I have the same situation. An ever rising PSA. Now 10. That is with androgen treatment and post radiation. The Drs at MDAnderson and the local cancer center say "we know you have prostate cancer but...
No Zytiga! MDAnderson ordered Zitiga and Pred.. Repeat MDAnderson Oncologist ordered it. GEHA ,my Gov. insurance Co.," ask eviti ,Inc. an independent third party expert cancer decision support...
Good for you. I am still having trouble with Express Scripts. You might look at Zytiga website. My copay was About $ 200 but Zytiga has a program where your copay is $10. It is under the financial...
Thanks. What was your CO pay on what I understand is a $9000 a month med....
Thanks. They want a "pre-approval". Did you have to do this?...
Did anyone have trouble with their insurance company filling or paying for Zytiga. I have Express scripts as a pharmacy insurance and they are making it hard on Dr. ,Nurse ,Me. It is almost like they...
MDAnderson said that the window of opportunity for radiation is between 6-9 months. With Androgen treatment within 6-9 months and a PSA of .5 (in my case .6) is time for radiation. You have killed...
I am T2b N with ? scapula met Dx in April 2012 at MDAnderson with Gleason of 3+4=7 in 3 core and 3+3=6 in couple more PSA 33. They got PSA down to .6 with Androgen Meds and said Radiation was the...
"To many false positives and false negatives", correct. Got reading of maybe bone met from ADAnderson and maybe not reading MDAnderson. Looks like a incomplete science. I ask way they did not have...
It is just friendly fire. Remember /community/emoticons/cool.gif ...
This is similar to me and I happy to say 3 more IMRT but had them done locally . Started MDA PSA 33 one postive node. Gleason 7. Mda said we do not need Biospy because localation of node PSA points...
I noticed fatigue from Lupron. I noticed super bad constipation from Cadodex....
Routine. Stop at McDonalds 40 miles away. Start drinking 24oz of water. Usually works out just right. Occassional to much H2O so learn to release a little. IT IS A TRICK ALRIGHT!...
Thank you. It sounds like the general opinion is that it no big deal to miss a treatment here and there. Just make them up to get to the total. Then total is more important than making ever...
I would like to know if you can miss IMRT. My situation is the place took two days off for Thanksgiving and Friday, . I am going to get 41 treatments, 25 to prostate and node bed. Then 16 to prostate...
I have just gone through this with MDAnderson in Houston and this was my understanding of critera for RT. You should have PSA around 0.5 on Lupron and Casodex. The best time is the window between 6-9...
I am begining to understand. I did not understand the way it worked. I thought like 70 gray was a daily dose and not cumulative dosage. I have been thinking and she said it was 38 gray then 36 gray....
Thanks but it is 41 sessions. She a young teeny popper and worried about the whole thing now. Guess I need to explore more because something does not sound right. She may have it wrong. Surely the...
I ask the tech yesterday what my dose of radiation was. She said 38 Gray. That seemed low so I goggle and looks like 70 to 80 Gray is normal. What do you think is going on? I sure do not want the...
"The plan here per MDAnderson" is Lupron plus Casodex for 6-9 months. Getting the PSA to around 0.5 and at this time IMRT. Apparently 6-9 months is best time for RT. Was told you kill the most PCa...
Friendly fire one this is friendly fire two, over. "I'm too old to have the best anyway!" We deserve the best and we not old. Just seasoned. I do agree with a team approach. Before I decided, I saw 2...
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(Inappropriate comment removed - 142) ...
(Inappropriate comment removed - although the question could have been more delicately presented, as this is a forum open to all over 13, the activity in question is a valid part of rehab for ED -...
Sorry to heard of your bad experience....
Friendly fire 1, this is friendly fire 2 ,over. Having in done locally. Thanks for asking. Got marked up and tatoo yesterday. Start IMRT next week. Meet the creteria. It was PSA 0.6, lymph node down...
MDAnderson finely called. They put patient on Casodex 50mg added to Lupron to kill as much cancer as possible before radiation. Once radiation is complete the Casodex is stop. They reminded me that...
Stats are T2BN. Gleason 7 one node only and no bone involument. Started lupron 1May2012 and added Casodex 30 June 2012. I know I was suppose to start Casodex 4 weeks before but did not happen....
The Radiation oncologist put me on Casdex 50mg added to lupron shots. It was my understanding the Casodex was short term treatment prior to radiation. I have now left that radiation oncologist and...
I got a dose of that "clap". It was enjoyable at the time but sort of rough 3-4 days later. Hang in there Bro.. Some 18 year olds died over there. We have had alot of years on those 18 year olds....
Friendly fire 1 this is friendly fire 2, over. Yes sir, Captain. Post traumatic stress(100%) told me to up and leave the MDAnderson situation. We learn to walk and not explode when things get to much...
Thanks everyone. You all have been very helpful....
I have only been dealing with PC for just 6 months. Age 69. Started with PSA 33 and with casodex and lupron it is now psa 0.6 . Testosterone level is below 20. Now the Radiaton Oncologist comes along...
Sorry man but I don't want to see your Penis one way or another on this site....
Dr. Depinho ,from MDAnderson,was just on CNBC talking about this "Moon Shot to Cure CANCER". He was talking over my head....
When I was there the Medical oncologist said that they do not want to just treat cancer. They want to stop it. They ask me to be in one of their trials or protocals they call it. I refused because...
I be there for treatment in two weeks. I hope I not to early. LOL...
Friendly fire 1, 1968-69 were rough years but 2011-12 ain't been real good either. Both start with a C.. Charlie and Cancer. lol...
Correct Casper....
Friendly Fire one, this is friendly fire 2 .Over. I am a t2bn. That is 1/2 the prostate involved with a lymph node. That is what the paper work said. I do not know anything with a t3. They counting...
I am confused about radiation being a cure for PCa. I have heard that external beam radiation for T2B to prostate a node followed by 1 year Lupron is a cure. Then I was told by a VA doctor the it was...
I had a license to practice medicene in two states. I worked for civilian and government medical institutions until I got ill. Let me tell you that the big Cancer Centers are were you want to be. Of...
Go to a top notch Cancer treatment center and you will have no worries about it. MDAnderson in Texas or Sloan Kitering in New York. By doing that it takes all the doctor shopping,treatment...
Are you still on the Casodex? One of the side effects to it is Alcohol intolerance and sensitivity...
The VA can and does review on a regular basis until you are declared "Total and Permanant". We need more informaion about his ratings. Typically a vet is 100% for PCa and extra money for SMC-K for...
Friendly Fire 1 this is Friendly Fire 2 come in, over. dab 60, the veteran with the C-ration can opener, from VBN sent me over to this site. Looks like all GU stuff going on here with smart and...
greetingz, I was already 100% PTSD and I put in my paper work for PCa. It is a few extra bucks is all. If you were boots on the ground in Nam, Prostate Cancer is presumed to be caused from AO. You...
Hello, I am a T2BN. Gleason 7 , Agent Orange in Nam exposed PSA 33 to start. Age 69 On Lupron 22 and Casdex50. Self RXd promegranate 1600 mg daily,Calium, Vit D, One a day mens vit...
Yes. I have been on Casodex 50mg for 4 months now and have one month left. I was started on it to get PSA down in prep for radiation. I also get lupron but the goal was 0.5 PSA to start radiation. It...