still in zero club after almost 3 years. thanks again for all the support that is found here. would have been much more difficult without you!...
thanks for the reply. comforting to know it's probably not that rare to have happen....
going on three years since i completed rp followed by rt. gave some blood last week expecting results by today and when i called they asked me to come in tomorrow for a re test, that the lab was...
woodstock, sorry for taking so long to reply. i'm not sure if "reccurence" is appropriate for my case. "persistance" has also been used by docs. my first psa post surgery was 0.02. per uro. this...
Rider, sorry i don't seem to see your e-mail address. my journey started in 2009 when i was diagnosed. initial staging was t1 but uro. said cancer was on both sides of prostate. gleason was 6 pre and...
hello everyone! been a while since i posted however, i frequently check in and read posts. seems every six months the anxiety returns as test time nears. will get results back next week. was...
i started radiation about a week or so after my second post op psa (which was 0.05). i've been "undetectable" since, getting close to three years now. i did not have any tests during radiation tx....
BOOGEE, My Dr. did not put a number on it, only stated that it's probably best to wait as long as safe to do so to begin (if RT fails). You are correct about the crapshoot for sure. There are so many...
BOOGEE, I did not have HT. The hope is that any remaining cancer was left in the bed area that was radiated. Dr. says if detectable psa returns, it will have to rise quite a bit before HT is...
BOOGEE, I did very well with radiation, at least as far as I can tell. I had 39 treatments total. The only negatives I experienced were a little fatigue at times. That could be because I drove over...
BOOGEE, Sorry to hear surgery didn't do the trick. I had RP in 2009 and first post-op psa was 0.02 (not what we were hoping for). psa two months later was 0.05 and two weeks later we started...
i also was g6 with positive margin. had rp in 2009 and completed radiation about a year ago. psa has been "undetectable" since. Thank GOD! your post is very encouraging as i still get the feeling of...
Thanks Michael. Hopefully nothing to do but enjoy six more months however, preparation never hurts. Thanks for the reply. Terry...
Been a while since i posted but stay in the habit of reading others almost every night. I'm up for my third psa test post rt tomorrow and anxiety is causing me to play the "what if" game a little. If...
newspaperlover, just a quick word about my experience, as it is not exactly like yours but somewhat. i had rp in oct. 2009 and first psa following surgery was 0.02. Dr. said it was good but not what...
HD, i haven't posted lately but read others every day and decided to reply as your situation appears not a whole lot unlike mine in oct. 2009. i was g6 with cancer on both sides of prostate with a...
i started rt about 3 months after rp because i never reached undetectable. i had 39 treatments about an hour and a halfs drive one way each day. i worked during this time but my job is not physically...
not much anxiety for me anymore. that was not the case early on in this battle. i guess i was naive thinking in 2009 that rp would eliminate this problem. first post op psa was 0.02 which uro said is...
casey, thanks for the further explanation....
i'm a little confused about reading that someone's psa that does not reach zero after rp is almost always micromets. my psa at first test after rp was 0.02. i did have a positive margin. completed...
i too have exprerienced this to some degree. i took meds for depression for three or four months early in this fight and decided they were not needed. i don't think the increased sensitivity is due...
tigre, just south of Atlanta, Ga....
my surgeon also said it depends and that he saw no reason to take any nodes during surgery. my brother had some removed as his dr. said they were suspicious. he has been perfect since rp, except for...
concerned, i was 45 at time of dx and also was gleason 6 (pre and post robotic surgery). my cancer was also on both sides of prostate with a positive margin. my psa at dx was 3.9. my uro and...
