Aloha Doorpuck, I use the Hollister two piece with the 14402 wafer for a uro-ostomy. This last lot (2L272) is a bummer. I usually get 7 to 10 days between appliance changes. This lot starts leaking...
Aloha Lisacaregiver, Yes, go to the UOAA web site, call all the appliance makers, ask for samples, try them all. I called 6 companies, wound up with what they sent me home with. My surgeon...
Aloha Gene214, It is true that #2 plumbing problems can & do show up after EBRT. I had some bad Hemorrhoids prior to EBRT & was advised to wait 4 mths after Treatment before having surgery to correct...
Aloha, Yep, my doc wanted to start at .5 ml, but after reading some posts I asked for .2 ml & we got a mild response. After getting the prescription, we tried .3 ml, very nice, took 2 hrs to go down...
Aloha Freedom75, Don't leave placement of your ostomy to the surgeon. Talk with an Ostomy Nurse as to where you want your stoma located. Your surgeon should have 100's of surgery's. You will live...
Aloha, It all boils down to how long you want to live and how agressive your PCa is projected to be. My choice of EBRT caused serious difficulties, & 5 years later at 71, had bladder & prostate...
Aloha Alf, For some of us the decision to treat PCa was based on the "agressiveness" of the PCa. The more agressive the PCa the shorter our future, so to speak. How you determine agressiveness is...
Aloha, We purchase a little larger T shirts, cut off the arms at the seams (leave the seam) & use an arm to sew into the T shirt a pocket to hold the bag. Keeps the bag off the skin + holds bag up &...
Aloha MsWorryWart, It is difficult to say exactly what EBRT will do to a man. Because it was thought that my PCa had gone beyond the prostate, I got a rather large dose to the pelvic area + prostate...
Aloha Penny471, I take a shower every night without protection for my Hollister 2 piece. Getting 7 to 10 days between wafer changes. Have not tried swimming yet, next on the list. Joe...
Aloha Happygolucky, For other reasons, I had blisters near & just under the adhesive. Doc recommended 500 mg Vit C/day. After several weeks the blisters reduced in size from 1/2 - 3/4 inch to pin...
Aloha Sunee, When I was discharged from the hospital, I had 1/2 & 3/4 inch blisters under and around the adhesive. After 3 weeks of this my doc suggested taking 500 mg of C/day. Several weeks later,...
Aloha Anthony, There are several steps that you should take to help this event happen in a way that you can live the rest of your life uneventfully. 1. Exercise as best you can - better shape -...
Aloha Desertsun01, Yes, you got it. Put powder on dry skin, brush off excess, put on appliance. If anything hurts you or your skin, don't use it. My current seal was installed a week ago Saturday. It...
Aloha Desertsun01, The suggestion to go simple is your best choice. I use Hollister and I get longer/cleaner wear times when I do NOT use the no sting skin barrior. Just do your clean up with a mild,...
Aloha Amythyst, I think that you should get professional help. The stoma is so close to the belly button, you don't have much room for the ring. Joe...
Aloha Big Dog, I know this is tough for you, especially with child. Something in the steps/stuff you are using is not working. I get 7 to 8 days per change. I use Dawn dish soap to clean the skin...
I can only speak for the no lifting anything for 4 weeks. It has taken me 11 weeks to begin to act more normally. You two must try not do anything that might cause stress to the surgery scar. I was...
Aloha, Try reading/looking at the pictures in this paper by Mike: http://woundostomycontinence.com/mike/peristomaldermatites.pdf He explains how to repair & avoid abusing the skin. Joe...
Aloha Peace&Harmony, I've had less than 3 months with my uro-ostomy, so I'm still learning. So far I know that using less is best. The rings were also sorta messy for me. I find myself going back to...
Aloha Larasmom, Yes, therapy helps with the blame problem. We are experiencing our human condition. Until we can get beyond blaming ourselves or someone else for our current condition or the...
Aloha, I was sent home with a handful of uro-ostomy products of a well known brand. I was instructed, when I got home, to contact the manufactures to get a free travel kit. So I found a list of...
Aloha B'Dereh, My last trial of a different product used the Eakin ring. This product & the ring were much easier to apply. This product had more skin irritation than the product I came home with...
Aloha, When I was discharged from the hospital July 30/2012, the uro-ostomy stoma was 1.125 inches in diameter. Yesterday it measured 0.875 inches. How long before it stops shrinking? Would this...
Aloha, I found this article on the UOAA web site: http://woundostomycontinence.com/mike/peristomaldermatites.pdf It covers many skin irritation questions & provides tips & suggestions as to how to...
Aloha, Something I did not quite understand before my uro-ostomy, but the info was always there, just did not put it all together. When you drink liquids, the gut removes the liquid and puts it into...
Aloha, Before the uro-diversion operation, the ostomy nurse used a clear plastic to protect the "X" marks the spot, had blisters under plastic the next day. After operation, still in hospital, 1/2"...
Aloha, Has anyone ever used a home HBOT unit for treatment of delayed radiation damage to soft tissue? I have talked to one person who used 3.0 atm HBOT to relieve his urinary pain. So I know that...
Aloha, Don't seem to be able to edit my signature here. When in edit it goes away. How do you edit your signature? Thanks Joe...
Aloha Baptista, Again, I think the use of aspirin depends on the individual. For other reasons I've been a heavy 325 mg aspirin user for the past 35 years. In the past 10 years I've back off a bit...
Aloha Alegar, Even though we started with different treatments, we have a common problem. Perhaps you will heal sufficiently to overcome what appears to be perhaps nerve damage. My incontinence...
Aloha Mel, I was on Lupron Depot 3 mth shots for one year. I asked to stop after one year as the shot sites were very sore, some what painful. The pain continued after the last shot and about 5-6...
Aloha Geebra, This is not easy. My primary treatment was EBRT/IMRT with ulta-sound guidance. Started Lupron Depot June 07, Rxt Sept/Oct 07. After one year of 3 mth shots my hips at the shot site hurt...
Aloha, Anyone know where in USA to purchase a valve that goes between a catheter and the collection bag. There are several available in England. What I'm looking for can be disconnected from the...
Aloha Optimist, OK, so what about your handle, it seems that you've gone over to the other side of the fence. I did not see your age, but if I had your stats, I'd stick to AS for a long time. Once I...
Aloha, I also had one year of 3 mth Lupron Depot shots. The shot sites hurt for years after to point where I could not exercise. A cortizone shot eased that pain and I was able to continue...
Aloha, Under EBRT/IMRT I did not see mentioned the use of ultra-sound to target the prostate. Yes, line up the three tatoos with lasers on both sides and ceiling which was used for one month to...
Aloha purgatory, We are in a somewhat similar position. Urethra EBRT/IMRT damage, severe pain, pain management plus severe nausea, urethra cath's leak badly, the damage seems to be right at the...
Aloha, I was diagnosed with PCa in early 2007, shortly after I presented with getting many times/night to void, full bladder, 200 cc plus. Not just dribbles. This had been getting worse over the past...