Hi everyone! Been AWOL for awhile, thought it was time to update. My PSA post surgery kept creeping up (.08-.30) indicating that some of those cancer cells were still lurking in my body. I decided to...
Hi everyone. I took a leave of absence so I could stop thinking about Pca for awhile. My PSA has gone from .08 six weeks post surgery to .22. I am sure when I see my oncologist in June he is going to...
Thanks, Jeff. Appreciate your candor. Your story is like a light at the end of a tunnel. Best regards, Fred...
Thanks Im_Patient. That is great news! I have lost some sensitivity on the head of my penis. My Uro said it was because some of the nerves were removed, but that it could come back. Have you...
Yes, I have lost about 1.75 inches. depressing. In researching this disease, it seems that 18 months is a threshold period, where it gets as bad as it is going to get or it starts resolving itself....
Hi everyone. Been awol for awhile. Late last year, a tumor was discovered in my right testicle. Given my history, my Oncologist recommended having it removed, which I did on January 16. The pathology...
Only ten days till all restrictions are lifted. Three 60 minute workouts with trainer. Weights, stretching, aerobic. Max HR 165ppm...
Four workouts with trainer this week. (He's a good friend so no charge). bench press, assisted pull ups, flies, curls, try curls, squats, interchangeably. lots of stretching. 4 30 minute sessions on...
4 Very light gym workouts. total body with weights---but very low weights. Stretching, 25 minutes on Eliptical. Max HR achieved 160 ppm....
The controversy regarding PSA scores had a neg impact on me. I had a biopsy in 2007 which was negative. After that, even though my PSA fluctuated, I resisted another biopsy because of the...
Hi Phillip, I have had a very good experience at Memorial Sloan Kettering in NYC. You can make an appointment on-line. My oncologist is Dr.Danilla. But the most important thing about Sloan and...
So just when I thought all I had to worry about was my Pca, a sonogram of my testes showed a tumor in the right one. I was one of those babies that had only one testicle descend after birth. The...
Hi, I am a patient of Dr. Mulhall also. He advised me that the average dosage is between 30-35 units. So be patient. At the office, they administered 5 units the first time (3-4 on their scale) and...
Hi, my surgery was on October 26, 2012. It was robot assisted and I was up walking 4 hours after I woke up. I went home the next day. We live on the 6th floor of an apartment, and the following day...
Hi Mel, I hear you. My oncologist referred me to a shrink that I will see on Wednesday, right after meeting to go over imaging results. Right now, I don't want to travel, I don't want to go to the...
Hi John, have you thought about Sloan Kettering in NYC? They have an entire buidling focused on treatment of urological cancers and side effects. Best wishes, Fred Hill...
Welcome Master Chief---I am a newbee too, had surgery in October. After the Cath is removed, remember to do your kegel exercises. The will help tremendously with continence. Also, thanks for your...
Hi Dave, I am new to the forum and to the Pca side of the world. I am not on hormones yet, but my dog Kate died in 2003 and I cried like a baby. One year later, we got another dog, who has been with...
Hi everyone, I had Robotic Assisted surgery on October 26. (See below) Six weeks after surgery my PSA was 0.08. Yesterday, it was 0.11. I also had an MRI, PET, CAT and Sonogram. I have an appointment...
Phil Wife, I agree that you should definitely speak with a radiation oncologist and carefully consider all options. The bad news is that all options have advantages and disadvantages (aka side...
Moderator, Thanks for the info. I am working on diet. As a red meat lover, it will be a challenge, but I'm up for it. I am an avid cyclist and am dying to get back on the road. I am going to wait for...
Hey---so on the injections---I am seven weeks post op and have an appointment with Dr. Mulhall next week. About those injections, How long does the erection last? Is it as good as pre-surgery? Has...
Zimac, could not be happier with my surgeon. His name is Vincent Laudone. If your friend goes to the Sloan website, there are several videos featuring Dr. Laudone. He has experience with open and...
Hi, Like you, I am relatively new to this disease. I went through biopsies, PSA from 4 to 15, MRIs, and all the rest. I was DX in August, Gleason score of 8. I had Robot assisted surgery at Sloan...
thanks for the response. My pathology was pT3b, so the left seminole vesicle was invaded. The surgeon removed 28 lymph nodes and one was positive. Their hope was that my PSA would be non-detectable....
Just spoke to my doctor's office and they are not happy with the PSA of 0.08 because one of my lymph nodes was positive. They have moved up my appointment with the surgeon to early January from late...
Congratulations to you Andrew! Please enjoy a libation on me! Fred...
Hello everyone. Just got my first post surgery PSA--0.08. I was hoping for undetectable, but I understand it can take a while to go down. Any thoughts on this? Thanks,...
Hey, Happy Friday everyone. Just got the results on my first PSA post surgery---0.08. I am assuming this is a good result and have a call into my Doctor's office to discuss it with him. Any one have...
Hi MarleH, I had LARP on October 26th. There were three issues I experienced that were uncomfortable. First, living with the catheter for a week. It becomes your new master. Want to sit, ask the...
Hi, I am a newbie too, sort of. I had LARP surgery at Sloan Kettering in NYC on October 26th. Initially, I was going to be treated at another institution and just went to SK for a consult. Once...
Thanks for the support! I am home, and the surgery was uneventful. Pathology results in early November. I figured out that my new best friend (the catheter) needs to ride on my right leg, as opposed...
Thanks, Fred...
Hi Everyone. My name is fred and I have surgery tomorrow at Sloan Kettering. It is nice to discover that there are a lot of people with my problem. It helps not to be so alone. One of the things that...