Ron, actually i did have rp in 2009 and first psa follwing was 0.02. second post-op psa was 0.05 and rt ensued immediately. uro initially was calling for three month tests for a lot longer than it...
ratman, sorry you have this bridge to cross. i can only speak to the robotic prostatectomy. had mine in late 2009 and i can honestly say that the worst of it was getting over the anesthesia and the...
had my third post rt psa about a month ago and it was again <0.1. this was done at uros office. i'm scheduled to meet with rad. onc. thursday for psa and to answer the questions about bowel habits...
questionaboutit, as it turn out i do live about an hour south of atlanta and pretty much in the sticks, so getting a little sun all over is no problem. what about milk though? is it good or bad? i...
thanks dave, i too am all about getting every edge i can. i'll have this discussion at next dr.s appt. and in the meantime will get plenty of sun as always outdoors with the dogs or at the golf...
thanks for the responses. had rp in oct. 2009 45 y.o. pre-op psa 3.9 1st post-op 0.02 2nd post-op two months later 0.05 completed 39 tx rt three consecutive <0.1 following rt gleason pre and post...
just looking for clarification. i've read several posts recently about vitamin D. i've had rp and rt and three consecutive <0.1 results following. if i understand correctly, there is a good chance...
bitman, sorry to hear about you and your brother. i don't post much but lurk almost daily. i can't tell you how helpful the people here have been to me and my recovery. i had rp in oct. 2009 after...
eye4thelinks, like a few others here, i would not put off the biopsy. my psa went from 3.0 to 3.4 to 3.9 over about eighteen months. long story short, had biopsy and was dx with pc on both sides of...
got the news today, third psa after radiation is still undetectable (<0.1). uro was more interested in talking ED than psa. he also said he sees no reason to do another before six months. do have...
questionaboutit, our situations do appear similar. i'm sure i remember uro saying my prostate was only slightly enlarged but very muscular. DRE dr. said it felt maybe slightly enlarged but very...
fairwind, sorry if i wasn't clear. i already had radiation and have had two psa's since and am going to hear the news tomorrow on the third. my 0.02 was 3 mo. following rp. uro said it was good but...
i've heard a few times that g6 rarely progresses to metastatic disease. i will get my results tomorrow from my third post rt psa. the first two were <0.1 but try as i might, this anxiety is...
hindsight being what it is, i no longer trust my former gp or any other. if i've learned anything through all of this it is to be as knowledgeable as possible, and the knowledge unfortunately ain't...
hunter, just a quick response to assure you that you are not alone in this boat. i was dx and had rp in 2009 at 45 yo. i was g6 with one positive margin and also got rt due to rising psa after rp...
i sure hope it gets easier, six flags can't touch this roller coaster. went for my third post rt test today and will get results next tuesday. seems i usually do fine until the week of test and the...
had my robotic done in 2009 by dr. benjamin lee. he is with urology of greater atl. and has offices in stockbridge and griffin that i know of. he did my rp at St. Joseph's in atl. at the time of my...
i had the same thing happen post-op for a few weeks. uro said it was normal. after radiation though i had more blood minus the chunks and had the ever pleasant cysto done. this revealed that an area...
my psa result after rp was 0.02 and two months later 0.05. uro got me to the rad. clinic the next week to get started. two consecutive psa's after rt were both <0.1. both uro and radiation onc....
thanks for the video. we have three that let us share their home. 4 yr. old boston terrier, 3 yr. old mini shnauzer and 8 mo. old pug. i owe them all a great deal as my recovery (both mental and...
i wasn't given a specific amount to drink but told that my bladder needed to be as full as i could hold for each treatment. the reason was as the bladder is full it makes the prostate bed more...
mr bill, my experience with rt after rp has been almost problem free. i understand perhaps there is a chance of dealing with some not so pleasant stuff later on, but for now the only real issue is...
chrisR, thanks for the reply. i agree completely that the positive margin was just that and not recurrence. at least i sure as heck hope so. i think my uro was just trying to tie in higher...
thanks once again for the replies. i can't begin to tell you how much HW and you all have eased this journey for me. to know that the initial overwhelming anxiety and depression are quite normal....
thanks for the responses, sorry i left some info out. uro says gleason is 3+3 pre and post rp. upgraded from t2 to t3 due to one positive margin however, uro says the location of the positive margin...
not sure of exact dates but i suspect my pc journey began in 2007 when psa was 3.0 at regular physical. my age was 45. about a year later, psa was 3.4 and approximately 6 months after that 3.9. would...