Mr Retired: You may want to ask your doc about switching to Zoladex. It follows the same pathway as Lupron for cancer control but instead of an injection, it is a tiny pellet planted into the belly...
You nailed that one bill. Don...
Hi Zufus: For a long time now I has told others (and myself) that "When Zufus speaks, listen up!) Just a few words of encouragement... Hang in there, We all need you. Don K....
Loco: Google "Hearing help Express" Don...
Hi Break: I had that too with Lupron after about the3rd shot. Finally got so bad that my doc changed me over to Zolodex. Exact same med but different delivery system. Zolodex is a tiny pellet that is...
Hi Deanna: The first rule you need to know about prostate cancer is- "There are no rules" I too am on Lupron and Casodex and after 4 years, the frog is still frozen. Check out the website YANANOW for...
Not famialar with Firagon, but had bad SE from Lupron Shots. My new Onc put me on Zoladex which is the same formula as Lupron. Zoladex is a rice sized seed implanted in the belly fat by what looks...
I am one of those guys who has BAD reactions from Lupron. Can usually barely get out of bed the next morning. Doc switched me over to Zoladex which is the same chemical as in Lupron but the delivery...
Mel I had the same problem starting with the 3rd Lupron shot. Sometimes so bad that I could hardly get out of bed next morning. Finally the doc switched me over to Zoladex - Exact same medication as...
Brian: 'BIKERS RULE!' Don...
Sorry guys - I goofed Yes, Zometa is an IV infusion for the bones. I had it confused with Zoladex. I am on both. So far, no noticeable side effects from the Zpmeta infusion. Don...
Curiet: I am presently on Zometa. As you may know, it is not an injection (shot) but an implant in the belly fat. My understanding is that it is the same chemical as Lupron but a different delivery...
Hi Rick: I've had that too. As long as it does not start growing you will be Okay. Don...
Kbota: I also have macular degeneration in addition to PCa. My eye Doc has me on a vitimin called "PreserVision" and knows about my AMG. No side effects so far. I am also on the shots in the eye...
Hi Gary: More knowelegeable people than myself will soon join in May I suggest that yoiu Google "YANA" "Yoiu are not alone. Terry Herbert has a fine PCa site there. Read "The elephant in the room"...
SC:I'd like to reply to your item 5. - Pain at injection site. It seems that a small percentage of us have this reaction to Lupron and so far no Doc has been able to give me an answer. We are not...
Hi Jaxum: My prob is a little different but it sure concerns pain & Lupron. When I get a Lupron shot - No prob, just another shot in the butt. But the next morning it hurts so bad that I can't...
I am interested in that path also. I have read about the gel and the patches but understand that most doctors are not interested in prescribing them. No money in it you know. I'll be watching this...
Your dad seems to be doing very well and will have many years of good life left. One thing that needs to be addressed however, is Quality of Life (QOL). If your dad in his present good condition were...
Congrats Bob. Wishing you the best, Don K....
For Englis alf: Terry Hurbert in Australia did exactly what you were asking - He took a PSA test every day for 30 days and posted the results on his YANA website (You are not alone now). Daily...
Turismo: Folks with a lot more knowledge will soon chime in, so hang in there. I Think the first thing you need to do is to fire your present Doctor and find a good oncologist. You need help and are...
English teacher: Other more knoweagable than myself will soon be on to help. In the meantime, here is my take: After about a month on HT, your sex life will start to go to hell. You will most likely...
Cat sleeping on my belly? So THAT'S what it was! Don K....
Putt: Thanks for that advise. If/when I go back on Lupron I will be sure to do that. Don...
Old Sailor: Yea on the sore butt! First Lupron shot was just another shot in the butt. Second and third ones were so bad I could not get out of bed the first morning after. Took about three days to...
On flax seed: The reason, as I understand it, that flax seed oil or store bought meal is not recommended is because it goes rancid so quickly. The flax seed itself will keep for a long time just as...
Sonny: Thanks so very much for your post. I started out this day in bad depression from my little troubles and then read your post. You reminded me that many of the members here are struggling with a...
GTO: I had that exact same thing too prior to serious talking to my Doc. Besides the DRE he checked my testicles and all he could come up with was "Probably referred pain" (from my sore back). It...
Clock: My guess is a rotator cuff injury. Be sure to let us all know what the MRI shows Don...
Old Sailor: Just hang in there. It is not a fun thing but you will manage. Just remember that it is a LOT better than the alternative. I've been there and I'm a wuss. So I'm sure you can handle it...
Willie: I don't know much more than you do on chemo except that it is usually considered a last-line treatment after everything else has failed. I too am on Casodex (after being on Lupron for a year)...
Airborne: You need to understand that Prostate cancer treatment is BIG business. And Doctors and indeed, the whole system is a business. On the other hand, we who suffer from Pca need treatment....
Knotreel: That's a very good question. Wish I could come up with an answer, but soon oters will chime in and educate both of us. Don K....
dear Lost: Lots of more knowledgeable folks will soon jump in. But just for starters: Sounds to me that your problem is not prostate cancer at all but just an enlarged gland called "BPH". What is...
Tony: You too? Dang, that makes four of us. Don K....
Hi Jack: Just want to make sure I didn't scare you with the report of big time pain at the injection site with Lupron. Myself, Sancarlos and one other patient are the only ones I have heard complain...
I was on Lupron for ten months and did not gain a pound. Don't even ask about the other side effects though... Don K....
Mind vs matter Hi Jack: Appears that you are getting a good education on HT here. All above very good posts. Aside to Sancarlos - Boy I hear you on pain at the injection site! First shot of lupron...
Hi Principal: Rule #1 of Prostate cancer "There ARE no rules" Rule #2 of Prostate cancer "EVERY therapy has side effects". Having said that, let me give you a bottom line on hormone therapy - It...
Hi Mel: The above posters have said it quite well - Hormone therapy is not fun but it IS manageable. Remember that they don't call it "Chemical castration" for nothing. I was on Lupron for 10 months...
Hi Arno: I hope there are some good replies to this thread. I am on Casodex right now and realize that sooner or later I will go resistant to ADT and so have been thinking about DES or Estradial...
Kbota: F8 has it nailed -about three weeks The worst thing for me was the total loss of libido. I could (can) hardly believe that suddenly, you don't even WANT sex anymore. Really weird. Now I...
I never had a sleep problem on Lupron. Outside of total loss of sexual desire & function, many hot flashes & depression, Lupron was just lovely! Don K....
Oct: Just spotted your post from a few hours ago. Please stay tuned because soon, a bunch of people will reply with help and encouragement. All I can say is that I sure can understand how you feel...
T Levels: My Doc says that T levels vary in healthy men, but around 500 is in the ball park. Many docs say that a T level of less than 30 is considered to be castrate level. Other docs say that a T...
Hey, that was a great video. Thanks for sharing. Don K....
Bill (and all): I have no business in this thread as I'm a HT patient right now. However, I realise how miserable you must be so will offer the following: I have read about "external catathers" that...
Bone Scans: My tech was proud of his new machine and explained how it works to me. Radioactive iodine (low dose, half life 12 hours) is injected via IV. Wait for two hours for the RI to get to the...
Flare We still don;t know if the drug used on your brother was Lupron. But Lupron sometimes causes a condition known as "Testosterone flare". This is a sudden increase in testosterone production for...