with the surgery. You have a lot of daughters (including me) wondering and hoping your Dad has a fantastic recovery. Also Lynne, I want to thank you and...
Brad- I am not as experienced as others on this forum. I only speak from experience and research I have done. BF is very young and G9 with bone metastasis. He is treating at Sloan in NY. He did...
I understand your concern but I think recovery time is better than surgery time. I had minor surgery twice and didnt want to do anything with anyone right after even with family. If family is there...
AAS- Even thought it was 10 years ago, I still remember the call I got from sister in NY when I lived in AZ telling me that Dad had PC. I am the oldest of 4 and always kept the family together. She...
Completely understand!! Lots of luck with surgery!...
Dr. Samadi is good but you have to consider the side effects-good surgeon or not. ED is a factor and should be addressed more when you consider surgery. We felt we had no choice with surgery and...
George- I hope you can get an appt just as quickly. After the initial phone interview, Dr. Myers will want all your test results so good to get them in order now and ready to forward to him. We were...
Dr. Myers, contact AIDP at 434-964-0212. I just researched AHCC and interested. Thank you for that information....
George- We just got an appointment with Dr. Myers for late August/Sept. Call now and you should get an appointment around that time. We just read his book and very informative! Vit D, Vit C, Zinc,...
I am also a new to HW and only speaking from experience from research I did when my father was dx 10 years ago and now with my BF. My father had a gleason 6 and seeds worked for him at 59. He has...
I could understand that! Once you radiate, you cannot have surgery or most doctors will not do it. For BF, we went to Sloan and Mt. Sinai. Decided on surgery at Mt. Sinai and treatment at Sloan. We...
Vam-- Are you in NY? My father was Gleason 6 and a low PSA as well. He opted for seeds 10 years ago and has maintained a 0 PSA since then and does not have issues that surgery may cause. First...
John T- Thank you so much for your wealth of information. I do not have the pre-op but have post-op. Left bladder neck, left pelvic lymph positive for PC. L and R pelvic nodes--2 nodes almost...
We were researching the Combidex MRI and Prostascint since BF had lymph mets. Some lymphs were removed but we want to make sure undetectable PC is not in other lymphs. Looks like we started the...
Nervousness can definitely do a number on the stomach!! I've read that cold drinks v. hot drinks help the nausea as well as, the BRAC diet, salty foods like pretzels/crackers, ginger whether ginger...
Smokie--- Thank you for your post. It seems that you waited 2 years until doing the implant. ED dr. told us that if nothing happens in a year, that he should consider. I feel that 2 yrs gives us more...
Good luck Telstar! BF was queasy/nautious with RT. Dr. prescribed Zolfran that you can take before RT. He only took it a few times since the symptoms lessened. His treatments are in the morning and...
Thank you James!! Very helpful information regarding techniques to use before or with injections. BF is currently injecting .35ml of Bimix 30mg pap/2mg phen with some instances of no reaction. (He...
Thank you Gene. I also noticed in that thread, some links regarding injections, ED. I will look at those as well and see if we can gain any insight. I've read other posts that men have tried viagra...
Gene- Your post is so timely!! Its as if.......I have been looking for threads about this for a few days now. My BF is so young and having a hard time with ED since surgery 6 mos ago. He is doing the...
BB- I feel awful that you and your family had to wait that long for resolution! BF could not even wait a few days for results. I would had to commit him if he waited 2 weeks! I truly hope that Dana...
Lynne- Yes he is! He is in the 8am slot. He does remember your family. He recalls your sister coming in from Chicago recently? BB-- I hope you can get to Sloan. 90 mins is a bit of a hike but worth...